Hi I got up today and I felt like I needed to communicate with other people who have had, or are in someway related to people who have dermatomyositis. Let me...
Hi my name is Kim I am 42 year old. I was told in January that I have dermatomyositis and I haven't got all the fact about it. It scare me because before they...
Hi Kim, what drs did you see at Hopkins for dermatomyositis? Does that dept have a web link? Do you have the v sign and the shawl sign too? Kitty [Non-text...
Isn't there someone that can be contacted to stop receiving these disgusting porno ads... Michelle <>< ... From: dermatomyositissupport@yahoogroups.com ...
Reported the lewd, crewd emails to customer support. Hopefully, they will be able to get rid of this creep! If you would like to report: click help and...
FROM THE SOCIAL SECURITY WEB SITE: http://www.ssa.gov/disability/newrules_immunesystemdisorders.htm Plans To Update and Revise Our Rules For Evaluating Immune...
To all those that have posted nasty messages. This is your only warning if I see another posting you will be booted for my group. To everyone that has had to...
Hi to all with dermatomyositis. I didn't know this site was here. Finally a place where I can come and learn, share, and vent about something only all of you...
My 7 year old son has had JDMS for 2 years now and has recently developed Calcinosis. Has any one else had this? What was the treatment, and the side...
My 6 year old was diagnosed with JDMS last August. He has had calcinosis since last fall. The calcium deposits appeared on the inside of the joints on his...
Dear Suser1031, You responded last month to my question on enbrel. Due to my 6 yr old son's abnormal MRI, he is being requested to go on either cyclosporin a...
When I had calcinosis I had to let some of them run their course. The others I had to have surgically removed because of the pain and locations( elbows,...
Has anyone been told that their dermatomyositis is considered lupus? I was told that this week by my Dr. and am having a hard time accepting this because now...
hi jesbobo270 just a few words now, i am a 53 woman (from Spain), I have Dermatomyositis, but also Scleroderma+Raynaud+Calcinosis , A mixed connective tissue...
Yes, I think that I have dermatomyositis and Lupus. This is considered as mixed connective tissue disorder. I was on Imuran (Azathioprine) for about 18...
Maybe your doc means that you have both... they are different disorders (with similarities, and some get misdiagnosed one way or the other, while others have...
My husband tried the antibiotic therapy (Mynocycline) for a month. He felt so nausea's and diarrhea. He said no way can he go through this. So he stopped the...
My best friend showed me this site that she had just found. We are always hooking up with the people from this site. There are members from all over and its...
Hi to all..it's been a while..we're doing well, Roly is once agian being tapered off the medrol. He's down to 8 mg. They also found that the growth hormones...
I have DM, which has been in remission for a couple of years now (thankfully it was caught early) and I'm now down to 2mg prednisone daily. My question is for...
Hi Ichthus, My husband is experiencing the same problem for a year now and all therapy to help his testosterone is not working, he is 33yrs old. We are also...
Hi Everyone My family is new to this and we are looking for answers .My father has been in the hospital for 3 weeks now and has had the steriods ,IV,and 2...
Hi, Now that I've been diagnosed at 56 with DM, I know that I've had it most of my life. The symptoms have been varied over the years. Who knows what sets...
Hello all, I'm 26 now, but have been living with DM for 4 years now. It has been an extremely difficult battle, but I now have a CPK of 977, and have been...
Hello Paul, I had dm as a child and I know that my mom had to limit my salt intake because of the perdizone. Other then that I do not know of anything else....
In response to diet, I have looked into this quite a bit re: my son. We did dairy and wheat free for about 5 months with no real noticeable difference, though...
