My name Vera I am 33 with CF recently my local clinic closed so I am trying to find the right for me group to get support. Your site is one of many I have...
Hi, my name is Jeremey and I just joined the group (obviously). I am 20 yrs old and I have CF and I am waiting on my double lung transplant at Vanderbilt...
hey Jeremey, good luck on the transplant. I am new to the group as well. My name is Kim, and I am 24, and I have CF as well as asthma and diabetes. But I feel...
Well Hey Kim! I have diabetes too just so ya know but I dont think I have to bad a problem with it. Glad to here you are doing well, better than I am at the...
Hi! My name is Nicole Wall and I am a nursing student at Douglas College in British Columbia (Canada). I am really interested in learning about the experience...
Hey Nicole, it's nice to see people who are interested in learning more about CF. I would be interested in helping you. You can either post more on this ...
Hello. My CF husband and I (non CF) live in southern Maryland. We have been together over 10 years and I try to keep on top of the disease. He has CF,...
I don't know the exact percentage, but we have been told by the doctor that the majority of males are sterile, and the the majority of woman usually have ...
Thanks to everyone for responding. I'm in the second semester of nursing and the goal of my Health class is to try to understand (as much as possible) what it...
This is basically correct. The percentage of CF males that are "sterile" is very high - about 90 - 99%, depending on where you get your info from. I write...
Hello Everyone, I felt compelled to tell each and everyone of you that suffer from CF and other complications of the illness and the caregivers of these people...
This group has been around for almost two years and have been active since the beginning with around 1400 members.. The unique thing about the group is you...
No spamming but I get the distinct impression sometimes that "depression" and anger - some would identify these feelings as "negative" which, I feel, is a...
Hello. I feel compelled to explain... We adopted our 4 year old daughter. I struggled when I was typing the message earlier. I couldn't decide if I wanted to...
Hello. My CF husband and I (non CF) live in southern Maryland. We have been together over 10 years and I try to keep on top of the disease. He has CF,...
Hi Tammy, Thank you so much for giving me such an insight as to what it is like to live with a family member who must deal with a chronic health challenge such...
I think I want my own "Tammy". Good on you for standing up to the medical staff for Robert. I find, when I'm in hospital, I have to do this myself and that it...
Welcome Kim. My name is Jo and I'm from Australia. I live on the West Coast of Australia (Sydney is on the East coast to give you some idea of what part of...
Hi group, I'm a military wife and Mom of 4 boys. One of my twins, who is 9 1/2 year old has been sickly for the last several years. For the past 7 years I've...
I have a 7 yr old with CF of course he has alot of respiratory problems but there is alot of differnt situations with CF so it is very possible he does. I am...
Dear Kathy, I read your story and couldn't help but cry. I am so very sorry for your loss. I can't even begin to imagine the pain your feeling. I am a Aunt...
Hello everyone, I wanted to update and let you know we have our website up and running.....www.childoflife.com My nephew Joseph, who just turned three has CF....
Your kind words meant so much to me. I am having a hard time adjusting to my loss. I will do everything in my power to help with Cystic Fibrosis research and...
I know you wrote this 2 days ago but I was not sick with respitory until I was 25 yrs old I got colds and they lasted long but I only needed enzymes and...
I just went to your website and guestbook and it has left me crying and with such a heavy heart for you and your family. Courtney sounds like a wonderful girl...
Thanks Vera. I'm finding out so much on these groups. I was pretty ignorant about CF when it all started. Now I know that it's possible to have NO respiratory...
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