Hi I am 20 years old and have had DM for 5 years now. I was 16 when I was first told that I had this illness. I live in Georgia and drive every 6 months to...
I'm new here, just joined yesterday. I'm 50 years old and have had this disease for about 16 years, so far without muscle involvment. However, there is a...
Welcome and I know what you mean of all the things DM can and does do to me the itchy scalp is the worst and I havn't found anything that really helps.You are...
Does anyone's DM affect their eye muscles? I'd had extremely painful and some weakness in the muscles, but it was when my eyes were affected that I started...
Celia
DustBunniesAndBooks@...
Apr 6, 2006 1:03 pm
1704
Candace, www.myositis.org had info on advocacy, events and such. Kelly ... was ... every ... wondering ... to ... information...
The only thing that has given me relief, but by no means totally taken away the itching, is head and shoulders shampoo and conditioner (not all in one) The...
Head and shoulders set my head on fire wow it was awful.Tried it twice with same results just to powerful for my head.But thanks for the info seems with this...
Panteene makes a product for anti-dandruff. It works well for me and my daughter. tractornana <tractordave@...> wrote: Head and shoulders set my head on...
Our 5 year old has had some twitching going on. but no pain. ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail...
I have tried two products prescribed by my dermatologist that seem to help a little with itching - Dermasmooth and Luxiq. One is an oil that you apply at...
Hi I have had DM for 5 years now and I am having problems with my skin and scalp being extremely dry no matter what I do. Is there a certian product that can...
I seem to be getting more and more muscle involment.Yesterday went to grandparents day at my granddaughtrs preschool and they had a school bus for the kids to...
Yes, my daughter has DM and this is exactly how her muscle pain started. She had skin issues (undiagnosed) for years before the muscle pain began. It began in...
My daughter had one "lazy" eyes around 3 years old called strabismus. They patched her strong eye to force her week eye to strengthen. Now that I think back,...
For the scalp we use Pantene's anti-dandruff shampoo http://www.pantene.com/en_US/products/collection/classic/true_c_anti_dandruff.jsp. Others have mentioned...
Your muscle symptoms are typical of the disease. I resisted starting an exercise program for years because of the associated fatigue, but I have been...
I belong to a women's gym(like curves)but have about quit going because of the fatigue but maybe I should rethink it and try to get there and do as much as I...
Garnett Your muscle weakness is part of the package. I believe that when you are having a flare of the disease that resting the muscles is recommened, not...
... Hi Garnett, Ask your dr. on your next visit about resuming exercise. Then do something that you enjoy. My dr. told me last fall to start aerobics to...
... Hi qquacky, I'm 53 was diagnosed with "Amyopathic" Dermatomyositis also. The drs. gave this diagnosis because all my blood work and muscle biopsy were...
Hi Garnett Those are exactly where I started feeling the strength loss. I have a strength test that I use to show someone how much strength I do or do not...
Thanks Ann.Glad something is working for you and hope when I see my rheumy in 2weeks she will put me on something stronger(I am going to ask for something).I...
I was diagnosed with dermatomyositis approximately one and half years ago after a 5 year saga with over 9 neurologist and 5 rheumatologist (each one would...
Wow Delores! You have yourself a handful!! I have had some unusual eye problems (I occassionally see dancing prisms ...that I call dragon tails.....floating...
Hi Delores. I haven't had any eye problem at all since I've had DM (It is actually two years this week) My only symptoms were the rash on my face and hands ...
Hi. I am a new member. I have a 22 mnth old daughter that has had a rash on her cheeks, knucles, and elbows for about 4 mnths. We first went to a dermatologist...
Hi. I am a new member. I have a 22 mnth old daughter that has had a rash on her cheeks, knucles, and elbows for about 4 mnths. We first went to a dermatologist...
