Rosemary (and anyone else interested) The school my children goes to is getting together supplies that one of the local pastors and several members of the...
I know we are all worried about the people who are victims of Hurricane Katrina, but I got this email from a friend of mine who knows I am an animal love r....
Before I get into the update, please know that I am amazed at the number of emails that I have received from wonderful people letting me know just how much...
I have a few more questions for you guys: First I would like to know if have to go in the hospital for a tune up about evry three months is normal or no. Also...
Steph, Valerie goes in the hospital normally every 4-6 weeks and stays for 2-3 weeks, depending on how she is doing. However, she hasn't been in the hospital...
Steph, I guess how you define normal would need to be outlined. I'm at 34%
but do remember 38% well. For me that was my big jump between short of
breath...
I would like to ask you a few more questions if you think they are too personal you don't have to answer them. First, over what amount of time did your lung...
Dear Friends: TOBI Foundation Announces HERT Program to Support Cystic Fibrosis Patients Impacted by Hurricane Katrina HURRICANE EMERGENCY RELIEF for TOBI...
Hi! my name is Rebecca, I'm 17 years old and I was born with CF. I also have 2 younger sisters with CF. I've had some possitive results with complementary...
hey rebecca, my name is rachael and i am 18 wcf. i am on a teens list, its called teenswithcf and its also a yahoo group. its a really nice community of teens...
I finally got the guestbook up! :) because its a free web site I had to wait 7 days after making the account to have a guestbook. feel free to sign it and take...
Hi everyone!~ Just wanted to let you know that we are in Birmingham. Valerie had clinic appointment Thursday afternoon. Doctor Makris wanted to put her in...
good luck, i am praying for her! On 18 Sep 2005 20:21:06 -0000, cysticfibrosissupport@yahoogroups.com < ... -- "All are lunatics, but he who can analyze his...
Dear Friends, Do you know a person with CF who is a Hero in his/her own way? Do you know a person with CF who is role model to others, who takes amazing care...
Hello, I am new to this group....I am on a couple of others but decided to join a new group as well. I recognize one person here so far, hello Sue :-) A little...
Hey Cloyce! So glad you decided to join this group, too!!!! You will meet so many more people who have things in common with us. It is a really good ...
Hi, The information in this article has helped a lot of people with a wide variety of health challenges and I thought I would share it with you all. People ...
Hi! I just joined this group and some other ones last week, I'm feeling very welcome. :) Sounds like a normal 10 year old you have there :) there has been many...
Hello Rebecca, I visited your site and loved it. Found it to be very inspirational :-) Wow, 10 children.....3 w/cf. I have 5 siblings and thought that was a...
Sue, I'm so glad that Valerie is doing as well as she is.....even though she still has to go in for a tune-up. There are still differences there as we know...
Cloyce, My parents were surprised out of their wits when they found out I had CF. no one that I know of on either side of my parents families have CF! I'm glad...
Hi Rebecca, I can relate to the dirt bike racing.....my brother too raced...never broke a bone, but did have his head ran over. Thankfully, the helmet took the...
hey rebecca, heaps of people i know who have CF have nasal polyps. like seriously more than 50%... so yeah you arent alone. :) ~rach. Message: 7 ... -- "I mix...
Cloyce, Now this email makes sense. Thanks! Yes, everyone is doing so much better. We are actually planning to go home later today. I am going to try to...
Hi Rebecca, As for surgery for polyps....what exactly are you having done? I have been told many different stories from persons who have had the surgery....and...
Cloyce, The last 2 surgeries I've had have been with a digital something or another, basically the surgeon see stuff on a screen and goes from there or...
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