Hello! There are so many groups for CF now. I recognize some of the names I see here....Grandma Bev, Ron HELLO! I am writing to give the link for my website...
Hello Everyone, I just wanted to announce the launch of "Jonathan's Candle". It is being released today by White Lily Candles. All profit on the candle will...
Hi everyone, I'm the owner of a new Yahoo! group celebrating people who have various illnesses and conditions, their lives and their achievements. My new group...
Hello everyon. I am Samie. My brother is 17 and has Cystic Fibrosis. He is currently in the hospital, and I am getting scared this is his final time. Can...
My Daughter who is 3 was in the hospital last year with pneumonia and came out fine. She was in VERY bad shape when we bought her in and her pulsox was ...
Hi Samie. My son has had pneumonia many, many times. He is only 11 but we have known about the cf since he was 3. At one point his lung function was only 54%,...
My brother almost past out during the PFTs...we don't know what the current lung functions are. All we know is that last time, when he was as well as he could...
Everyone you are e-mailing understands your situation completely. Just pray and good things will happen. [Non-text portions of this message have been removed]...
I'm so glad to hear your son is doing that well! I have had ups and downs too, but there always seems to be a light at the end of the tunnel. Last year in...
Hello. My own background is in researching a number of chronic illnesses, including those that involve problems with chronic infections, or have particularly ...
Well Tiffany I think any exercise and getting that heart rate up really
helps with airway clearance. There is something about jumping jacks,aerobics
and...
I have benefited myself and know many who have benefited from reducing food and chemical allergies and sensitivities, which I believe to be quite common in a...
Ok, is this how this is done. If it is, I am wanting to know what I can do to help my sister. Her 8mo. old son has been diagnosed w/ CF and I am fairly...
You are not"wasting ones time", what you are doing is a postive thing which is called positive attitude. That is one element which you must pass on towards ...
Hello. I appreciate your heart in wanting to help your sister. That is great. We have a two year old son with CF. My wife and I are Christians and the Bible...
My daughter was diagnosed when she was 4 months. I remember all too well how overwhelming we felt when first trying to gain advantage over the disease. The ...
Hi my name is Debbie and im grandmother to a 3yr. old with cf.Im looking forward to getting to know all of you.Im from alberta,is there anyone on this group...
Thank you all for your thoughts and compassion. Baby was released from the hospital Wednesday and so now I really have something to talk about. What is up with...
Depends-- When my daughter was a baby our finances were in shambles. Going to college and $150,000 in medical bills from the hospitals. Our CF clinic worked...
Well, supposedly you can qualify if you've got CF but I've been having one heck of a time with it. I'm a 37 year old who was diagnosed in 1968 and have been...
We are looking for a home for an orphan from eastern Europe a girl, 5 years old and so cute! She draws beautiful pictures. Can you help us find anyone that...
I will pray for things to work themselves out for you. See his mom can't work because he has a rather extensive treatment schedual that lasts from sun up to...
Hi! New to the group and looking for individuals who want to talk about CF. I have a 2 1/2 year old daughter who is being admitted to the Children's hospital...
How about a group where the disabled and able body people can talk and chat about almost anything...Lets chat..If you have able body friends feel free to have...
Hello Everyone, Here is an update on Jon. He took a surprise jump in his MELD score. He went from 18-21. What does this mean??? He needs to be listed...
Hello All- First, I apologize to any of you who may be reading this request for the second or third time (if you subscribe to other yahoo cfgroups). I am...
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