Hi Everyone, I'm new to this group, and hope to be of some contribution. I am a 23 year old recent college grad from UC Davis and life long distance runner....
I have been on 100mg pred for the past couple of months (plus Methotrexate for the past month). My advice to you, is to go high protein, low fat. I have...
Sharon, Sorry it took so long to get back with you. I've only recently got my test results back. Here goes: Results from 10/19/05 Thyroglobulin AB: 1188.0 H ...
Well, Thought I'd check in for the second time after these few months have gone by. For my symptoms, I was put on 20 mg. of prednisone for a month together ...
I am a 31 year old woman who was diagnosed with DM in 2000 and has not had a flare in four years. I am currently off medications and I just found out I am two...
I am a 31 year old woman who was diagnosed with DM in 2000 and has not had a flare in four years. I am currently off medications and I just found out I am two...
From what I'v read, if you are in remission, your risks of complication are really not a problem. I unfortunetly can not speak to it from any level of...
Hi Michelle, It sounds like your medication is not working because if it were you would feel normal and not have all the symptoms you have. So either the...
Hi- I mostly lurk on this group but do appreciate info. I was diagnosed with dermatomyositis in September and wrote a little about this a few months ago....
This sounds very familiar to me. I've had so many pains come and go over the past few years, just as you've described. I had a terrible pain in my big toe...
Thank you Gloria, that's interesting. My rheumatologist tells me these transient attacks of sharp pain are "not related to my automimmune disease". she is...
I have DM and i have successfully had three children with out complications. In fact, i had my recent child at home with the help of a midwife. If you have...
Yes I am new!!! Very new to computer groups, etc. too. Diagnosed with DM one year ago very shortly(Mar.05). Things are more or less under control now, thank...
I was diagnosed with cancer within six months after the skin rash became obvious. I guess I'd noticed a rash prior to April '99, but it was bad enough in...
I was diagnosed with DM in August 05. I have had every cancer screening that they could think up. So far...no cancer...but I'll keep my screenings on...
Thanks Ann- Didn't know what the numbers were but makes me feel better although at Sloan Kettering they did a radio-active Pet Cat scan last Feb. and I showed...
Hi All, My name is Gwen and I am new to this site. I have had dermatomyositis since I was 7 years old, now 43. I started a blog on the 360 here at yahoo and...
Hi Gwen, Yes, the same thing happened to me with methotrexate. In my case, I'm afraid it's gone forever. I have bald patches all over my scalp and I also...
Thank you Gloria for replying.. Did the doctor say why the hair is gone? My doctor said the metho can't be the cause because I am off it now and it should have...
Gwen, Sorry, no experience with the thinning hair. My daughter has dermatomyositis; she was diagnosed at 6. She is in remission now and I've been told that...
Hi Gwen, Actually, thinning hair was the reason I diagnosed myself with DM. I began to get concerned and started searching the internet for causes of hair...
Hi Michelle, I don't think there is one answer really. I was told I had "grown out of it" when I was younger. Each person is different on how it affects them....
Recently I have been feeling exhausted all the time and the past few days found myself having a hard time breathing. Especially while talking, taking deep...
Hello everyone, my name is Karla I am going to be 22 years old in April, and I've had DM since I was 19. I Joined this group back in December but I didn't feel...
... Hi Karla, I have had dm since I was 7, I am now 43. I understand when you say it that family and friends don't really understand. They can't possibly...
I really appreciate you writing back so fast. And believe me all the positive stuff you said reasures me that somehow I am going to overcome this, because I've...
I had problems with having hair loss and it did eventually grow back. To help the itching there are several products that you can get. For a daily basis Head...
Curious - Any problems with dandruff anyone? I'm trying to determine a link between the itchy scalp, dandruff, and autoimmune disorders. When I was pregnant...
I have DM and in a current flair. I am currently on methotrexate and prenisone and high blood pressure medication. Can anyone suggest relaxation techniques...
It's been a long time since I've had an energetic six-year-old. Are there any kid-friendly exercise DVDs that you could do together? I find that exercise has...
