Hello i am new here. My 15 year old son has just been diagnosed with Polymyositis. I want to learn everything there is to know about this disease and what i...
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Hello, My name is Ellen and I'm new to the group. After some wrong diagnoses and a trip to the emergency room with anaphylaxis from the Plaquenil I was taking...
Hi Judith, You are not alone. I'm also in Virginia and have been "living" with DM (diagnosed) for over four years. I know the feeling of weakness. I know...
I think DMM is still DerMatoMyositis - she must just be abbreviating it differently. I was dx in 1996 you can read my story at www.rheumatic.org under the...
I was dx'd with DM 8/01, 6 mos after open heart surgery for mitral valve replacement. I believe the dm was a secondary infection. I travel the country...
Hi Bruce, Thanks for the info.. so are you on any meds? and u say the disease is completly gone? My husband has had this disease for 24yrs now. He is 33yrs of...
Remember that no question is ever dumb. This is Ellen, who saw the character in Charlottesville. Yes, I've seen DM and DMM listed, although more comonly it's...
Gloria, this is Ellen, in Va. who saw the dermie in Charlottesville. I have the same problems with my cuticles. Ouch! Ouch! Ouch! My scalp is a mess too,...
Thanks for clearing that up. I love Dr. Callen. I give his articles to all my specialists! (I just haven't seen that particular one.) I am so sorry to hear...
HI Folks I am tryin to help a 23 yr old woman in indonesia with birth control options, She has very limited access to doctors but has been told about D...
Bruce - interesting on the hp... many who use AP (antibiotic protocol) also use hydrogen peroxide - it is good as a soak to relieve many symptoms and release...
Hi Penny, the only med I take now is coumadin for the heart valve. I'll be stuck with that forever. Otherwise, I take lots of vitamins and minerals, but no...
Judith Smith here, Liesl. Please be very, very assured that DM suffers DO have muscle involvement! MY EMG and muscle biopsy were both positive for myopathy...
Hi Liesl, I was dx'd 8/01, and took 60 mg prednisone for 10 mos., bringing my cpk's down from 4400 to 155. The muscle biopsy on my left shoulder was the...
Here is a web site to read concerning h2o2: www.sumeria.net/oxy/h2o2.html It talks about peroxide, ozone, hyperbaric, and other hyperoxygenation therapies. and...
Hi Bruce very interesting article on h2o2. I told my husband about hp last night he just laughed, maybe if he reads this article he might think twice. what...
Hi Judith... I know DM definitely has muscle involvement (been there done that!) I could barely lift a blow dryer and get up from sitting in 1996... I may be...
Hi Liesl, The Amish also used the food grade hp, but it is difficult to get. Being a traveller, I called one of the references on the link I provided and...
He Liesl- I looked up ADM after I sent that last message to discover that you, are in fact, correct and I was wrong. There really are two kinds of Dm (as if...
Hi Ellen, Thanks for writing. You're the first person I know who's also had problems with cuticles. Mine are so sore. I just saw my dermatologist Monday and...
Dear Gloria, Thanks so much for writing back, also. I've taken your letter and just inserted answers to your questions. I figured it would be easier to...
Hi there, just wanted to share with both of you that I also had the bad cuticles, gottron's papules, horrible rash (purple face), scabs and itchy scalp...
Hi, What antibiotic therapy did you use? My Harvard-trained doctor said that was a lot of "bunk", but it sounded good to me, so he let me try it for awhile....
My son is going to be 5 years old and has JDM. He is on methotrexate and the long list of meds. I was wondering if that affects him from going to school. I...
Dear Haley, I have a friend who has home schooled both of her children and they're now in high school. I'll talk to her to find out what curriculum she uses....
A response to the healthsystems reference you offered: Everything I had ever heard about hp, and all the varieties of diseases successfully treated were...
Gloria - I did the AP twice - the first time around I used generic minocycline 200mg MWF (taken 100 in the morning and 100 in the eve), also took 3 caps of...
