I was diagnosed with DM a few years ago, but noticed redness and weakness about 6 years ago before any doctor had a clue. Is IVIG something like Remicade? MY...
... I ... ultrasound ... the ... a ... to ... on ... Hello, Hope the prednisone helps. My doctors is just as bad. She took me off Metx and prednisone. She gave...
If it is of any help to you there are several websites that you can also visit for info. on JDMS as well as other children's websites that give great info on...
Yes, I am newly diagnosed but I don't feel my rheumatologist really knows much more than I do after having scoured the internet. He doesn't want to hear any of...
... IVIG ... and ... underneath ... with ... since ... prednisone ... morning. ... then." ... happens ... off ... the ... hi I am so new at all of this, I was...
Sorry to hear how frustrated you are getting. Having a good doctor that you can talk to is very important to your sanity! I got in touch with MDA (via their...
Hello, i am new to this site, but i am trying to find anymore info possible that i can, or maybe just to talk to someone, i am 22 and have been diagnosed with...
Hi! I am also new to this sight and the disease. I have only been diagnosed since mid-May this year and am 38. I just had my muscle biopsy two weeks ago and...
Hello, i am glad to hear from you, and very sorry for what you are going through, sounds like the very same thing i have been going through, and it is very ...
None of you have said what meds beside Pred you are on and what kind of doc is treating you??I have had DM for over 1 1/2 yrs and just found the right doc a...
Hi Christy, I am glad you have sign up for this group because believe it or not it helps to know that you are not alone and that here all of us will understand...
just wanted to share this with all of you: http://www.beliefnet.com/ ... Do you Yahoo!? Get on board. You're invited to try the new Yahoo! Mail Beta. [Non-text...
My sister and I both have DM. I am having an awful fare at the moment. I am new to this, oct 2005. My sister has had DM for 2 years, but is doing good. She...
... been diagnosed since mid-May this year and am 38. I just had my muscle biopsy two weeks ago and am healing from that. I had a very down point realizing...
HELLO, and thanks for taking the time to listen and understanding, because it is so hard for people to even try to understand what we go through each day, some...
Christy I know what you mean when u say that sometimes you wake up and you just feel down and the only thing you can do is cry and cry. But when you feel like...
This has been a rough week, I started having blurred vision Friday, saw my primary doctor on Monday. She sent me to an eye doctor who dx central serous...
hello my name is rose, i take sulindac for pain ..i also use vicodin when the pain is more than an ouch,,i have alot of joint pain..elbows wrist ankles and...
hello \every one smile..where pretty special people i have had 2 surgerys on my hands because of infections...the use of then is limited now ,,but i read the...
Dear Laurie, I'm sorry to hear of the bad times you are going through. I don't have any suggestions but my mom benefited from percodin which is not a very...
Hi Laurie, sorry to hear about your problem. It sounds serious. I know what you mean about the pain relievers: advil, tylenol and vicodine, have tried them...
Has anyone ever heard of a Doctor that treats DM with natural remidies, such as herbs and vitamins? There is a doctor, in Key West Florida at the Lower Keys...
... Hi Thomas, I recently started taking a supplement called PABA, this is in addition to the Plaquenil that my dr. prescribed. My dr.'s has all decided that ...
... Dermatomyositis ... Hi Thomas, I recently started taking a supplement called PABA, this is in addition to the Plaquenil that my dr. prescribed. My dr.'s...
Hello, I am Elizabeth, diagnosed with DM June 2006. Looking forward to the new family I am going to find here. Keeping up my experience, strength and my hope,...
Just wanted to introduce myself. I am Elizabeth, diagnosed June 2006. I would love some contact here in the Phoenix, Scottsdale area. I have been here for 2...
Hello Elizabeth, Welcome to the group no one really wants to belong to!. You say you are a MOM. What age group are you in? Do you have small children. I am 60...
... Hello Elizabeth and everybody! I was diagnosed in 1992 and after other numerous illnessess, that was probably attributed to DM, have your thyroid checked....
