Hi All, My name is Gwen and I am new to this site. I have had dermatomyositis since I was 7 years old, now 43. I started a blog on the 360 here at yahoo and...
Hi Gwen, Yes, the same thing happened to me with methotrexate. In my case, I'm afraid it's gone forever. I have bald patches all over my scalp and I also...
Thank you Gloria for replying.. Did the doctor say why the hair is gone? My doctor said the metho can't be the cause because I am off it now and it should have...
Gwen, Sorry, no experience with the thinning hair. My daughter has dermatomyositis; she was diagnosed at 6. She is in remission now and I've been told that...
Hi Gwen, Actually, thinning hair was the reason I diagnosed myself with DM. I began to get concerned and started searching the internet for causes of hair...
Hi Michelle, I don't think there is one answer really. I was told I had "grown out of it" when I was younger. Each person is different on how it affects them....
Recently I have been feeling exhausted all the time and the past few days found myself having a hard time breathing. Especially while talking, taking deep...
Hello everyone, my name is Karla I am going to be 22 years old in April, and I've had DM since I was 19. I Joined this group back in December but I didn't feel...
... Hi Karla, I have had dm since I was 7, I am now 43. I understand when you say it that family and friends don't really understand. They can't possibly...
I really appreciate you writing back so fast. And believe me all the positive stuff you said reasures me that somehow I am going to overcome this, because I've...
I had problems with having hair loss and it did eventually grow back. To help the itching there are several products that you can get. For a daily basis Head...
Curious - Any problems with dandruff anyone? I'm trying to determine a link between the itchy scalp, dandruff, and autoimmune disorders. When I was pregnant...
I have DM and in a current flair. I am currently on methotrexate and prenisone and high blood pressure medication. Can anyone suggest relaxation techniques...
It's been a long time since I've had an energetic six-year-old. Are there any kid-friendly exercise DVDs that you could do together? I find that exercise has...
Dandruff - YES! It's embarrasing. I now use Dermasmooth about once a week and it seems to help. Itching is my biggest complaint, in spite of the pain and...
Thank you! I will incorporate it into our schedule and the exercise will do me a lot of good because I blew up over 100lbs on prednisone. Gloria Thysell...
sherrie hayden <sherriehayden2@...> wrote: Thank you! I will incorporate it into our schedule and the exercise will do me a lot of good because I blew...
I don't live in the UK. I have friends there though. :-) I was diagnosed in September, but looking back, I had symptoms long before that. Claire "Which would...
thank you for your kind words have had DMfor 18 months am currently in remission as far as docs tell me although it doesnt always feel like it .i refused...
Hello everyone. I'm still very new to Dermatomyositis (my daughter being diagnosed recently) and not being started on treatment yet, as am being bombarded with...
Hello, I can relate to how you and your daughter must feel....when i was first dx in november of '05, I scoured the internet for natural cures because I was...
You might want to look at the CureJM web site. Chris in Colorado ... From: ucdquickchick To: dermatomyositissupport@yahoogroups.com Sent: Wednesday, March 15,...
and if they worked??I have been on plaqunel and it did nothing but give me a rash.Prednsione works for my rash but doc wants me off it.I am on an antibiotic...
Hi Garnett, Sorry to hear you're having such a hard time. I have been taking Plaquenil for 6 months, along with Naprosyn for pain. I just saw the derm. dr....
Dear Garnett: I was diagnosed with DM in February of 2004. My cpks were over 20,000 and I nearly died. I spent two months in a hospital bed and another four...
You sure have been thru alot and I am so glad to read that you are doing so well now.It gives me hope that the right med is out there and someday I may make it...
... give ... on ... April ... I was diagnosed with DM in late January. I am currently taking 60 mg prednisone and 8cc of Methotrexate. (Along with meds for...
