I haven't experienced eye symptoms like yours but I have had eye problems since I first began to have DM symptoms. I have struggled with double vision, blurry...
Hi, After reading your posts , I thought of informing you about my case.I was diagnosed in March 97 with DM and not JDM. I was 14 years old then. Now even...
Karen, Sorry for the delay in responding. I've been sick with some sort of stomach bug. YUCK! To answer your question no. She does not have any physical...
My daughter has been on Prednisone for 4 weeks and now her hands keeping sweating. Anyone have a suggestion? She is 12 and it embarrasses her at school..genie...
Genie- Sorry to hear that. Maybe you can get her some baby power to keep in her purse. That way when she goes to the bathroom she could use the powder on her...
-- Thanks .. I bought her the powder.. Just have to deal with it for awhile..genie - In dermatomyositissupport@yahoogroups.com, "Shara" <sbm1973@...> ... in ...
hello i am constantly fighting infections,because of my dematomyositis.i ve had to surgerys on my hands because of the infections and still have more surgery...
Rose, I recently ran into the same problem....I've had DM for 4 years and
have been on prednisone and methotrexate that long. Needless to say, it
really makes...
... years and ... say, it ... exposed to a ... rt upper ... and they ... have an 8cm ... they fillet ... every ... which I ... body). I've ... protein, ... ...
Hi, What kind of problems are you having with your hands that require surgery? I have Gottron's papules that get swollen and sore and my cuticles are...
hello its me again seeking more information...is anyone in remission? my doctors tell me that usually the skin issues come frist ..not all people get musel...
Hi Rose, They say that I am in remission. I started having muscle aches and then the weakness kept getting worse (slowly) it seems over a 4-5 year period. For...
Rose, my skin happened first. The muscle weakness of the upper arms and
hips came about a month later. The muscles were easier to resolve, though I
lost...
Rose - I am in remission (no meds and no DM symptoms). Some only have the skin (amyopathic DM) and no muscle involvement. Others start with skin and then the...
Hello, My wife (Tess) a Filipino was diagnosed in Oct 2005 and is working with the a rheumatologist in Portland Oregon- we live in Alaska. She is have big...
I had juv dm and I have not had any signs for the dm since I was 10 yrs old. I have not been on meds for it since that time. I do still have some after effects...
Hi Roger, I am 1/2 Filipino... I was dx in 9/96. What problems is Tess having? I started on 20mg of prednisone and when I dropped I would always go very slow...
Hi, I went to the doctor at Wake Forest University Medical Center today and they are now telling me I have CNS vasculitis. I have brain lesions that have been...
Wow, I'm feeling your pain and discouragement. I had a stroke 2 years ago,
but they never determined that it was from vasculitis..they did a brain
angiogram,...
Hi, Thanks so much for the words of encouragement. I really feel for you too. I too did work in the medical field, was an OR RN, got to where I couldn't...
Hi, I saw my rheumatologist yesterday and he increased my dosage of Cellcept from 1500mg to 2000mg per day. I've tried Azathioprine and Methotrexate in the...
Hi Dawna, My skin rash led to the eventual diagnosis of DM. Actually, my first diagnosis was Lupus, but now the verdict is overlap syndrome. I have been...
Dawna: Could you please email me the site for Dr. Ottis. I am originally from Pittsburgh but currently live in Florida. I have family still in Pittsburgh....
Just want to start offf with telling you how nice it is to correspond with
others that have similar challenges to face, and are pretty savvy with
successful...
hello i have been on cellcept for months now..it works best for me at this time..mtx caused me to loose my hair also..the doc,s would put me on mtx and i,d get...
Wow - I've had DM since 1996 and I've not heard of anyone having brain lesions as part of their DM / PM. You might have read in my previous posts that I am in...
Hi Rose, nice to meet u and thanks for the info on cellcept. Sounds like
the med. to talk to Dr, Oddis about. I'm off my MTX now, fighting the staph...
your welcome..i dont know how long the relief will be with cellcept but i,ll injoy it while it last...my doc keeps uppig the dose ..the goal is 3000..they up...
