Mannatech is a multilevel marketing arrangement widely considered to be selling virtually worthless sugars (called "glyconutritionals" or "nutraceuticals") for...
I'm sorry to hear that you had such a bad experience with your PICC line Mary. To have people (are you sure you had radiologists working on you? It's just that...
Ron, I know your heart is in the right place....you honestly do care about the seriousness of CFS and hate it when someone tries to screw with someone so...
It's been awhile since my last post and I have to say wow. Alot of new people have posted! Welcome to all and hope that you find everything you need on this...
A thought on this: pwcf either have malabsorption issues or have only slight malabsorption issues. Most supplements are fat-soluable or chelated for easier...
Tiffany, You might want to check out a nonprofit ministry set up my "Mannatechers" called MannaRelief.....http://www.mannarelief.org This is not a product...
The malabsorption issues is exactly why glyconutrients are so important for CF.... I thought about briefly explaining what glyconutrients are in my own ...
Ok. I read the article but it really skips around giving a good definition. There were also a few things in there I didn't like. There are key words here...
Hello to everyone, I am new to this group and looking for support with CF. My beautiful 9 day old granddaughter has been diagnosed with CF two days ago, the...
Tiffany, YES! Exactly, there IS a breakdown in communication intracellularly. If it is a fact, that the human body needs all 8 mono-carbs...and we only are...
Hi Linda, First of all, you have just found a HUGE support system by finding this group. I found it about a month ago and am loving all of the info and...
Hey Linda, I think that being diagnosed ealry is actually better. This way she will not have to try to catch up with her weight later on. my niece was finally...
Zack, Thank you so much for speaking up. It's great when there is more than one voice with the same message! Andrews has a fantastic website....thanks heaps...
Linda, I am a 26yo with cf. I know all of the information you are recieving is overwhelming, but let me reassure in the long term. Keep in mind that cf is...
Donna, Heather and Gail, Thanks so much! I feel better just knowing I have someone to talk to...........I feel encouraged although to be honest, I still have ...
Due to website revisions made last week, the links in my previous message on this topic no longer work. I believe the links below do work. Mannatech is a...
I remember when my daughter was first diagnosed. We did the same thing. But that was 5 years ago. she was 5 years old and eventhough she had symptoms from...
Hi, by checking the function of the links Ron may lead you to the assumption that he keeps his postings and knowledge up to date. Well, he does not. For many...
Dear Linda, Roughly a year and half my wife and went down the road of a possible CF diagnosis. At the time, our children were 10 and 6. I still remember the...
Ok....So, I see there are plenty of people that are divided on the glyconutrients issue. I know of only the recent posts on this group, but I have asked on...
Hi Tiffany, you are quite right about the feelings and actions of folks, who are in a desperate situation healthwise. That's why I have recommended to join the...
Hello to all... My son was diagnosed with CF on Thrusday of last week. We are still in the hospital and are coping the best we can. Our doctor is very...
Hello Tianni (and group). My 4 mo. old daughter was also diagnosed with CF last Thursday. She was not hospitalized because she is doing pretty good right now....
Tianni, I don't know if you've found it, but another Yahoo group that is very good in addition to this one is CFParents. I believe the link would be ...
Thank you for the information, I will check it out when I get a chance. :) Elias Cobb <Ecobb@...> wrote:Tianni, I don't know if you've found it, but...
Hello to everyone again, I am finding a lot of support in this group and I am thankful for all. My prayers include all in this group and I fervently hope...
Linda, I am not trying to play down your suffering or your venting, I udnerstand why you are doing it.. My son was diagnosed 4 days ago and I understand why...
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