hi, like you I was married for 4 1/2 years when I was diagnosted with dm, I was very depresed and my husband couldn't or didn't want to deal with it, he...
I was married for 21 years and my husband began to drink when I was ill and then finally left me for another. Some are just not strong enough to handle it. And...
Hi! You should get a new doctor! I was diagnosed in Oct 2004. My blood work comes back normal most months yet I still have the pain, weakness and stiffness....
My husband is an MD, and I have DM. Research has shown Biotin to be helpful for those of us who get "tremors", I had a hard time with tremors, very bad until I...
I have DM, all my labs are normal, I had a slightly abnormal muscle biopsy. For 6 months I was told I had a "conversion Disorder" ie. I was "crazy". I'm now on...
Hi Fay and Karla, I received 100% Long Term Disability, but it required TONS of documentation. We really sent them a lot, pictures of the rash, etc…. I also...
How much Biotin do you take for the hair loss, mine is definitely getting thinner by the week, and I have Biotin that I take for Tremors. terri _____ From:...
Hi Terri, I bought the one with 3000mcg. I take 1 to 3 a day depending on how much I am thinking about the hair loss... lol It also has silica,(I think) in...
Hi Gail: The cuticle thing is definitely a part of the disease. It is called grottons papules. You may have to take a higher dose of the antihistamine to...
Thanks Merry, My hands are a real mess now. The knuckles and fingers are all red and miserable looking. The skin on my arms is all inflamed. I guess the...
Luz, For years my mom was diagnosed with CTD. (That was after they thought it might be Lupus for several years.) About 4 years ago she switched doctors and...
Celia
DustBunniesAndBooks@...
Sep 11, 2006 11:39 am
2014
hey Luz I read the message u sent to Gertrudes and you metioned that you are having alot of pain on ur knees. Now, since about a wek ago I've been getting...
I received your email Delores. _____ From: dermatomyositissupport@yahoogroups.com [mailto:dermatomyositissupport@yahoogroups.com] On Behalf Of cdgertrude Sent:...
hi carla. I have had the same problem you were describing in your email. for at least a year, and my left knee hurts more than my right one. just like the...
I have been on Metho for about 14 weeks now. I am wondering from all that have been on it for awhile, when did the side effects really get bad? I felt fine...
Great question, I would like to know also. I have been on MTX for 6 weeks now, dosage 15 mg weekly orally. What is your dosage? I have not noticed anything ...
My hair fell out with Methotrexate. Also, my mouth became very sensitive to foods and even toothpaste. My doctor had to recommend extra folic acid to combat...
Hi All, I am new to the group as well. Diagnosed: Aug 2006. On my 3rd week with Metho, (12.5 mg) and would like to hear the answer to Shauna5051's question...
I was wondering of the people that use coconut oil, do you use it topically or as a supplement or both. I thought I had read about people rubbing it on their...
I use it topically, The best type is extra virgin, I get mine in the supplement section of the whole food store. It will stop the itch. You are protecting ...
Hi All, I have been on the metho about 4 times now. The hair loss is gradual and it's more of a thinning out of the hair, especially in the bang area. Other...
... treatment, ... of ... all ... get ... Hi, Lori, I also live inthe Los Angeles area. I had Dm for about a year now. I am 25mg of metho weekly, it took about...
I have been lurking for a week or so. My 4 year old daughter was recently diagnosed with DM. Her main symtoms are on the weakness end, but we are having some...
Dear Janet, I am glad you found this group and am sorry your daughter is going through this. I don't know anything about juvenile DM as I am in the Sr. Citizen...
Hello Lori, I have been on Metho for 10 weeks and am at 15mg. I started losing some hair with the disease process and now I notice frequent hot flashes. I also...
Hi Janet, You've found a great group here. All are caring and have great empathy for you and your daughter Erin. I think that most of us are adults with DM,...
