I just want to say thank you to the owner of this group for taking out the adult links. It's good to belong to a group that cares about what is posted. Thank...
I too Mary was turned down for lung transplant by Duke Uni in North Carolina but the Uni of North Carolina(UNC) is now considering me in Chapel Hill, maybe try...
My daughter is 5 and we are getting a sweat test scheduled. I'm reading about the symptoms and she has many of the problems, but it seems to me that she's too...
Thank you for the e-mail. My thoughts and prayers are with you. I'm sure that UNC will be your centre. Please keep in touch and I am sorry for the delay, but...
My niece was diagnosed three months before her third birthday. I think she pretty much had every symptom described though. I think there are varying degrees ...
hi , You will be on my prayer list , my daughter was 5 when she was diagnosed, she is doing great now , she went from a 26 pound 5 year old to a 63 pound 10...
Hi there, I know that depending on which genes the parents carried, there are forms of CF where just the respitory is affected, and the pancrease is fine. My...
hello everyone my name is Caryn and i am 16 yrs old. i have cf and i was wondering if anyone could give me some advice on how to deal with dating. i have been...
Hi Caryn, I was just writing to offer a little advice on your current dilemma. My husband has CF, and told me about it 2 weeks after we were dating. Yes, it is...
Dear Karen, I do not wish to cause any problems. However, as a person with difficult to diagnose CF (mine is atypical) I do not entirely agree with his...
In my search for more information on nutrition I found this... A fantastic website Interactive Healthy Eating Index http://147.208.9.133/ Blessings, Mary Ann...
hello, i am having difficulty coping with knowing my son jason (8 years old) will never reach his dreams of having a family, living a healthy life, as we know ...
Glenn-- I am a father of a Two and a half year old little Angel Girl who was diagnosed a year ago. I struggle with it from time to time in a hard way. But...
Hello, I also have an 8 year old son with CF. I am struggling with this issue and I'm sure we all are. I know that my son will make a wonderful husband and...
It really saddens me to read that you are already planning what his life WON'T be. I am married to a Cystic, who is 34 years old. We have a beautiful 7 year...
I want to thank each of you for your support as I've agonized these last few days. She had her sweat test today and the results were good. 33 was the magic...
Glenn- We all have dreams for our children, but are these your dreams or your childs? My daughter doesn't really talk about those types of dreams that much....
Thanks , I appreciate your advice this is been a problem for a while, it is hard to know when it is important to bring up and when it isn't I have had people...
Hi Glenn, My son Logan is 14 months and he has CF. It is always in the back of my mind the things that he may not get to do, but I have decided that I never...
Dear Glenn, I agree with Heather's advice and with everyone. Please just allow him to be a little boy and to be involved in hobbies, and activities that all...
Hi everyone! This is a wonderful group! I just discovered you all a few weeks ago. It's so nice to be able to share concerns with other people who are going...
Hi Glenn. My son has just turned 10. I used to think about that subject all of the time. As a matter of fact I was quite obsessed with it. I ended up making ...
I was wondering I have been dealing with cf all my life...And I was wonder if any of you guys know anything about college...And if Cf kids can get help...maybe...
First, I hope that your wife has made it out of the hospital. It's April now and I haven't seen a post about this since January. I lost my girlfriend of over...
Cystic Fibrosis sucks. End of story. But it doesn't mean that your child will not live a happy and healthy life. My girfriend just lost her battle with CF...
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