I need some help. I have an ex husband that has quit helping support my son. He has CF. The attorney has asked me to compile a list of everything I spend...
Hmm, insurance does not pay for the fuel it costs to make those trips to the doctor or hospital trips. Insurance does not pay for the extra cost of food for a...
Keep in mind any additional medicines.....add up all the copays for Dr's visits and meds....and deductibles if you have any. An exact amount would be difficult...
My son has cf. He is 11 now. We found out about the cf when he was 3. By now you would think that could cope better when yet another life has been taken by cf....
You need to talk to somebody. While grief is normal and dealing with CF as a Parent is NOT easy, if you are constantly thinking about it, it can and will ...
Hi, Although I don’t have CF in my family, I got interested in it because I thought I might have a niece at risk for it at one point. Also, since I have...
Hi Sue, sorry I'm so late replying. Thank you for the message to welcome me to the group. Would love to hear from you soon, & will browse through your website ...
Hi I have CF and I am 15 years old. Yes when we get any sort of respritory infection does make CF worse for me. I am prone to colds also how did you find a way...
My son has cf. He is 11 now. We found out about the cf when he was 3. By now you would think that could cope better when yet another life has been taken by cf....
Hello Sarah, Did you think about prenatal testing at all when you first found out you were pregnant? I was just curious. When I found out I was pregnant with...
Hi Cloyce Thanx for the email Yes just ove 4 weeks left, can't wait, am feeling very uncomfortable now, but not long to go We were offered, prenatal testing,...
I watched an informational DVD last night on interferon, something that our bodies produce which is a part of our immune response, it was about some new ...
For information that worked wonders for me (after failure of many other approaches, including supplements that said they boosted interferon) see Issue 7, ...
I should add that the alpha CF doses would be lower for children (see box), but I did better with the maximum or acutally a little more, before I used the ...
yes just a little however. I know my counsins do anyways. you are an amazing writer ! ... From: Jcwat101@... To: cysticfibrosissupport@yahoogroups.com ...
Yes it does. Especially when they are so little. I hope they get better soon! ... From: Kevin & Carrie Lux To: cysticfibrosissupport@yahoogroups.com Sent:...
Hello my name is Kim and my boyfriend has CF, he is 29 years old and still in pretty good shape. He has been going through some really rough times right now...
Enclosed is a little more assistance for our CF community _____ NATIONWIDE HURRICANE RELIEF The devastation of Hurricane Katrina has far reaching effects....
My 4 yr old son had his sweat test done on Tuesday, and I found out yesterday now ( it's 3:55 am here ) that he has cf. I don't know a whole lot about it. I...
My 4 yr old son had his sweat test done on Tuesday, and I found out yesterday now ( it's 3:55 am here ) that he has cf. I don't know a whole lot about it. I...
Kym, I'm finding it hard to believe that the Dr's office that broke the news to you left you in such a state of wondering. I can't imagine the confusion and...
Hi kim, so sorry to hear about your son's diagnosis. It is hard when you first find out about things such as cf. My daughter was diagnosed at 14 months...
Kym, I have never responded to a support group email before so I hope I'm doing this right. We learned about CF kind of in the same way that you have. When...
Kym, Your daughter should be tested also wether she has lung problems or not.(not to scare you) But I was healthy until I was 33yrs old and got sick and was in...
... No offense but did they actually say you had "Adult CF" if they did it just amazes me. Robin A, IL God didn't promise days without pain, laughter without...
hey kym, its amazing that you left the doctors office without them telling you the "whole deal" with CF. not a brochure, not anything? you would think they...
Thant is soooo true. Thank You so much. Robin Archie <robin1331@...> wrote:>they tested me add I have adult cf No offense but did they actually say you...
Hello, I am a 23 year old with CF, and am currently in working on my masters in genetic counseling (a career choice deeply rooted in my experiences with CF) I...
Mary, Valerie was diagnosed 12/17/91 and her father and I are still together. We would be willing to help if we can. Let me know what you need me to do. ...
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