hi Leslie and Lori, the shaking that you guys talked about before I've kind of experienced it myself. In my case all the leg muscles shake uncontrollably ...
Hi, Karla, Terri and Leslie! This post was interesting to me. I too get the tremors/shakes. I thought it was from the prednisone, I haven't mentioned it to...
I have the shaking most of the time when I get tired or don't get enough rest. Sometimes I don't even know that I am doing it until it gets real bad and then I...
Hi Laurie, Yes, for me within the first 2 months of my initial weakness, my Rheumy tried to wean me down to 25 mg of prednisone, and my symptoms of weakness...
Hi Laurie My name is Merry and I have had DM since October 2004. I finally got off the Prednisone last October but every time I lowered my dosage I had more...
Hi Lori. Thanks for your reply, it helps to know I'm not alone, although I don't wish this on anyone. I'll be thinking of you and you'll be in my prayers....
hey Laurie, like you my muscles twitch after exercise or when I walk a lot. as far as the medicine the only thing i can recomend is that you take vitamins,...
Thanks, Karla. I do walk up to 5 days a week about 1 mile while waiting for my son to get out of school. I feel so much better on those days that I do walk...
I thought I would just let everyone know that the Dr in Winston yesterday checked my ears and said I had fluid in both of them. She was gonna do the surgery in...
Glad you had a good visit and an understanding DR. That's tough. You're in my thoughts and prayers for an effective recovery, quick and with as little pain...
Tmj is something to do with the jaw. The Dr said that my jaw was out of alignment and is gonna have to be fixed. She said that you have a disc in each side of...
I am a female 62 years old and have just been diagnosed with tge rapid onset of dertamomyositis. I don't know what to expect long term and would like to hear...
hello lorette my name is rose and i have dermatomyositis, i have not seen the tge what does it mean,,i was dx 14 months ago..it came on fast,,i thought i had...
Hi, Loretta. I am 38 and was just diagnosed in May 2006. It was fast for me as well, within 6 weeks I was just a little sore to burning pain and couldn't get...
Dear Loretta, I am 36 and was diagnosed in April 2006. It also come fast. I need to struggle everyday to get up from the bed because of the weakness. It...
Hi Loretta: My name is Gail and I'm 36 yrs old. I was diagnosed in 1977 or 1978 it's been so long ago that I'm not quite sure when I was actually diagnosed...
I have DM I'm 47 come on down _________________________________________________________________ Buy, Load, Play. The new Sympatico / MSN Music Store works...
I have DM I'm 47 come on down _________________________________________________________________ Ready for the world's first international mobile film festival...
hello rickie wwelcome to the group..i was dx,ed alittle over a year ago..this group is helpfull and they will answer your questions or listen to you vent..once...
I did not see your earlier posts, maybe they did not come thru. I, personally, do not have dermatomyosits. I would do ANYTHING to make it me, but it is my...
Rickie? Hi I am 45 years old and was diagnosed with dermatomyositis almost 2 years ago. I had muscle and skin involvement. Drugs and surgery and now I am doing...
Hi- I am 51 and was diagnosed September of 2005. I had been getting symptoms before that. Technically, my diagnosis is DM w/o muscle involvement. My issues do...
I had a muscle biopsy this morning and I"m positive that I have it. Diagnosed 2 weeks ago. Having alot of difficulty swallowing. Have been on a liquid diet...
RE: Swallowing... Jenny, I have not had that happen to me. My Rheumy kept asking me if I had trouble swallowing and it is supposedly common with this disease...
Jenny: I had some trouble swallowing for 4-6 weeks, but not severe enough to switch to a liquid diet. I did choke on the foods I ate if I didn't take super...
hello i had trouble swallowing and lost my voice for about 3 months. i also ate slow and took small bites..in ime my voice came back raspy .i can swallow...
