Hi all...nice to read about folks suffering with this disease that most people have never heard of! I was diagnosed in Aug.2003. I have been tx with...
HI DD, My husband has been having the IVIG therapy since Dec. He is exhausted,more so now then before, but we think its cause your body is fighting so much,...
Thanks Penny and Mindy, for your info, and for helping me feel that I'm not alone in this battle. What is involved in the antiboitic therapy that I have seen...
- THIS IS A GUIDELINE TO TAKING ANTIBIOTICS. I AM ON MINOCLYCINE 3 TIMES A WEEK. I HAVE VERY LITTLE RASH. NO ONE NOTICES AND I JUST CAME BACK FROM A 45 MINUTE...
Hey guys, I'm down in the Bahamas, and there are a fair number of internet cafes here. I've been monitoring the group, and wonder if anyone's trying the h2o2...
Hey Bruce, Hope you are enjoying yourself. I can't my husband to try the therapy...He went into other sites and is scared to death. Because of the death rate...
My Rheumy is questioning my diagnosis of DM because I do not have rash/skin involvement on my inner elbow crease. He says everyone that has DM has skin...
I THINK YOU HAD BETTER CHANGE YOUR RHEUMY I HAVE NEVER EVER HAD RASH IN MY ELBOW CREASE. i ONLY HAVE HAD IN ON HANDS ,FACE SHINS AND THIGHS. i'D LIKE TO KNOW...
Hi there, Dawna, Judith Smith here from the Centre of the Known Universe. I am politely referred to as a "ballsy broad". I am well-read, intelligent, ...
I was 100% diagnosed and treated for DM...am currently in remission and I never had a rash on the inside of my elbow in fact I haven't heard of it being in...
Thanks so much ladies, for your timely responses. You have just confirmed my
feelings also. Wow, Judith, great letter !! It's actually kind of scary
how...
Greetings from Texas Dawna, Et-Y'alls, My "doctor" wanted to put me on pred and metho. I refused, and still have my hair:-) She wanted me to take High BP meds....
Dawna, I was away all day in Toronto at my GP's to check my B/P etc. Then I treated myself to a terrific, inexpensive Mexican meal and did exotic grocery...
Hi Judith, Plase remember that if you elect to do an antibiotic program that you must make sure that your diet contains sufficient "Pro-Biotics" to replace the...
Hi all... I am in remission from DM - used antibiotic therapy... I just updated my story on www.rs.option8.net under the Stories page... also read through the...
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I was browsing the paper the other day when I cam across an article on dermatomyositis. As I was reading it, I realized I have one of the symptoms. I have a...
Hi there "heavily armed", Firstly, though. You need to know that I am not happy being forced to address you that way. When I and others post here, they use...
Hello, thankyou for your reply. i appreaciate the information in it, and I realize it may have been diificult for you as this appears to be a very life...
Hi Kris, Along with what Judith talked about, there are lots of articles and photos on the web...that is pretty much how I diagnosed myself a few years back ...
Hi everyone, wanted to stop in and say hello. Read through a couple of the msgs but don't have time for many more. Glad to see the group is helpful! I wish...
Hello, It's Penny from NC haven't written in awhile, but I have been reading. Last time I wrote I told you Craig was going for IVIG therapy. Back in Dec. Well...
I have DM too, diagnosed four years ago. I had trouble with exhaustion and was diagnosed as having sleep apnea about two years ago. I am sure you will notice...
Hey ho, Penny, Judith Smith from the Centre of the Known Universe here. (LOL). I was diagnosed with Obstructive Sleep Apnea in 2002, and have been using a...
Hello Judy, I will check into the book and thanks for sharing your experience with me. The only thing my husband is complaining about the C-pap is he feels he...
Bright Penney, I am on the lowest setting for my CPAP m/c as well. Perhaps your husband needs to have his m/c set a little higher. He should not "wait"....
Good evening everyone, My name is Mary. I was diagnosed with dermatomyositis about one month ago and thought I was doing good with the medicine I was given,...
Hi Mary, I am Judith and was Dx'd in Nov. 2003. This is not a very active group. I and several other DM sufferers belong to OurMyositis on Yahoo. You may or...
Hi Mary, I think Judith gave you a good head start on some things to investigate...I have DM also and was only treated with Prednisone (starting out on...
