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dermatomyositissupport · Dermatomyositis Support - Anyone who has/ knows anyone with Dermatomyositis
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Messages 1645 - 1674 of 3850   Oldest  |  < Older  |  Newer >  |  Newest
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1645
I have DM and i have successfully had three children with out complications. In fact, i had my recent child at home with the help of a midwife. If you have...
nuckelsc
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Feb 8, 2006
2:30 am
1646
Yes I am new!!! Very new to computer groups, etc. too. Diagnosed with DM one year ago very shortly(Mar.05). Things are more or less under control now, thank...
gkm946
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Feb 25, 2006
6:46 pm
1647
I was diagnosed with cancer within six months after the skin rash became obvious. I guess I'd noticed a rash prior to April '99, but it was bad enough in...
Gloria Thysell
thysell02
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Feb 25, 2006
8:11 pm
1648
I was diagnosed with DM in August 05. I have had every cancer screening that they could think up. So far...no cancer...but I'll keep my screenings on...
Ann
apoindexter_1
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Feb 28, 2006
12:07 am
1649
Thanks Ann- Didn't know what the numbers were but makes me feel better although at Sloan Kettering they did a radio-active Pet Cat scan last Feb. and I showed...
Sharon Ensko
sharonensko2
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Feb 28, 2006
3:04 am
1650
Hi All, My name is Gwen and I am new to this site. I have had dermatomyositis since I was 7 years old, now 43. I started a blog on the 360 here at yahoo and...
xogwen
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Mar 8, 2006
12:46 am
1651
Hi Gwen, Yes, the same thing happened to me with methotrexate. In my case, I'm afraid it's gone forever. I have bald patches all over my scalp and I also...
Gloria Thysell
thysell02
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Mar 8, 2006
1:48 am
1652
Thank you Gloria for replying.. Did the doctor say why the hair is gone? My doctor said the metho can't be the cause because I am off it now and it should have...
Gwen
xogwen
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Mar 8, 2006
2:10 am
1653
Gwen, Sorry, no experience with the thinning hair. My daughter has dermatomyositis; she was diagnosed at 6. She is in remission now and I've been told that...
Michelle Herlth
michelle_herlth
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Mar 8, 2006
4:55 am
1654
Hi Gwen, Actually, thinning hair was the reason I diagnosed myself with DM. I began to get concerned and started searching the internet for causes of hair...
Gloria Thysell
thysell02
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Mar 8, 2006
12:57 pm
1655
Hi Michelle, I don't think there is one answer really. I was told I had "grown out of it" when I was younger. Each person is different on how it affects them....
Gwen
xogwen
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Mar 8, 2006
3:04 pm
1656
Recently I have been feeling exhausted all the time and the past few days found myself having a hard time breathing. Especially while talking, taking deep...
xogwen
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Mar 9, 2006
2:59 pm
1657
Hello everyone, my name is Karla I am going to be 22 years old in April, and I've had DM since I was 19. I Joined this group back in December but I didn't feel...
Karla Romero
tweetybyrd_1...
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Mar 9, 2006
10:25 pm
1658
... Hi Karla, I have had dm since I was 7, I am now 43. I understand when you say it that family and friends don't really understand. They can't possibly...
xogwen
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Mar 9, 2006
11:35 pm
1659
I really appreciate you writing back so fast. And believe me all the positive stuff you said reasures me that somehow I am going to overcome this, because I've...
Karla Romero
tweetybyrd_1...
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Mar 10, 2006
1:17 am
1660
I had problems with having hair loss and it did eventually grow back. To help the itching there are several products that you can get. For a daily basis Head...
Courtney Nuckels
nuckelsc
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Mar 10, 2006
2:24 am
1661
Curious - Any problems with dandruff anyone? I'm trying to determine a link between the itchy scalp, dandruff, and autoimmune disorders. When I was pregnant...
Michelle Herlth
michelle_herlth
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Mar 10, 2006
4:33 am
1662
I have DM and in a current flair. I am currently on methotrexate and prenisone and high blood pressure medication. Can anyone suggest relaxation techniques...
sherriehayden2
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Mar 10, 2006
10:00 am
1663
It's been a long time since I've had an energetic six-year-old. Are there any kid-friendly exercise DVDs that you could do together? I find that exercise has...
Gloria Thysell
thysell02
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Mar 10, 2006
12:23 pm
1664
Dandruff - YES! It's embarrasing. I now use Dermasmooth about once a week and it seems to help. Itching is my biggest complaint, in spite of the pain and...
Gloria Thysell
thysell02
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Mar 10, 2006
1:06 pm
1665
Thank you! I will incorporate it into our schedule and the exercise will do me a lot of good because I blew up over 100lbs on prednisone. Gloria Thysell...
sherrie hayden
sherriehayden2
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Mar 12, 2006
11:25 am
1666
sherrie hayden <sherriehayden2@...> wrote: Thank you! I will incorporate it into our schedule and the exercise will do me a lot of good because I blew...
sherrie hayden
sherriehayden2
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Mar 12, 2006
11:30 am
1667 cuttsdee
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Mar 13, 2006
1:04 pm
1668
I don't live in the UK. I have friends there though. :-) I was diagnosed in September, but looking back, I had symptoms long before that. Claire "Which would...
Claire Kane
oak1day
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Mar 14, 2006
11:10 am
1669
thank you for your kind words have had DMfor 18 months am currently in remission as far as docs tell me although it doesnt always feel like it .i refused...
cuttsdee
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Mar 14, 2006
3:47 pm
1670
Hello everyone. I'm still very new to Dermatomyositis (my daughter being diagnosed recently) and not being started on treatment yet, as am being bombarded with...
Clare OMeara
claretomeara
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Mar 15, 2006
6:50 am
1671
Try this site they have a Juvenile DM support group.Actually great support for anyone with dermatomyositis(an adult site to). ...
tractornana
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Mar 15, 2006
1:01 pm
1672
Hello, I can relate to how you and your daughter must feel....when i was first dx in november of '05, I scoured the internet for natural cures because I was...
ucdquickchick
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Mar 15, 2006
8:23 pm
1673
You might want to look at the CureJM web site. Chris in Colorado ... From: ucdquickchick To: dermatomyositissupport@yahoogroups.com Sent: Wednesday, March 15,...
Chris & Donna
cadaplus2_2000
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Mar 16, 2006
3:22 am
1674
and if they worked??I have been on plaqunel and it did nothing but give me a rash.Prednsione works for my rash but doc wants me off it.I am on an antibiotic...
tractornana
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Mar 16, 2006
9:54 pm
Messages 1645 - 1674 of 3850   Oldest  |  < Older  |  Newer >  |  Newest
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