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dermatomyositissupport · Dermatomyositis Support - Anyone who has/ knows anyone with Dermatomyositis
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Group Information

  • Members: 506
  • Category: Support
  • Founded: Jun 15, 1999
  • Language: English
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Activity within 7 days:

14 New Messages

Description

Keep your chin up and we are here to help you. Dermatomyositis/Polymyositis (basically the same disease) are autoimmune diseases. They are very rare muscle diseases. This club is for anyone who has or knows of someone who has Dermatomyositis/Polymyositis. Welcome to all who come.(Warning NO SPAMMING OR HARASSING. To Chat with group members Click Here

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Re: Anyone with sore nodules
Hi Renee Iseem to have the same nodules that you are speeking of.  I did have them in my upper inner  arms but thoese are gone.  After that I would get
Posted - Sun Nov 8, 2009 3:58 am
 Patricia Sharp
sharps_academy
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Re: Anyone with sore nodules
Not that it matters, but I realized I wrote that I would get the nodules over the deltoid and meant the upper pecs (in case anyone was paying attention!).
Posted - Sun Nov 8, 2009 3:16 am
 rlantne
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Re: Symptoms
yea that sounds like me. I got DM at age 7, im 51 now. yea long time. I still get weak at times and I still have trouble swollowing at times. Do you grow
Posted - Sat Nov 7, 2009 5:32 pm
 Tom
ttfroger
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Symptoms
Has anyone ever felt very tired, have upper body weakness, food getting stuck, a scratchy throat and hot inner lips of the mouth? My sed rate was 40 and went
Posted - Sat Nov 7, 2009 5:06 pm
 d_girl46
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nodules, normal sed rates
Hi Laurie, Yes, I too have normal sed rates, etc. despite a continual array of surprising (for someone with a diagnosis of dm sine myositis) symptoms. Keep us
Posted - Sat Nov 7, 2009 12:20 pm
 Claire Kane
oak1day
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 317 178 255 165 204 157 138 102 110 116 14
2008 113 64 202 214 326 376 296 238 202 211 152 294
2007 27 142 232 45 28 2 21 145 112 47 30 77
2006 3 5 50 59 43 56 53 90 48 49 52 64
2005 1 6 12 11 9 3 8
2004 32 30 16 24 6 6 1 9 2 3 15 3
2003 23 36 33 20 20 28 5 7 2 15 3 4
2002 112 59 22 46 19 58 3 9 14 12 15 15
2001 28 37 31 67 27 35 9 43 60 52 20 28
2000 41 27 19 8 23 34 34 52 30 15 25 19
1999 2 28 45 11 7 7

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