I just join this group..I don't have cf but spina bifida..A birth defect of the spine..I also have a group for the adults on here that has cf..its called...
Hello, cysticfibrosissupport member. This company really helped me out. I almost lost my home. I am self employed and I was able to refinance. The best...
My name is Renee and I have a two and half year old nephew who has CF. He is my world. (this has been hard on our whole family) I wanted to post this message...
Hello eveyone! First let me say we have gotten great response from people who have seen the CHILD OF LIFE video .......... "Joseph's story". I have sent out...
Thank you so much for what you are doing! My 18 month old son has CF. I would love to have a copy of the video for our family to see, and in the future for...
We would love a DVD, our Daughter is over 2 and was diagnosed last year. We would be happy to pay the 5 and make a donation to your CF charity. Let us know. ...
Hi. I am a new member. My 35-year-old husband has CF and his sister died from CF when she was 7. My husband is going pretty good but also developed diabetes...
I would appreciate comments from anybody with knowledge about adult onset (or adult diagnosed) CF. I'm a 37 year old male. For a full year now I've had...
I think what I would do first is just ask my general physician to do a simple sweat test. Given the symptoms I don't see why he wouldn't order one. Or try a...
If your sweat test does come back positive... you are a miracle and just gave this mother hope that her son will lead a normal, full life!!! Thank you, you...
Thanks for the comment. Actually the testing is something about which I was hoping someone could give some specific advice with regard to people my age. What ...
Tianni, If nothing else comes from this invistigation, at least I am much more informed about CF than before. I have a pretty good science background so I've...
Tianni, If nothing else comes from this invistigation, at least I am much more informed about CF than before. I have a pretty good science background so I've...
Your courage amazes me... you are very positive about everything, as am I... I learned when we were diagnosed that if you sit on it and become depressed about...
I know they can do a blood test too. Sorry I don't know the specifics of it, but that is how they diagnosed my son at 1 month when he was too little for a ...
I am 18 and was just diagnosed with CF after having lung, sinus and digestive problems my entire life. My doctors always ruled it out because I have been ...
Hello everyone. My name is Chris Guenther, and I am a UC Santa Cruz student currently enrolled in a market research class. For my class project, I decided to...
Wow. I have not heard of a person being 18 when they found out they had cf. My daughter was diagnosed 3 days after birth she is now 5 years old. she has more...
I have a four-year old niece with CF. She is constantly battling colds/infections, and the family has been wondering lately if a change of environment would be...
Living in Australia - and not the sub-tropical/tropical rainforest areas - I wouldn't know about CFs and cold air. Household mould is extremely toxic and is...
In the study that I read, it urged people to NOT use any curcumin at this time. They said that they think the high levels that it would take to make any ...
Here is a link I found describing curcumin and effects. Cystic fibrosis symptoms vanquished by curcumin supplement Researchers at Yale University have...
My name Vera I am 33 with CF recently my local clinic closed so I am trying to find the right for me group to get support. Your site is one of many I have...
Hi, my name is Jeremey and I just joined the group (obviously). I am 20 yrs old and I have CF and I am waiting on my double lung transplant at Vanderbilt...
hey Jeremey, good luck on the transplant. I am new to the group as well. My name is Kim, and I am 24, and I have CF as well as asthma and diabetes. But I feel...
Well Hey Kim! I have diabetes too just so ya know but I dont think I have to bad a problem with it. Glad to here you are doing well, better than I am at the...
Hi! My name is Nicole Wall and I am a nursing student at Douglas College in British Columbia (Canada). I am really interested in learning about the experience...
Hey Nicole, it's nice to see people who are interested in learning more about CF. I would be interested in helping you. You can either post more on this ...
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