Hi everyone. I am a 44 gal diagnoses with dermatomyositis last year after 8 or so olng years and 15 doctors. I am on MTX and plaquenal. Beleive it or not, I...
It is a scary thing. I am told the cancer rate is higher in people over 50. I am surprised you are not on prednisone. I know it is a pretty nasty drug, but...
Hi Stacy; How do you cope day to day. My husband has had the disease for 23yrs. And if he could he would sleep 24/7. He is always tried and never can sleep...
Thanks Stacy. What have you read about Thanks Stacy. THere is a lot of research on DM I have found, none of it very promising. I do use protopic on my rash,...
Hello all. I am trying to collect a survey on adults with DM. I am a physician with this hideous disease, just new to this wonderful group. I have done a lot...
Well, I'm one who has had cancer. In fact, I had another scare last week. My rheumatologist said that one good thing if it turned out to be a recurrence was...
Greetings I was 26 when I was diagnosed with DM in June 2000. I had been suffering in pain for about five months but it wasn't until things turned sooo bad...
SEE MY RESPONSES IN CAPS BELOW... LIESL DUTRO, 34, DX WITH DM IN 9/96, CURRENTLY IN REMISSION. * Hello all. ... physician ... have ... * ... SYMPTOMS - RASH...
My husband was diagnoised at the age of 9 and is 33 yrs old now with this terrible disease. The only thing he fights day to day is chronic leg pain and...
I'm sorry to hear your husband isn't doing very well... sometimes with minocycline you feel worse before you feel better - this is actually a sign that the...
It's been a while since I've written but I was wondering who will be attending the myositis convention in Houston this year? It's going to be October 10 - 13....
Hi to all: We are planning a Myositis Support Group at Miami Children's Hospital on July 26 1:00 - 3:00 PM. If you know of anyone who has any form of Myositis...
Hi I just signed on to this group because my nephew's wife was just diagnosed with this and I'm trying help them. They are looking for a Dr. to treat her in...
"Enbrel" and most other meds that are developed or used for RA are also used on DM. I used antibiotic therapy which is also successfullly used for RA... and I...
Due to unforseen conditions we are postponing the Myositis Group meeting in Miami scheduled for July 26. We will advise of the new date once we have it. We...
Hi Marisa, My name is Pam Ferrill from Ocean Springs, MS As of now I am planning on attending the convention. My daughter Chaney is 4 and has Juvenile...
Hi I got up today and I felt like I needed to communicate with other people who have had, or are in someway related to people who have dermatomyositis. Let me...
Hi my name is Kim I am 42 year old. I was told in January that I have dermatomyositis and I haven't got all the fact about it. It scare me because before they...
Hi Kim, what drs did you see at Hopkins for dermatomyositis? Does that dept have a web link? Do you have the v sign and the shawl sign too? Kitty [Non-text...
Isn't there someone that can be contacted to stop receiving these disgusting porno ads... Michelle <>< ... From: dermatomyositissupport@yahoogroups.com ...
Reported the lewd, crewd emails to customer support. Hopefully, they will be able to get rid of this creep! If you would like to report: click help and...
FROM THE SOCIAL SECURITY WEB SITE: http://www.ssa.gov/disability/newrules_immunesystemdisorders.htm Plans To Update and Revise Our Rules For Evaluating Immune...
To all those that have posted nasty messages. This is your only warning if I see another posting you will be booted for my group. To everyone that has had to...
Hi to all with dermatomyositis. I didn't know this site was here. Finally a place where I can come and learn, share, and vent about something only all of you...
My 7 year old son has had JDMS for 2 years now and has recently developed Calcinosis. Has any one else had this? What was the treatment, and the side...
My 6 year old was diagnosed with JDMS last August. He has had calcinosis since last fall. The calcium deposits appeared on the inside of the joints on his...
