Hi to all, I noticed that the last post is May 25..........is everyone on vacation or is it my dumb computer, once again. I haven't posted, I actually went to...
Hello there. I am a mom with a cf child. I think it is always better to be cautious than not. You did the right thing. I am the same way. I always take...
I was really far into debt. Like Most I was in Financial dispair. I could not seem to get ahead no matter how hard I tried. Untill I found this place. ...
hello members this is david writing you all to let you know that im going to be walking in the diabetes walk this year if you are able to sponcer me i would...
I just join this group..I don't have cf but spina bifida..A birth defect of the spine..I also have a group for the adults on here that has cf..its called...
Hello, cysticfibrosissupport member. This company really helped me out. I almost lost my home. I am self employed and I was able to refinance. The best...
My name is Renee and I have a two and half year old nephew who has CF. He is my world. (this has been hard on our whole family) I wanted to post this message...
Hello eveyone! First let me say we have gotten great response from people who have seen the CHILD OF LIFE video .......... "Joseph's story". I have sent out...
Thank you so much for what you are doing! My 18 month old son has CF. I would love to have a copy of the video for our family to see, and in the future for...
We would love a DVD, our Daughter is over 2 and was diagnosed last year. We would be happy to pay the 5 and make a donation to your CF charity. Let us know. ...
Hi. I am a new member. My 35-year-old husband has CF and his sister died from CF when she was 7. My husband is going pretty good but also developed diabetes...
I would appreciate comments from anybody with knowledge about adult onset (or adult diagnosed) CF. I'm a 37 year old male. For a full year now I've had...
I think what I would do first is just ask my general physician to do a simple sweat test. Given the symptoms I don't see why he wouldn't order one. Or try a...
If your sweat test does come back positive... you are a miracle and just gave this mother hope that her son will lead a normal, full life!!! Thank you, you...
Thanks for the comment. Actually the testing is something about which I was hoping someone could give some specific advice with regard to people my age. What ...
Tianni, If nothing else comes from this invistigation, at least I am much more informed about CF than before. I have a pretty good science background so I've...
Tianni, If nothing else comes from this invistigation, at least I am much more informed about CF than before. I have a pretty good science background so I've...
Your courage amazes me... you are very positive about everything, as am I... I learned when we were diagnosed that if you sit on it and become depressed about...
I know they can do a blood test too. Sorry I don't know the specifics of it, but that is how they diagnosed my son at 1 month when he was too little for a ...
I am 18 and was just diagnosed with CF after having lung, sinus and digestive problems my entire life. My doctors always ruled it out because I have been ...
Hello everyone. My name is Chris Guenther, and I am a UC Santa Cruz student currently enrolled in a market research class. For my class project, I decided to...
Wow. I have not heard of a person being 18 when they found out they had cf. My daughter was diagnosed 3 days after birth she is now 5 years old. she has more...
I have a four-year old niece with CF. She is constantly battling colds/infections, and the family has been wondering lately if a change of environment would be...
Living in Australia - and not the sub-tropical/tropical rainforest areas - I wouldn't know about CFs and cold air. Household mould is extremely toxic and is...
In the study that I read, it urged people to NOT use any curcumin at this time. They said that they think the high levels that it would take to make any ...
Here is a link I found describing curcumin and effects. Cystic fibrosis symptoms vanquished by curcumin supplement Researchers at Yale University have...
My name Vera I am 33 with CF recently my local clinic closed so I am trying to find the right for me group to get support. Your site is one of many I have...
Hi, my name is Jeremey and I just joined the group (obviously). I am 20 yrs old and I have CF and I am waiting on my double lung transplant at Vanderbilt...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
