I got the news back in Feb or March that I had dermatomyositis and have been on Predizone since. Has anyone been on Pred that long with taking other meds? My...
... have ... taking ... the ... Is it Gary? Hi there. Welcome to you. I would guess that most people at this sight have been on Prednisone for that long or...
hello Gary, yes most people have been on prednisone for a while sometimes more than a year and as far as medatrex, I am not sure what that is? did you mean...
Hello Gary and welcome, You will find having this support group will help with questions you may have and just with the all around emotions DM brings up. I was...
Hello my name is Quanah. I'm 26 years old. I was diagnosed with dermatomyositis when i was 22. It took five doctors to determine the diease. finally I found a...
... teacher. ... and ... my ... nose. ... I've had this problem and its really nothing you can do until your muscles strengthen back up in you thoart. my...
Hi Gary, If you're concerned about your liver you may want to take a look at milk thistle. My son has JDMS and used milk thistle for a while. It really...
Hello, Does anyone use Deflazacort instead of prednisone? My sister said the side effects are not as bad as prednisone. Yet it's not used in the USA. I use...
Hi! I was disagnosed in Oct 2004 and have been on Prednisone since then. Started at 60 mg and eventually went down to 0 mg. last October. Unfortunately, I had...
Hi Gary, My best friend was diagnosed with DM in Dec 2005. I joined this group to try to help her as much as I can. She has improved, but is still struggling...
Hello, Elizabeth here. Dm since June 2006, I am now on 40 mg daily pprednisone, and have just taken my second dose weekly of MTX 10 mg. I guess I am in the...
Hello, I agree. It is a scary situation for me too. I was diagnosed in April and am no on MTX for one month so far. No real improvement yet. I have a very...
Hi Gail, I had a rash only on my upper back from the day I mowed the lawn and got a sunburn, that was the beginning and a little on my chest. I get around ...
hello iam rose and i live in mass...i was dx,d in 2005 with this crazy desease..like you no one here heard of this ....i am prone to infections.../i have the...
Hello, Yes, I am in that age group on the older end but I think I may have had this a long time on a mild level. Hormones seem like a real possiblity. Are you...
Hi Gail, I didn't have any obvious symptoms until I developed a rash which I assumed had something to do with the time I'd spent gardening. When it started...
... Just read the posting from Gloria. It's spooky, she sounds like my twin. My condition seems very much like Gloria's, however I'm somewhat luckier in that I...
keep smiling..your right trial and error..i was on mtx and was switched to cellcept..for me better results...rose Elizabeth Millard <fallen2amber@...>...
Boy did I have a great day yesterday. My spirits were flying. Went many places, had great mental attitude. Was going around the house proclaiming..I feel ...
Hello, I was just e-mailing my family about how hard it is to be positive. I went to my eye doctor today for a follow up appt. I have another leak in my eye...
Hello Gloria and others, A question for you, Gloria. Did your hair grow back when you stopped the MTX? I am like you. I think I have had this for a long time...
Hi Gail, Some of my hair did come back, but it is very thin. Also, as with cancer patients, the texture has changed. Now, it is dry and frizzy instead of...
Hello, Yes, you do feel exposed. I always had rich, thick hair and took it for granted. Now I look around at other people's hair all the time and think of how...
hello that smile and that happy you is still there..just have a cloud in the way right now keep planning your return home...i feel up and down also...i have to...
hello Gail, I totally agree witrh you about appreciating our bodies and the things we can do with it, like you now I know how important evry part of our body...
Hello Elizabeth and Laurie and of course everyone else, I know what is like to wake up one day and feel so energized, happy, and willing to accept your fate...
... My neck is sore and stiff in the Am and some days feels too heavy. My hands were very sore and the fingers were clenched(this would happen over night)in...
HI, I agree that everyone has to be positive, but in my case it is the people around me. My husband and 3 boys are having a bad time with my disease. My...
Karla, Thank you for the encouragment. I really think the humidity, bad the past 2 days here in Phoenix. has contributed. And you know 2 months ago I could...
Thanks Rose. I am so new with DM, I think I just expect too much too fast. I am a mover and a shakers. My job was to "make things happen" Well, I sure feel...
