I have couple of questions for anyone who know please: 1st: They have suggest a lung transplant is this a good idea or not? 2nd: I have been in the hospital...
I can only really answer two of your questions, but I am sure someone else will be able to answer the others. As far as being in the hospital.....yes, it is...
Thank you so much Heatha0009@... wrote:I can only really answer two of your questions, but I am sure someone else will be able to answer the others. As...
hello to you all , my name is jenny , I 'm married to Shaun and we have three lovely boys. Alex has CF , he is 11yrs old, Luke is 9yrs old, Conor is 5yrs old,...
Jenny, Welcome! I really enjoyed reading your email. Thank you for taking the time to tell us a little about your family. It sounds like your Alex is a...
My daughter was 5 months old when she was diagnosed with CF. At the time I was working as a teacher and felt it would be in her best interest that I stay home...
Message Only 30 Days left to CFRI Educational Conference. Make your reservations and expand your "Horizons!" Dear Friends, In connection with our 18th Annual...
All, Over the past few years, I've been having the hardest time sleeping (largely due to the number of drugs I'm on and their side effets, I'm sure). I'm...
Hi Lisa, My partner has cf and he has used Ambien with fairly good results. No real side effects that he has mentioned, but I know we have talked about that...
Greetings all: We are finalizing our numbers for both the Annual Educational Conference August 5-7, 2005 and CFRI Teens & Adults Day Retreat, August 7-12, 2005...
Good Evening Everyone. I hope everyone is doing well, and is happy and healthy. I have a prayer request. Some of you may remember me writing about Valerie's...
Hello! Get a quick glance of Healthcare News and Resources here http://www.allinonedirectory.info/HealthUpdate/ Take care, Kate "Love is just like life, it's...
HI EVERYONE THIS IS DAVID JUST WANTED TO LET YOU KNOW THAT THIS SUPPORT GROUP NOW HAS A NEXTEL DIRECT CONNECT NUMBER FOR SUPPORT OR FOR SOMEONE TO TALK TO YES...
Hello Everyone! I wanted to remind you of the items we have on our web site, _www.curecf4valerie.com_ (http://www.curecf4valerie.com) , that will help...
It is supposed to be a joke, but after reading the following and thinking about it, I wonder if this isn't how people sometimes jump to the conclusions they...
ELIZABETH NASH FOUNDATION Scholarship Program The Elizabeth Nash Foundation will award scholarships to assist persons with Cystic Fibrosis (CF) to pursue...
“Total Lung Care: Feel the Difference T.L.C. Makes” A Virtual Patient Education Day Live Web Cast! September 27, 2005 Presented by the Cystic Fibrosis...
I would never have believed how many emails I have received since posting about Olivia's passing this morning. I am so overwhelmed by the love and support...
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
CFRI’s Mothers’ Day Tea An Art Contest for the CF Community - Send us your “Tea Art!” We invite You to submit your artwork for our 2006 Mothers’ Day...
Rosemary (and anyone else interested) The school my children goes to is getting together supplies that one of the local pastors and several members of the...
I know we are all worried about the people who are victims of Hurricane Katrina, but I got this email from a friend of mine who knows I am an animal love r....
Before I get into the update, please know that I am amazed at the number of emails that I have received from wonderful people letting me know just how much...
I have a few more questions for you guys: First I would like to know if have to go in the hospital for a tune up about evry three months is normal or no. Also...
Steph, Valerie goes in the hospital normally every 4-6 weeks and stays for 2-3 weeks, depending on how she is doing. However, she hasn't been in the hospital...
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