MY DAUGHTER WAS DIAGNOSED ONE YEAR AGO, SHE IS 13 YEARS OLD NOW. HER DR. STARTED HER ON 75 MILLIGRAMS OF PREDNISONE EACH DAY, ALSO ON METHOTREXATE, AND FOLIC...
My daughter has juvenile dermatomyositis also. She is 3 years old and was diagnosed in Jan. 2002. We have also been told that the odds were very good that...
... odds ... this ... have ... order ... Thank you Kim for your reply, I surely hope that your daughter goes into remission completly. My daughter has been in...
Hello, I have an 11.5YO daughter, Julia, who was diagnosed with JDMS 4.5 years ago at the age of 7. We went through a lot of the same things you described -...
I am so glad your daughter is doing well. I was diagnosed as an adult (34 years old) 6 months ago, and have had what appears to be the usual course of...
My daughter is 8.5 years old. She was diagnosed with juvenile dermatomyositis in late May of this year. We are currently on Orapred 13 ml, Priolosec, and...
... expect ... 3rd ... Our 5 yr old son was diagnosed with JDMS in August. He just began kindergarden. He is only on prednisone at this point and seems to be...
If you haven't seen it, I have a web site that documents our experience with JDMS. Check it out if you get a chance. http://www.ralphb.net/JDMS/ Ralph...
I have DM and have used AP - I am completely well... as in I go running, I look totally fine, feel totally fine... here is my story: LEE, dermatomyositis I am...
HELLO RALPH, I HAVE BEEN TO JULIAS DIARY, I STARTED READING IT WHEN MY DAUGHTER WAS FIRST DIAGNOSED, IT HAS BEEN A HELP. JULIA IS A BEAUTIFUL GIRL AND I AM...
-HI BARBARA, MY DAUGHTER ALSO HAS DERMATOMYOSITIS, SHE WAS ALSO EXAUSTED WHEN FIRST DIAGNOSED A YEAR AGO, WE HAD HER GO ON HOME BOUND FROM OCTOBER TO THE END...
Thursday Sept 26th at 7 PM Pacific Standard Time We will have a live chat w/ Dr. Pappas of Greece who invented the Pap Imi machine Pulsed elect magnetic pain...
I have had DM since I was a child. I am dating a guy who may want children. I have not had an offical flare with my DM since I was 10 yrs old. I am now 34. I...
Hi Tammy, 24 years of remission is a pretty good track record! You have no doubt be challenged by numerous exposures to infections, virii, immunizations, and...
It's been a while since I sent out a note to all. Roly & Jackie celebrated their 15th birthday last week on October 3rd. I had a hispanic "Quinces"(15's)...
I am curious if anyone has found any natural treatments to be of help in treating dermatomyositis. My 5 year old has JDMS and is on prednisone. A local...
Hi Tammy - My experience was that after my second child, I had a rubella vaccine and then 4 weeks later had DM symptoms. I used prednisone, and then a couple...
I am going to be going in soon to have a biopsy done and will be moving soon. So I will be away from the group for awhile. Would ralph or marisa be available? ...
Hi Tammy, I hope the biopsy goes well and doesn't cause you too much discomfort. I can be an "acting moderator" if you like. Contact me via email and we can...
... wrote: Hi Tammy: Hope everything goes well with your biopsy. I am happy to see you have someone special in your life. :-) If there is anything I can do,...
Best of luck with your biopsy. Donna & Chris ... From: shewolf_68 To: dermatomyositissupport@yahoogroups.com Sent: Sunday, October 13, 2002 11:25 PM Subject:...
BTW, our Julia was one of the subjects of this study! Ralph ====== Efficacy of Tacrolimus Ointment for the Treatment of Cutaneous Manifestations of Juvenile...
Hi everyone! Oh my has this group grown since I've last had the time to check in. My life is so crazy right now with a full time job and full time school, I...
I think I have a basis for a possible cure if ya'll are interested email me at LadyDreamer2006@.... I have a few questions sort of like a summery. Please...
Have been getting some interesting e-mails from ladydreamer2006. She has posed some interesting ideas that have connected in the same ways to my son's disease....
I just wanted to let everyone know that I am going in tomorrow to have a muscle biopsy done so I will not be online for awhile. I will let you all know the...
Announcing a new PAP-IMI Clinical Study We are excited to announce the establishment of a 3-year clinical study using the PAP-IMI. This study will focus on 1....
Sorry for the error in previous post, wrong subject ! jere is the tight one New California Health Bill Passed September 24, 2002, is a very important date in...
Today research is directed toward the electrical nature of life. Scientists have established beyond any doubt that all living cells are electrical in nature....
