Gloria I was diagnosed 2+ years ago with dermatomyositis. The doctor prescribed methotrexaate and prednisone. I could not tolerate the methotrexate so the...
Hi Patty, Thanks for your info about CellCept. I am still having second thoughts, but last night I was in the grocery and got down on my knees to get...
Just wanted to post to say hello. I was dx with DM in 1996 when I was 28. I am now 36 1/2 and in remission (this is my second time in remission - no meds and...
Sorry it took so long to respond...There is The Myositis Association. This is a national association and are available on the internet. Just type in The...
Hi everyone, I just wanted to stop in and say hello. I apologize that it's been so long since I've last posted. I haven't had any problems (knock on wood) with...
Hi My brother is a surgeon 33 yrs and a known case of DM for about 7 month,He is in ICU by now & Intubated , I'm looking for someone with skill in treating DM...
Hi, I don't know where you are located, I myself was treated by Dr. Pachman, she is an expert in DM, although she usually treats children. Good luck, Noelia ...
Dr. Pachman is who my son sees. He is 6 now but when he started seeing her he was 3 1/2. He was bad that by the time we seen her he couldn't walk. It's...
Have the attending physician contact Dr. Frederick Miller of the NIH. 301-451-6273 He does research with adult forms of myositis and has been able to be of...
Saeed - I am in remission from DM - I used antibiotic therapy. You might look into it. www.rs.option8.net www.rheumatic.org www.roadback.org I am sorry...
My muscle test result came back Friday confirming my Dermatomyositis. Now I am on the trail to make sure I have the best options for treatment. (I am...
I'm from PA - I had a rheumatologist (however you spell that) here that I went to. Sorry I'm not familiar with any doctors in your area. Let us know how you...
I am searching for a specialist that treats children with DM. I have a friend with a child diagnosed with this disease. Conventional methods are not working...
Hi, I myself was treated by Dr. Pachman as a child and I had a very severe case of JDM. She is located in Chicago at Children's Memorial Hospital, and she is...
Stanford Hospital has one of the top rheumatologist and dermatologist teams, I'd check there. You have to get a referral from your current doctor and also...
Hello! I'm from Michigan, am 52 years old, diagnosed with Dermatomyositis and have had a had time finding the right doctor myself. Someone recommended to me...
Hi, The 2 top doctors are Dr. Lisa Rider at NIH and Dr. Laura Pachman in Chicago. There is also ANn REed at Mayo Clinic. YOu may want to check out the...
My daughter was treated at Lucile Packard Children's Hospital in Palo Alto, California by Dr. Kristi Sandborg. The team is excellent!! I can't say enough good...
Hi- I had a biopsy come back positive for DM yesterday. I have had the 'shawl' rash for about a year. But I have also had other stuff that I do not read about....
Hello! I was diagnosed with DM in June with tissue biopsy. What I've learned from my research is that this disease doesn't follow any set path. The symptoms...
Thanks so much for our response Elaine. Hi. Mostly, I had the muscle pain that seemed like it was from too much exercise too. But at the same time, I had not...
I had the back problem in August...and I think that is what actually 'helped' in getting a diagnosis. I had been bike riding,...a very short distance, but...
Hi to all! My name is Sharon and I just had my Rheumatologist agree with me that I have Scleroderma with Dermatomyositis overlap. Haven't done any testing...
... agree with me that I have ... for Dermatomyositis ... hand/nail/capillary dropout around ... Lymphedema. Would like ... is knowleable about this ... ...
Hi Sharon! My daughter has Dermaytomyositis. She was treated with Prednisone to supress the immune system. I have Hashimoto's Thryoid and I'm curious what...
Hi Sharon, I'm Joanne, I had juvenile DM and live in Australia. I have a friend in New York who has DM so will email her and ask her who she sees and get back...
