Welcome Kim. My name is Jo and I'm from Australia. I live on the West Coast of Australia (Sydney is on the East coast to give you some idea of what part of...
Hi group, I'm a military wife and Mom of 4 boys. One of my twins, who is 9 1/2 year old has been sickly for the last several years. For the past 7 years I've...
I have a 7 yr old with CF of course he has alot of respiratory problems but there is alot of differnt situations with CF so it is very possible he does. I am...
Dear Kathy, I read your story and couldn't help but cry. I am so very sorry for your loss. I can't even begin to imagine the pain your feeling. I am a Aunt...
Hello everyone, I wanted to update and let you know we have our website up and running.....www.childoflife.com My nephew Joseph, who just turned three has CF....
Your kind words meant so much to me. I am having a hard time adjusting to my loss. I will do everything in my power to help with Cystic Fibrosis research and...
I know you wrote this 2 days ago but I was not sick with respitory until I was 25 yrs old I got colds and they lasted long but I only needed enzymes and...
I just went to your website and guestbook and it has left me crying and with such a heavy heart for you and your family. Courtney sounds like a wonderful girl...
Thanks Vera. I'm finding out so much on these groups. I was pretty ignorant about CF when it all started. Now I know that it's possible to have NO respiratory...
kbgirl, Thanyou for visiting the sites. Courtney was a very special girl here on earth and you are right I am sure she lights the heavens with her smile. No,...
I was so glad to hear from you again, I couldn't help thinking about you last night and when I woke up this morning. Maybe because I understand the bond you...
Dear Kathy, I am very sad to hear about your little girl Courtney's death. It seems so very, very wrong when children die and even worse when you know that...
Kerry, Have you had your son tested yet? You really need a blood test as sweat tests are inconclusive. God America needs to review it's health policy. In...
Hi, I am a 22 yr old w/CF. I am currently getting my Masters is genetic counseling. For those of you who aren't familiar with genetic counseling, it is a...
Hi there. I have been a member for a while but thought instead of simply "lurking", I would actually post something. On one of our first dates, Robert told me...
Hi My boy (5yrs) had a sweat tested yesterday and they couldn't get enough sweat and they tested him twice that day. Did anyone else have that happen to them?...
I don't think there is any specific amount of time that you have to wait between tests. I would say if they try it a second time and it does not work, that...
I am an 18 yofwcf, and I wasn't diagnosed until I was 17, last year. They couldn't get enough sweat for the sweat test 5 different times for me, and I was ...
Hi, I was wondering. My four year old son has allergies and gets hives, has a cough often, sometimes to the point of throwing up. I know he is allergic to dust...
When I was 3 I was diagnosed with celiac Disease and I followed the diet for about 6 months but it didn't' help and CF was the next thing I was tested for. I...
Thank you Caryn, Kelly Caryn Silliman <ilive4candytoo@...> wrote: When I was 3 I was diagnosed with celiac Disease and I followed the diet for about 6...
I was On a group Like this a few years back and was wondering if there was a nice lady from Florida in this Group I forgot her name but she was a grandma and...
Hi Nicole, Your talking about GrandMOMBev, she is on cfparents group. Robin A, IL ... Do you Yahoo!? The all-new My Yahoo! – Get yours free! [Non-text...
Grandmom Bev is also on Cystic-L. What is Cystic-L? It's an Email Community! It's a Website! #################################################### CYSTIC-L...
This group is not going on its 3rd year,and have been active over the time the group been around..So if your disabled and looking for support and understand...
Hello! There are so many groups for CF now. I recognize some of the names I see here....Grandma Bev, Ron HELLO! I am writing to give the link for my website...
Hello Everyone, I just wanted to announce the launch of "Jonathan's Candle". It is being released today by White Lily Candles. All profit on the candle will...
Hi everyone, I'm the owner of a new Yahoo! group celebrating people who have various illnesses and conditions, their lives and their achievements. My new group...
Hello everyon. I am Samie. My brother is 17 and has Cystic Fibrosis. He is currently in the hospital, and I am getting scared this is his final time. Can...
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