Hi to all..it's been a while..we're doing well, Roly is once agian being tapered off the medrol. He's down to 8 mg. They also found that the growth hormones...
I have DM, which has been in remission for a couple of years now (thankfully it was caught early) and I'm now down to 2mg prednisone daily. My question is for...
Hi Ichthus, My husband is experiencing the same problem for a year now and all therapy to help his testosterone is not working, he is 33yrs old. We are also...
Hi Everyone My family is new to this and we are looking for answers .My father has been in the hospital for 3 weeks now and has had the steriods ,IV,and 2...
Hi, Now that I've been diagnosed at 56 with DM, I know that I've had it most of my life. The symptoms have been varied over the years. Who knows what sets...
Hello all, I'm 26 now, but have been living with DM for 4 years now. It has been an extremely difficult battle, but I now have a CPK of 977, and have been...
Hello Paul, I had dm as a child and I know that my mom had to limit my salt intake because of the perdizone. Other then that I do not know of anything else....
In response to diet, I have looked into this quite a bit re: my son. We did dairy and wheat free for about 5 months with no real noticeable difference, though...
That is such wonderful news...CONGRATULATIONS!!! Michelle <>< ... From: dermatomyositissupport@yahoogroups.com [mailto:dermatomyositissupport@yahoogroups.com]...
Congratulations! You must be so relieved. What do you attribute the success too? We are all anxious for ourselves or our children to be at that point!...
That is truly fabulous! I am in remission too, but I've never thought to go and have the biopsy done again... what was your course of treatment, etc.? Liesl ...
Well I have been on predisone mainly. I have not had any real problems for a long time. I still have problems with the after effects from the dm but nothing I...
Hello everyone! I have not been on the group for sometime! I wish I would've kept in touch more. Things are going very well with me. No problems for about 2...
... Hi Jackie! It has been a long time since you've said hello in this group. I'm glad you and I have kept in occasional touch via IM. It's great to hear...
Hello all, Just received some great news from my Rheumatologist yesterday, I can now go down to 1mg Prednisone daily through January and then quit it...
Hello all, Just received some great news from my Rheumatologist yesterday, I can now go down to 1mg Prednisone daily through January and then quit it...
Hello all, Just received some great news from my Rheumatologist yesterday, I can now go down to 1mg Prednisone daily through January and then quit it...
Hello all, Just received some great news from my Rheumatologist yesterday, I can now go down to 1mg Prednisone daily through January and then quit it...
Hello all, Just received some great news from my Rheumatologist yesterday, I can now go down to 1mg Prednisone daily through January and then quit it...
I am SOOOO sorry for all the duplicate messages you received today...as I mentioned in the last one, I had a terrible time sending it and my email did not...
Haven't been in contact for a while. Roly is doing well. We are commencing to taper once again to see if we are in remission. We will be doing it slowly in...
I've just Joined and I need to find out more information. I have had a clinic doctor recommend that i get tested for Dermatoymositis and I am hoping that...
have DM and DM double jeopardy, that is I have diabetes mellitus and dermatomyositis! What a terrible combination!! But I am doin okay. I was wondering if any...
Shelly, What is REMICADE? my hubby has had dermatomyositis for 24 yrs...fights fatigue on a daily bases. chronic leg pain, he does have watery eyes at times.He...
Hi, I was having problems with inflamed mucus membranes. I couldn't eat spicy or lightly seasoned foods and even toothpaste brought tears to my eyes. I...
Help! Help! I am trying so hard to be patient but my son's mood swings are wearing me thin. Am I being too permissive becasue I help more or give hime more...
Hi, This is the first time I have ever know a support group exist I have had DM for ever but muscle biopsy was done in 1994. Unfortunately I had breast...
Hello Kristen, I was also three when I was diagnosed so I understand. I think the reason he is having mood swings is either because of meds or he is in pain or...
