My husband just started antibiotic therapy Friday....has anyone of you gone threw this??? I want to know how long it took affect on recovering to a better life...
Dr. Rider contacted me this past week and I would like to pass on her suggestion to all.... The Myositis Association is currently holding a membership drive. ...
Hello everyone, I was diagnosed with DM in late October of 2002. Fortunately, my sister-in-law, works for a Rhmy so my disease had not progressed very far ...
Caffeine May Hinder Methotrexate Efficacy By Amy Norton NEW YORK (Reuters Health) Feb 26 - The caffeine in less than two cups of coffee a day might be enough...
Here is a web site for multiple sclerosis, believed to be an autoimmune disease, and the success some individuals are having with alterations to their diet....
Dr. Rider contacted me this past week and I would like to pass on her suggestion to all.... The Myositis Association is currently holding a membership drive. ...
Spoke w/Harriet Bollard today. She has a grandchild with JDMS and is very involved with the Myositis Association. She says they are in need of having the...
Hi there, wow this is quite scary finally doing this, but I wanted to make contact with others and join a support type group. My name is Joanne, I'm 27 and...
My son just turned 4 years old and has JDM. He was diagnosed is Sept. 2002 but we believe he has had for awhile. I don't know how to get ahold of any of the...
Here are some helpful sites: http://www.mdausa.org/ http://www.nih.gov/niams http://www.myositis.org These sites have a wealth of information. Good luck. ...
Hi Deeni: Spoke with your dad here in Miami today. We are planning to meet sometime next week to discuss the possibility of starting up a JDMS support group...
Hello, I am a 48 year old male and I was diagonised in mid January 03with DM. It started with a rash in late Sept o2 and by January I had no energy, no...
I am not taking methotrexate, the Dr. was afraid of side effects due to lung problems I had. I am taking prednisone 30mg/day, plaquenil, ultracet, bextra,...
With the support of the Myositis Assocation, Roly is being offered a chance to set up a local South Florida JDMS Support Group. If you know of a parent or...
Wow for just being diagnosed you are on the ultimate treatment plan. How advanced is the lung situation? My Jo-1 Antibody at first was 22, but has since gone...
My son Austin who just turned 4 started with a rash on his knucklesand the it spread to his elbows,and knees back in Dec. 01. His pediatrician didn't know what...
I had developed pneumonia prior to being admitted to the hospital, I did not know I had it, it just hurt to breathr. My lungs have cleared up, but I do still...
I was Dx Jan. 2002 Had the same syptoms as you, rash, no strength, joint
pain and fingers so sore I could hardly pick up anything.. Lab work fairly
normal....
Did they ever do a Jo-1 Antibody Screening? If so what was your reading? ... From: rhook47 To: dermatomyositissupport@yahoogroups.com Sent: Tuesday, March 25,...
I can totally empathize...........my Internal Med. doc. just added Fosamax to my daily medication regime........I feel like I could open my own pharmacy. I...
Hello, IVIG stands for Intravenous immunoglobulin. It is a supposed to be very effective in treatment of DM. I have only had one so far. Usually the treatments...
