My muscle test result came back Friday confirming my Dermatomyositis. Now I am on the trail to make sure I have the best options for treatment. (I am...
I'm from PA - I had a rheumatologist (however you spell that) here that I went to. Sorry I'm not familiar with any doctors in your area. Let us know how you...
I am searching for a specialist that treats children with DM. I have a friend with a child diagnosed with this disease. Conventional methods are not working...
Hi, I myself was treated by Dr. Pachman as a child and I had a very severe case of JDM. She is located in Chicago at Children's Memorial Hospital, and she is...
Stanford Hospital has one of the top rheumatologist and dermatologist teams, I'd check there. You have to get a referral from your current doctor and also...
Hello! I'm from Michigan, am 52 years old, diagnosed with Dermatomyositis and have had a had time finding the right doctor myself. Someone recommended to me...
Hi, The 2 top doctors are Dr. Lisa Rider at NIH and Dr. Laura Pachman in Chicago. There is also ANn REed at Mayo Clinic. YOu may want to check out the...
My daughter was treated at Lucile Packard Children's Hospital in Palo Alto, California by Dr. Kristi Sandborg. The team is excellent!! I can't say enough good...
Hi- I had a biopsy come back positive for DM yesterday. I have had the 'shawl' rash for about a year. But I have also had other stuff that I do not read about....
Hello! I was diagnosed with DM in June with tissue biopsy. What I've learned from my research is that this disease doesn't follow any set path. The symptoms...
Thanks so much for our response Elaine. Hi. Mostly, I had the muscle pain that seemed like it was from too much exercise too. But at the same time, I had not...
I had the back problem in August...and I think that is what actually 'helped' in getting a diagnosis. I had been bike riding,...a very short distance, but...
Hi to all! My name is Sharon and I just had my Rheumatologist agree with me that I have Scleroderma with Dermatomyositis overlap. Haven't done any testing...
... agree with me that I have ... for Dermatomyositis ... hand/nail/capillary dropout around ... Lymphedema. Would like ... is knowleable about this ... ...
Hi Sharon! My daughter has Dermaytomyositis. She was treated with Prednisone to supress the immune system. I have Hashimoto's Thryoid and I'm curious what...
Hi Sharon, I'm Joanne, I had juvenile DM and live in Australia. I have a friend in New York who has DM so will email her and ask her who she sees and get back...
Hi Sharon, The recommendation to go talk to someone at MDA is a good one. I just started visiting one within the last couple of weeks and although I was...
Hi Ann, I have just started with a new primary care doctor who is probably going to refer me to a new rheumatologist. In the next two weeks will be busy doing...
Hi Patty,Joanne & Elaine, I saw Dr. Kagen today and he said I have Derma. It was nice to hear a knowledgabel doctor say it. Am now trying to decide if I...
I can't help it...I'm a database geek...so I had to add a table as a place where people can enter in the kinds of meds they are taking. It has start and end...
Hi Michelle, Well, I was diagnosed in Oct. 02 with Hashi. Went on a low dose of Synthroid until I saw a specialist at the end of Dec. who got me up to a...
Hi Everyone, I'm new to this group, and hope to be of some contribution. I am a 23 year old recent college grad from UC Davis and life long distance runner....
I have been on 100mg pred for the past couple of months (plus Methotrexate for the past month). My advice to you, is to go high protein, low fat. I have...
Sharon, Sorry it took so long to get back with you. I've only recently got my test results back. Here goes: Results from 10/19/05 Thyroglobulin AB: 1188.0 H ...
Well, Thought I'd check in for the second time after these few months have gone by. For my symptoms, I was put on 20 mg. of prednisone for a month together ...
I am a 31 year old woman who was diagnosed with DM in 2000 and has not had a flare in four years. I am currently off medications and I just found out I am two...
I am a 31 year old woman who was diagnosed with DM in 2000 and has not had a flare in four years. I am currently off medications and I just found out I am two...
From what I'v read, if you are in remission, your risks of complication are really not a problem. I unfortunetly can not speak to it from any level of...
