cysticfibrosissupport : Messages : 953-982 of 1698

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953	nope I don't ... From: Rachael To: cysticfibrosissupport@yahoogroups.com Sent: Tuesday, October 25, 2005 8:26 PM Subject: Re: [Cystic Fibrosis Support] My...	Amellia koko84404	Nov 4, 2005 4:48 am
954	Oh ok, well its a group for teens with CF. You might want to think about joining, its heaps awesome. So yeah maybe search for it in yahoo groups. :D Its...	Rachael vamp_chick182	Nov 4, 2005 5:53 am
955	Does anyone here use or child uses a feeding tube (G-Tube)?...	lindsayadams80	Nov 4, 2005 4:44 pm
956	my neice, gabriella, is five. she has had a feeding tube for about a year now, and she gets overnight feedings. in the beginning, she was so little, she...	cava5000@... tcavallaro	Nov 5, 2005 1:19 am
957	Where is your niece located? (state/city) - I'm just curios because I'm trying to get in touch with parents of children with feeding tubes and teens with them....	lindsayadams80	Nov 8, 2005 4:17 pm
958	This was just posted on CF4Christians.... it is from James' brother, John. James passed away this morning. Hi Everyone This is a very difficult posting. I...	semp915@... blazermommy2002	Nov 16, 2005 11:25 pm
959	Well, I have good news --- finally!!! Valerie is doing much better. The Zyvox (that antibiotic that costs $100 per pill) seems to be working well for her....	semp915@... blazermommy2002	Nov 17, 2005 1:38 am
960	I have a question for this group. I am 64 and compared to most people that age in excellent health. But my whole life I have seemed to have a lot more...	rcryberg	Nov 17, 2005 3:14 am
961	Dear all, My daughter was diagnosed with new born screening test and since then she is using enzymes. Her sweat test was on the borderline. We are living in NY...	bugsbunny_d	Nov 17, 2005 3:54 am
962	Hi, There are known cases of people who recieve a diagnosis of CF even though they are in the later stages of life. I heard of one case where a man passed away...	Rachael vamp_chick182	Nov 17, 2005 4:10 am
963	Hi Dee, I am sorry about your daughters diagnosis, it can be incredibly shocking. I am 18 and live in Australia, so no where near Long Island. :) There is no...	Rachael vamp_chick182	Nov 17, 2005 4:19 am
964	Hi, Dee. My husband was diagnosed when he was a baby and he's now 35. Rachael <vamp666babe@...> wrote: Hi Dee, I am sorry about your daughters...	Mary Juneau mjuneau2	Nov 17, 2005 5:09 am
965	You'd have to start with a sweat test, if it's positive, but highly unlikely, then you could do genetic testing. Sweat tests are 100% accurate where as gene...	melissa percin mdpercin	Nov 17, 2005 1:29 pm
966	Rachael, Do you have a link or something about this man your referring to? I am assuming they did genetic testing during the autopsy, did they release the info...	melissa percin mdpercin	Nov 17, 2005 1:39 pm
967	HI EVERYONE THIS IS DAVID I WANTED TO KNOW IF THERE IS ANYONE HERE THAT HAS NEXTEL IF YOU DO AND YOU ARE INTERESTED IN JOINING A CF NEXTEL TALK GROUP THAT...	fightcf	Nov 17, 2005 5:48 pm
968	Sue, Thank you for taking an interest in my thesis project. I am sorry that I have not responded to you until now. You would be eligible for my study if,...	Mary Delany mar_md	Nov 18, 2005 4:00 am
969	Dee, Your story reminded me of my own sister-in-law. All her family is in Italy, and when her child was diagnosed with CF at 7 months, it was very difficult...	tcavallaro	Nov 18, 2005 4:01 am
970	If it turns out you don't have CF, if I were you, I might consider whether it might be sarcoidosis. You can learn more about it and a great new treatment for...	Jcwat101@... joycewtrhs	Nov 18, 2005 3:06 pm
971	Mary, Prior to having Valerie, my husband and I had already had 2 children and did not plan to have more. Valerie was a surprise for us, actually. If you ...	semp915@... blazermommy2002	Nov 18, 2005 4:00 pm
972	Thank you everyone... receiving e-mailes and group messages were great.. Thank you for your time... Happy and healthy day to all... Dee, 11 months old...	bugsbunny_d	Nov 19, 2005 5:45 am
973	Hi, Last summer I was in my country for 3 months, and we had a great time of course. Nowadays I found new friends with the kids, and we are spending time...	bugsbunny_d	Nov 19, 2005 6:02 am
974	Hi my name is Rebecca. I was diagnosed with CF when I was 3 weeks old. I made a website about my life with CF - www.freewebs.com/cflife. on there it has some...	Rebecca Elias glycos4life	Nov 19, 2005 4:06 pm
975	Melissa, No it was a friend who told me about it, i do not think it was on the internet but rather word of mouth becuse she is much older than me and doesn't...	Rachael H vamp_chick182	Nov 20, 2005 12:47 am
976	I am going to print out all of the emails sent to James' family and put them together in a scrapbook and send to his family. I think it will be a nice way...	semp915@... blazermommy2002	Nov 20, 2005 1:19 am
977	Just a quick addition... Several folks have written, wanting to know if it would be okay to send me a copy of their private message they had sent. Yes, I...	semp915@... blazermommy2002	Nov 20, 2005 4:03 am
978	Hello. My name is Stephanie & I am 34yrs old and was diagnosed 10 months ago. I think you should get a sweat test asap because like you I had problems w/ colds...	Stephanie Woods sawoods4u2nv	Nov 22, 2005 2:04 am
979	Just a note to let you guys all know that the scrapbook was mailed yesterday, USPS Priority Mail with delivery expected for Friday. Even though it was my...	semp915@... blazermommy2002	Nov 23, 2005 11:30 pm
980	Hi Lisa/Everyone I just wanted you to know that I listed the Jonathan Candles I got stuck with on ebay, along with the ribbon tarts. (Thanks for the permission...	Robin Archie robin1331	Nov 25, 2005 5:11 am
981	I think most of you know my story. I am 34 and was diagnosed 10 months ago. I have 35% lung function. Also my doctor has me on bactrim 4 times a day for some...	stephanie sawoods4u2nv	Nov 28, 2005 1:52 am
982	Stephanie, Pain in your side usually means your appendix or pancrease....sometimes, your lungs...pneumonia and if your head cold has been draining, it could...	April & Jeff Duhacek apieed1717	Nov 28, 2005 1:54 am

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