I had the back problem in August...and I think that is what actually 'helped' in getting a diagnosis. I had been bike riding,...a very short distance, but...
Hi to all! My name is Sharon and I just had my Rheumatologist agree with me that I have Scleroderma with Dermatomyositis overlap. Haven't done any testing...
... agree with me that I have ... for Dermatomyositis ... hand/nail/capillary dropout around ... Lymphedema. Would like ... is knowleable about this ... ...
Hi Sharon! My daughter has Dermaytomyositis. She was treated with Prednisone to supress the immune system. I have Hashimoto's Thryoid and I'm curious what...
Hi Sharon, I'm Joanne, I had juvenile DM and live in Australia. I have a friend in New York who has DM so will email her and ask her who she sees and get back...
Hi Sharon, The recommendation to go talk to someone at MDA is a good one. I just started visiting one within the last couple of weeks and although I was...
Hi Ann, I have just started with a new primary care doctor who is probably going to refer me to a new rheumatologist. In the next two weeks will be busy doing...
Hi Patty,Joanne & Elaine, I saw Dr. Kagen today and he said I have Derma. It was nice to hear a knowledgabel doctor say it. Am now trying to decide if I...
I can't help it...I'm a database geek...so I had to add a table as a place where people can enter in the kinds of meds they are taking. It has start and end...
Hi Michelle, Well, I was diagnosed in Oct. 02 with Hashi. Went on a low dose of Synthroid until I saw a specialist at the end of Dec. who got me up to a...
Hi Everyone, I'm new to this group, and hope to be of some contribution. I am a 23 year old recent college grad from UC Davis and life long distance runner....
I have been on 100mg pred for the past couple of months (plus Methotrexate for the past month). My advice to you, is to go high protein, low fat. I have...
Sharon, Sorry it took so long to get back with you. I've only recently got my test results back. Here goes: Results from 10/19/05 Thyroglobulin AB: 1188.0 H ...
Well, Thought I'd check in for the second time after these few months have gone by. For my symptoms, I was put on 20 mg. of prednisone for a month together ...
I am a 31 year old woman who was diagnosed with DM in 2000 and has not had a flare in four years. I am currently off medications and I just found out I am two...
I am a 31 year old woman who was diagnosed with DM in 2000 and has not had a flare in four years. I am currently off medications and I just found out I am two...
From what I'v read, if you are in remission, your risks of complication are really not a problem. I unfortunetly can not speak to it from any level of...
Hi Michelle, It sounds like your medication is not working because if it were you would feel normal and not have all the symptoms you have. So either the...
Hi- I mostly lurk on this group but do appreciate info. I was diagnosed with dermatomyositis in September and wrote a little about this a few months ago....
This sounds very familiar to me. I've had so many pains come and go over the past few years, just as you've described. I had a terrible pain in my big toe...
Thank you Gloria, that's interesting. My rheumatologist tells me these transient attacks of sharp pain are "not related to my automimmune disease". she is...
I have DM and i have successfully had three children with out complications. In fact, i had my recent child at home with the help of a midwife. If you have...
Yes I am new!!! Very new to computer groups, etc. too. Diagnosed with DM one year ago very shortly(Mar.05). Things are more or less under control now, thank...
I was diagnosed with cancer within six months after the skin rash became obvious. I guess I'd noticed a rash prior to April '99, but it was bad enough in...
I was diagnosed with DM in August 05. I have had every cancer screening that they could think up. So far...no cancer...but I'll keep my screenings on...
Thanks Ann- Didn't know what the numbers were but makes me feel better although at Sloan Kettering they did a radio-active Pet Cat scan last Feb. and I showed...
Hi All, My name is Gwen and I am new to this site. I have had dermatomyositis since I was 7 years old, now 43. I started a blog on the 360 here at yahoo and...
Hi Gwen, Yes, the same thing happened to me with methotrexate. In my case, I'm afraid it's gone forever. I have bald patches all over my scalp and I also...
