Has anyone out there been pregnant while having DM? I am thinking about having another child (I have one child, age 4). My husband and I had just started...
Dear Jill: By your message I see you are in Miami. Me too. If I can be of any help locally, let me know. My son sees the Pediatric Rheumatologist at Miami...
Hi Marisa, We are actually in Michigan--We will be going to the University of Michigan Hospital. It would have been nice to have a local person nearby.....
My 13 year old daughter was diagnosed with dermatomyositis on March 14, 2002. She has been out of the hospital for a week now. I was told that she is the...
I was diagnosed with DM in Oct 2001. I have been reading many of your messages and can identify with many of the symptoms described. However, one condition...
... (and ... Hi Connie...I just read your message from Feb. I, too, had symptoms (red and swollen eyes, red cheeks, extreme fatigue, etc. etc.) but all tests...
... I was diagnosed in Aug, 2001. I had a great deal of hair loss. Prednisone can cause hair loss. Fortunately, although it is still shedding, it is shedding...
Thanks to vsjsas3 for the info about DM and hair loss. I began with 50 mg prednisone last Oct and am now at 15 and still experiencing considerable hair...
Unfortunately, hair loss is a common side effect of Prednisone. When you finally realize your hair is getting thinner, what you are seeing are the results of...
I wanted to let folks in the Massachusetts area know that U. Mass. will soon have a wonderful pediatric rheumatologist on their staff in Worcester. (I hope...
I, too, lost hair before I started the Prednisone while in the grip of DM and for a while when I was on 60 mg of Pred. Now I'm down to 10 mg! Phew! My...
Sorry to hear about your hairloss but, it does grow back. I lost about half my hair while on pred. slowly it did start to grow back. It's funny I was loosing...
My 2 year old daughter is now on Solumedrol (350mg) and home with a PICC line in her arm. She has been on weekly treatment of the Solumedrol along with her...
Hello I wanted to tell everyone that I too know how horrifying it is to lose your hair from this disease. At the age of 26 I was totally bald and I had really...
I found out the hard way that sunscreen (SPF 45) does not prevent me from burning. I went to my daughters track meet and mt face and arms got burned. Now I'm...
I never let Roly out in the sun without sufficient cover from the sun (hat, long sleeve shirt, long pants, etc, and sunscreen). His doctor's suggestion is to...
Roly, Jackie & I went to the Boggy Creek Gang Camp Rheumatic Family Retreat this past weekend. We had a great time of course, and had the chance to meet four...
-Hi my name is Dawn and my daughter is 14 and was diagnoised in 12/00 we have been receiving solumedrol per IV since Oct 01 we started out at 1.5grams and now...
-Hi my name is Dawn and my daughter is 14 and was diagnoised in 12/00 we have been receiving solumedrol per IV since Oct 01 we started out at 1.5grams and now...
Dawn, WOW!!! I am sorry that you and your daughter have had such a tough go of things. Was she really bad when diagnosed or did she just get worse after...
Hi there.I havent recieved any mail for ages and I'm hoping i did'nt edit my membership by mistake.I am pretty computer illiterate.Hope to get some mail soon! ...
Nichole, It was nice to here from you again I didnt want to burdden you with all thats going on in my life so I breifly went over a few things My daughter has...
-HI sorry it took so long for me to reply to this but I have been so busy lately my daughter has had much difficulty swallowing she had to have a G-tube...
Word of warning about cytoxin..If you or your child are being condered for this drug, have your dcotor contact Dr Rider (for children) or Dr. Miller (for...
I've learned a lot by reading the messages from all of you. I have a question about IVIG...intravenous immunoglobulin...have any of you had this procedure?...
I'm been on IVIG for the past 2 years. In fact, I'm waiting for the home health nurse who will start my treatment in my home. I receive 100 gms every 4 weeks...
Thanks mjbw37 for the reply to my IVIG inquiry. My doctor in Atlanta is in the process of setting up the infusion in my home here in Tampa with a home health...
Marisa, My daughter just started cytoxin 750mg bi-weekly and IVIG on the other week there are 3 specialist involved in her treatment and they did contact the...
Like most people, I've had some trouble with credit in the past. For a long time I haven't been able to find a company that would give me a credit card at all....
