Hello Everyone! I wanted to remind you of the items we have on our web site, _www.curecf4valerie.com_ (http://www.curecf4valerie.com) , that will help...
It is supposed to be a joke, but after reading the following and thinking about it, I wonder if this isn't how people sometimes jump to the conclusions they...
ELIZABETH NASH FOUNDATION Scholarship Program The Elizabeth Nash Foundation will award scholarships to assist persons with Cystic Fibrosis (CF) to pursue...
“Total Lung Care: Feel the Difference T.L.C. Makes” A Virtual Patient Education Day Live Web Cast! September 27, 2005 Presented by the Cystic Fibrosis...
I would never have believed how many emails I have received since posting about Olivia's passing this morning. I am so overwhelmed by the love and support...
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
CFRI’s Mothers’ Day Tea An Art Contest for the CF Community - Send us your “Tea Art!” We invite You to submit your artwork for our 2006 Mothers’ Day...
Rosemary (and anyone else interested) The school my children goes to is getting together supplies that one of the local pastors and several members of the...
I know we are all worried about the people who are victims of Hurricane Katrina, but I got this email from a friend of mine who knows I am an animal love r....
Before I get into the update, please know that I am amazed at the number of emails that I have received from wonderful people letting me know just how much...
I have a few more questions for you guys: First I would like to know if have to go in the hospital for a tune up about evry three months is normal or no. Also...
Steph, Valerie goes in the hospital normally every 4-6 weeks and stays for 2-3 weeks, depending on how she is doing. However, she hasn't been in the hospital...
Steph, I guess how you define normal would need to be outlined. I'm at 34%
but do remember 38% well. For me that was my big jump between short of
breath...
I would like to ask you a few more questions if you think they are too personal you don't have to answer them. First, over what amount of time did your lung...
Dear Friends: TOBI Foundation Announces HERT Program to Support Cystic Fibrosis Patients Impacted by Hurricane Katrina HURRICANE EMERGENCY RELIEF for TOBI...
Hi! my name is Rebecca, I'm 17 years old and I was born with CF. I also have 2 younger sisters with CF. I've had some possitive results with complementary...
hey rebecca, my name is rachael and i am 18 wcf. i am on a teens list, its called teenswithcf and its also a yahoo group. its a really nice community of teens...
I finally got the guestbook up! :) because its a free web site I had to wait 7 days after making the account to have a guestbook. feel free to sign it and take...
Hi everyone!~ Just wanted to let you know that we are in Birmingham. Valerie had clinic appointment Thursday afternoon. Doctor Makris wanted to put her in...
good luck, i am praying for her! On 18 Sep 2005 20:21:06 -0000, cysticfibrosissupport@yahoogroups.com < ... -- "All are lunatics, but he who can analyze his...
Dear Friends, Do you know a person with CF who is a Hero in his/her own way? Do you know a person with CF who is role model to others, who takes amazing care...
Hello, I am new to this group....I am on a couple of others but decided to join a new group as well. I recognize one person here so far, hello Sue :-) A little...
Hey Cloyce! So glad you decided to join this group, too!!!! You will meet so many more people who have things in common with us. It is a really good ...
Hi, The information in this article has helped a lot of people with a wide variety of health challenges and I thought I would share it with you all. People ...
Hi! I just joined this group and some other ones last week, I'm feeling very welcome. :) Sounds like a normal 10 year old you have there :) there has been many...
Hello Rebecca, I visited your site and loved it. Found it to be very inspirational :-) Wow, 10 children.....3 w/cf. I have 5 siblings and thought that was a...