Hi Penny: I also asked my son's physician about antibiotic therapy. His response was disheartening. He says antibiotic therapy has assisted people with...
Hi Marisa! I'm also an adult that has recently been diagnosed with DM. I was reading your note to Penny and I saw your suggestion about speaking withj Dr....
thank you Marisa. We well bein seeing Craig's reum......friday I 'will mention it to her along with the reseach information I have printed out about the...
Just wanted you all to know my story... I have used AT or the Antibiotic Protocol (AP) twice with amazing results. My story starts in 1996. After the birth...
Hello,My name is Margie I have had Dermatomyositis sense May 2002. They have tried everything from Prenisone to Metotrexate,at high doses and so far nothing ...
Hi, my name is Tina and my daughter who is 11 has been fighting this disease since aug. of 2000. I applied for disablity for her and had no problem getting it....
Dx'd with DM Mar. 2002. Tried Immuran but had a severe reaction. Cannot take Prednisone bec. of medullary sponge kidneys. Currently on Methotrexate 12.5mg...
Hello My name is Harvey Thompson and I'm writing from the interior of BC canada . My wife Diana and I have a beautiful 26 month old daughter who has just...
Hello Mr Thompson: My husband Craig was diagnosed with dermatomyositis at the age of 9. He is 33 now. As for your daughter having trouble swallowing this...
Harvey, First of all I want you to know that you are not by any means alone. There are quite a few of us who have a child with dermatomyositis. My Daughter...
Hi I don't know if my husband already responded, but in Aug. our then 5 yr old was diagnosed with jdms. He began with a rash late June and seemed fine...
Mr. Thompson My daughter Jessica was diagnosed with JDM at the same age as Ariana. I sympathize with what you are going through right now. The questions...
I haven't been on in a while. In fact I have only posted a couple of times, however, I am now in need of some advice or encouraging words or something. My...
Hi Nichole, Sorry to hear that Jona is having a flare. In our experience and based on what I have heard, there is little predicting how severe a flare will be...
Does anyone know what tests they run to figure out if you have myositis or dermatomyositis? I have been going through a ton of immune testing, and have had a...
Dear Kitty, My son had a skin biopsy, blood tests (cpk and adolase main ones for dermatomyositis) and an mri. Combined with the clinical picture a positive...
My son is on Prelone and Methotrexate and has had JDMS 3 years this spring.He's almost 10 now. We sailed right thru our first year.He actually got a lot...
Hi I am looking to talk to some people who have Dm who are in their late 20's or early 30's. I had a flare of Dm very bad and I am currently so weak and tired...
Hi! I am 34 and was diagnosed last april. I am sorry u have this, too. It has been a rough year for me as well. I just had a significant relapse and was on...
Thanks for writing back! I am a female aged 28 and I was diagnosed with DM on my 26th birthday while I was hospitalizeed. unfortunately took a very bad turn...
Hi, I was diagnosed in my 50's, but I'm certain now that I had my first flare at 17. Back then, I'm sure a country doctor had never heard of dermatomyositis....
I was diagnosed with DM in Feb. 2002 at the age of 59. For two years prior I had chronic back pain, pain down right side of R. thigh, lack of energy,...
Hi! I am in my mid 30's and have recently been diagnosed. After the birth of my second child, I began to have a rash on my index fingers. (Just thought it...
This is a cross post. I hope that's ok. My DD Savannah was diagnosed with JDMS in November of 2001. She's currently taking prednisone, and receives monthly...
I believe insomnia is a side-effect of the medication. I have suffered from insomnia despite the constant fatigue since being diagnosed with DM in April 2002....
Smallpiecer... I was 28 when diagnosed, I am now 34... I was dx with Dermatomyositis a few months following the birth (June) of my second son in 1996. I was...
