... over 20 years since I was a teenager and I can't begin to guess or know your daughter. . . ... to take medication for it and be tested and checked...
Your message was so helpful. We have a lot of prayers and spiritual support. I am glad you sent a longer email. I have read and reread what you had to say. ...
Wanting to say I was wondering if you got my post yesterday? If not I will introduce myself again. My name is Leslie and I am 43 years old. I am from North...
leslie hello my name is rose..i was told of my dematomyositis 14 months ago..like you i was weak and couldn,t get up easy from a chair..buttons and caps and...
Hello, Welcome to the group. I am 60 and just dxed in April. I am on MTHX and just had a shot of prednisone 3 weeks ago. I am doing very well now and most...
Is Dermamyositis found in bloodwork or is a diagnoses if it is not lupus. My new Rheumy wouldn't say. I caught him off guard with the words did you check for...
Wow, Leslie, this is Lori--Yes, Dermatomyositis is usually diagnosed with the weakness/rash, and confirmed with an elevated CPK level (a muscle protein) that...
They can't be definitive by just looking at the blood work...but they will have some pretty good indication if they take a look at multiple symptoms (rash,...
They can't be definitive by just looking at the blood work...but they will have some pretty good indication if they take a look at multiple symptoms (rash,...
To Leslie, Sorry so late to respond. I agree with some other gals that responded with diagnosing DM with bloodtests, symptoms, and a muscle biopsy. By itself,...
Hey Karen, How are you? I amvery sore and tired today. Lets just say I feel like crapo. HA!HA! But anyway how are you? Thanks for the email and I am also glad...
My wife has been finally dxed with DM and ILD after years and years of it being called lupus.She seems to be worse than most cases I have seen on this or the...
Hello, I am sorry to hear of all the difficulties you and your wife are facing. I do not have these symptoms but I wanted you to know I hope for a breakthrough...
-Thank You. Im certainly hoping that one day we will find the doctor that says..Ahaaaaa!!! and imediately sets her on a road of recovery,but Im thinking thats...
Dear HighFarGone, I am 38, with DM and ILD. I was dx two years ago this month. They immediately put me on CYTOXAN and predinose. My rheumy told me later ...
Celia
DustBunniesAndBooks@...
Oct 9, 2006 11:31 am
2064
--Dear Dustbunnies&Books, First let me say that,Yes,we lean very heavily on the Lord,our God,although,sometimes I see what she goes through and get very upset...
Rear Celia,Im sorry.Iget carried away talking about Barb.I think its great that you and your Mom are doing better.I just reread your post and cant believe I...
Daniel, Hello again! Every body is different (uniquely designed by our loving Creator), and I think that is why doctors "play" so much with meds. Finding the...
Celia
DustBunniesAndBooks@...
Oct 10, 2006 12:27 am
2067
- Celia,Thank you for your heart felt thoughts.As I reread my posts,I must come off as a bitter person.Its just that I am new to this community for DM thing.I...
Daniel, Just remember this disease is very "Up and Down". I was diagnosed in April of this year and am on Methotrexate as well as Prednisone, I have some weeks...
Welcome to all newcomers. I am glad to meet you all. My name is Leslie. I am 43 years old and have been married for 21 years. I have one son who is 22 or will...
Hi! I am a newbie. I'm 38 years old. I live in Statesville, NC. I was dx a year ago May '05 with amyopathic dermatomyositis (without muscle involvement). I am...
Hi all, My son Kyle, is 12 he has dermatomyositis. He is taking 17.5mg of methotrexate a week along with other meds. I was wondering if anyone has gotten mouth...
Hello all. Some of you may not know me I am the owner and operator of this group. For those who have been here awhile yes I changed my name again. Long story....
Hello, Thank you for starting this group. How old were you when you started it? Do they think you have DM any more? What are your struggles with Lupus? I hope...
Hello Tammy, sorry to here about your condition. Just hang in there and keep your head up. If you overcame DM you'll definitely overcome this new challenge....
Sorry I haven't posted in a while but I have been sick since the last time I posted. I have had my rash come back like wild horses running rampade in a...
Hello Gail, You are very welcome. I was 31 when I started this group. They have not been able to find any sign of the dm for yrs. Pain is the biggest thing I...
I was diagnosed with lupus first, then fibromyalgia because my ana test at first were haywire. Then they came back normal which I don't understand how it did...
Hi, Leslie! I am taking vitamin D, my blood test showed a very low level. I don't know if it's due to the medications or the disease, but I was told we can't...
