Dear Ralph, Donna and Hayley - Thanks so much for taking the time to share your thoughts. It really helped with the isolation we're feeling at the moment. I'm...
I have a little boy Kolton who is 15 months. He handles it very well except the mood swings that Austin has from the steroids. He will become real mean to...
Deb, Our son with JDMS has an older brother (2 1/2 years older). Overall he has been very supportive of his brother. We recognized early that he may feel a...
Has any one out there had any experience with the arthritis drug emberol(sp?). My son is having some high liver enzymes and if they stay up we have to look at...
Put emberol into your browser and see what comes up. ... From: Donna Anderson & Chris Andresen To: dermatomyositissupport@yahoogroups.com Sent: Monday, April...
Maybe you mean Enbrel... check that on www.rxlist.com or just put in your search... I used Antibiotic Therapy have no DM symptoms at all... I have no ...
Hi, I've just been on antibiotic therapy for about two months. So far I haven't noticed any less pain, although I'm glad that I'm not taking any more toxic...
Question ??? you had antiboitic therapy,,,,,did this cause an upset stomache? and how long did it take before you notice any changes? My husband will be on it...
oops also forgot to mention Craig is on 15mg of prednisone for 24yrs now also..Methadone 90mg aday......hope you have answers for us...thanks again Penny penny...
Hi Gloria - I used A.T. on 2 occasions... the first time I was flaring with muscle involvement, high cpk & skin rash so bad it was like a burn on my chest. I...
Penny - Yes initially I did have stomach upset... cramps, diareah... but it subsided. I do think your husband's dose is high... "normal" protocol is to take...
Gloria when were you diagnoised with DM? We never seem to find anyone that has JDM and has grown into an adult with still having flare ups and chronic fatique...
Hi, I'm hoping that you all can help me. My mom was diagnosed 2 and a half years ago. She initially got well with the prednisone and methatrexate. She had a...
Minocycline I think. BEWARE it has been reported that it induces Lupus. ... From: llamatt0168 To: dermatomyositissupport@yahoogroups.com Sent: Monday, April...
also beware it has been reported to give you heart problems down the road also. gsdcaltuxsia <gsdcaltuxsia@...> wrote:Minocycline I think. BEWARE it has...
Penny - I've never heard that... can you point me in the direction of that info? Antibiotics damaging/causing heart problems? Thanks. Liesl DM ... the road...
Hi everyone. I am a 44 gal diagnoses with dermatomyositis last year after 8 or so olng years and 15 doctors. I am on MTX and plaquenal. Beleive it or not, I...
It is a scary thing. I am told the cancer rate is higher in people over 50. I am surprised you are not on prednisone. I know it is a pretty nasty drug, but...
Hi Stacy; How do you cope day to day. My husband has had the disease for 23yrs. And if he could he would sleep 24/7. He is always tried and never can sleep...
Thanks Stacy. What have you read about Thanks Stacy. THere is a lot of research on DM I have found, none of it very promising. I do use protopic on my rash,...
Hello all. I am trying to collect a survey on adults with DM. I am a physician with this hideous disease, just new to this wonderful group. I have done a lot...
Well, I'm one who has had cancer. In fact, I had another scare last week. My rheumatologist said that one good thing if it turned out to be a recurrence was...
Greetings I was 26 when I was diagnosed with DM in June 2000. I had been suffering in pain for about five months but it wasn't until things turned sooo bad...
SEE MY RESPONSES IN CAPS BELOW... LIESL DUTRO, 34, DX WITH DM IN 9/96, CURRENTLY IN REMISSION. * Hello all. ... physician ... have ... * ... SYMPTOMS - RASH...
My husband was diagnoised at the age of 9 and is 33 yrs old now with this terrible disease. The only thing he fights day to day is chronic leg pain and...
I'm sorry to hear your husband isn't doing very well... sometimes with minocycline you feel worse before you feel better - this is actually a sign that the...
