Hi, I am a 22 yr old w/CF. I am currently getting my Masters is genetic counseling. For those of you who aren't familiar with genetic counseling, it is a...
Hi there. I have been a member for a while but thought instead of simply "lurking", I would actually post something. On one of our first dates, Robert told me...
Hi My boy (5yrs) had a sweat tested yesterday and they couldn't get enough sweat and they tested him twice that day. Did anyone else have that happen to them?...
I don't think there is any specific amount of time that you have to wait between tests. I would say if they try it a second time and it does not work, that...
I am an 18 yofwcf, and I wasn't diagnosed until I was 17, last year. They couldn't get enough sweat for the sweat test 5 different times for me, and I was ...
Hi, I was wondering. My four year old son has allergies and gets hives, has a cough often, sometimes to the point of throwing up. I know he is allergic to dust...
When I was 3 I was diagnosed with celiac Disease and I followed the diet for about 6 months but it didn't' help and CF was the next thing I was tested for. I...
Thank you Caryn, Kelly Caryn Silliman <ilive4candytoo@...> wrote: When I was 3 I was diagnosed with celiac Disease and I followed the diet for about 6...
I was On a group Like this a few years back and was wondering if there was a nice lady from Florida in this Group I forgot her name but she was a grandma and...
Hi Nicole, Your talking about GrandMOMBev, she is on cfparents group. Robin A, IL ... Do you Yahoo!? The all-new My Yahoo! – Get yours free! [Non-text...
Grandmom Bev is also on Cystic-L. What is Cystic-L? It's an Email Community! It's a Website! #################################################### CYSTIC-L...
This group is not going on its 3rd year,and have been active over the time the group been around..So if your disabled and looking for support and understand...
Hello! There are so many groups for CF now. I recognize some of the names I see here....Grandma Bev, Ron HELLO! I am writing to give the link for my website...
Hello Everyone, I just wanted to announce the launch of "Jonathan's Candle". It is being released today by White Lily Candles. All profit on the candle will...
Hi everyone, I'm the owner of a new Yahoo! group celebrating people who have various illnesses and conditions, their lives and their achievements. My new group...
Hello everyon. I am Samie. My brother is 17 and has Cystic Fibrosis. He is currently in the hospital, and I am getting scared this is his final time. Can...
My Daughter who is 3 was in the hospital last year with pneumonia and came out fine. She was in VERY bad shape when we bought her in and her pulsox was ...
Hi Samie. My son has had pneumonia many, many times. He is only 11 but we have known about the cf since he was 3. At one point his lung function was only 54%,...
My brother almost past out during the PFTs...we don't know what the current lung functions are. All we know is that last time, when he was as well as he could...
Everyone you are e-mailing understands your situation completely. Just pray and good things will happen. [Non-text portions of this message have been removed]...
I'm so glad to hear your son is doing that well! I have had ups and downs too, but there always seems to be a light at the end of the tunnel. Last year in...
Hello. My own background is in researching a number of chronic illnesses, including those that involve problems with chronic infections, or have particularly ...
Well Tiffany I think any exercise and getting that heart rate up really
helps with airway clearance. There is something about jumping jacks,aerobics
and...
I have benefited myself and know many who have benefited from reducing food and chemical allergies and sensitivities, which I believe to be quite common in a...
Ok, is this how this is done. If it is, I am wanting to know what I can do to help my sister. Her 8mo. old son has been diagnosed w/ CF and I am fairly...
You are not"wasting ones time", what you are doing is a postive thing which is called positive attitude. That is one element which you must pass on towards ...
Hello. I appreciate your heart in wanting to help your sister. That is great. We have a two year old son with CF. My wife and I are Christians and the Bible...
My daughter was diagnosed when she was 4 months. I remember all too well how overwhelming we felt when first trying to gain advantage over the disease. The ...
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