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I was browsing the paper the other day when I cam across an article on dermatomyositis. As I was reading it, I realized I have one of the symptoms. I have a...
Hi there "heavily armed", Firstly, though. You need to know that I am not happy being forced to address you that way. When I and others post here, they use...
Hello, thankyou for your reply. i appreaciate the information in it, and I realize it may have been diificult for you as this appears to be a very life...
Hi Kris, Along with what Judith talked about, there are lots of articles and photos on the web...that is pretty much how I diagnosed myself a few years back ...
Hi everyone, wanted to stop in and say hello. Read through a couple of the msgs but don't have time for many more. Glad to see the group is helpful! I wish...
Hello, It's Penny from NC haven't written in awhile, but I have been reading. Last time I wrote I told you Craig was going for IVIG therapy. Back in Dec. Well...
I have DM too, diagnosed four years ago. I had trouble with exhaustion and was diagnosed as having sleep apnea about two years ago. I am sure you will notice...
Hey ho, Penny, Judith Smith from the Centre of the Known Universe here. (LOL). I was diagnosed with Obstructive Sleep Apnea in 2002, and have been using a...
Hello Judy, I will check into the book and thanks for sharing your experience with me. The only thing my husband is complaining about the C-pap is he feels he...
Bright Penney, I am on the lowest setting for my CPAP m/c as well. Perhaps your husband needs to have his m/c set a little higher. He should not "wait"....
Good evening everyone, My name is Mary. I was diagnosed with dermatomyositis about one month ago and thought I was doing good with the medicine I was given,...
Hi Mary, I am Judith and was Dx'd in Nov. 2003. This is not a very active group. I and several other DM sufferers belong to OurMyositis on Yahoo. You may or...
Hi Mary, I think Judith gave you a good head start on some things to investigate...I have DM also and was only treated with Prednisone (starting out on...
AFTER A MUSCLE BIOPSY DONE IN DEC, MY RESULTS CAME BACK POSITIVE FOR DERMATOMYOSITS. FOR SEVERAL YEARS I WAS DIAGNOSED WITH LUPUS AND AFTER REPEATED VISITS TO ...
Hi Judith and Michelle, Thank you for your quick replies. I will definately check out OurMyositis on Yahoo. I had blood work (CPK and Adolasse) done every two...
Hello Mary, Prednisone is a wonderful drug because it decreases the swelling and pain and allows us to live life again. Its side effects are not so wonderful....
Hi Mary, The Prednisone I was one (which of course is a steroid) did cause increased facial hair on me...I used a drug store facial hair remover and it worked ...
Hi Mary, Michelle is correct in stating that it has been suggested by the medical researchers that a family connection is likely for DM. As I am interested in...
Hi, I was diagnosed with Dermatomyositis about three years ago. I also have Lupus. The rheumatologist calls my condition Mixed Connective Tissue Disorder....
Hi everyone, I have been searching for a JDMS site for a while and I came across this one. I'm 23 and have had JDMS since 7, and lately I have developed...
Hi there Noelia, That's a very lovely name! I am Judith who Iived my entire childhood with undiagnosed DM. While my hormones and youth assisted in it's...
Hello Noelia, My name is Sandra and I have had dermatomyositis since I was 12 years old and my doctors were treating me for lupus and cancer but I finally got...
Hi Noelia, I am 28. I had JDM from around age 5-14. I have been in remission since then but am in a wheelchair due to the amount of muscle loss and joint ...
Hi Joanne, How are you? Thank you for your e-mail. It's nice to know that at least I'm not the only one with these problems. I'm sorry about the wheelchair....
Hi, I'm new. My Dad just found out he has this and after finding out all in the last few years he has carcinoid, diabetes, neuropathy, pemphigus and Raynaud's...
Hi Noelia, I think the cataracts are caused by the prednisone yes - unfortunately steroids have a lot of nasty side-effects. And yes it affected my growth as...
Hi again Joanne, Nice to hear from you again. :) Do you know if the wheelchair situation is permanent or can you improve? (Sorry to ask, I don't mean to be...
