Jen, Congratulations on your pregnancy! Your baby is a blessing no matter what genetic makeup it has. I concur with the previous answers to your message. Don't...
Denise, I know this time is scary, and all you can do is pray for a correct diagnosis. Our daughter, Zoe, is 9 and was just diagnosised April 15, 2003. She did...
i personally have more stomach problems than i do lungs. i would not have any lung problems if i did not have allergies... cf is a personal disease ( everyone...
Dear Karen, Hopkins there may be more to CF than the CFTR mutations. Some people have CF that is more difficult to diagnosis, because they have what is known...
Dear Karen, Yesterday, in my haste to send my message it was inadvertently cut off by my own carelessness. Fortunately, most of my messages are saved. The ...
Hi All, I was recently admitted to a Toronto hospital with pneumonia. My Groshong PICC line broke at the tip so had to be replaced because hep-locks simply do...
hi there. I have been looking for a group that discusses CF for a while now. my boyfriends daughter lives with us and she has CF. I am her primary caregiver...
Well it is hard when it is not your child to freak out on everything. But that is not your fault at all. As for the parents, we tend to freak out anytime ...
FYI in just a couple of hours....on a online video conference there is a speaker speaking on "Why you need Antioxidants" 3:50pm CST you will need to download...
Hi Group, I was born with CF. I had a bowel obstruction when I was born. That's how they found out I had CF. I am 31 now and the area that I live in doesn't...
Hi Patrick, My husband is 34, and also has CF. As a child and even a teenager, they had CF support groups where kids with CF would get together and have a good...
hi Patrick my name is glenda and my 10 yr old daughter has cf, even we cant get together , just email me and I will keep a closer eye on my email and we can...
i'm a new member of the group and let me first of all say... thank gawd i found a group where people actually talk... now... patrick and everyone else... i...
Hi gang!! Time for me to step out of the closet. My name is Julie and My daughter Kay has CF. Kay is now 11 and is still
doing well. Yes just like all she has...
thanks for answering so fast... and i'll take a look into that pill organizer... i've thought about something like that before... and i'm thinking maybe it's...
Hi Shawna, I am sorry for you and your husbands loss. I just wish there was a way for CF's to talk to compare notes. I am new to online groups. I am thankful...
I just wanted to say thank you to all the members. I should have looked into yahoo groups for CF's before. I am home everyday on my computer. I wanted to help...
Hi, When I was 11 I didnt have family support. I was doing everything by myself. Your 11 yr old son needs encoragement. I mean dont get mad at him for not...
thanks patrick... we try very hard to let him be more responsible for himself... since he will have to do this the rest of his life... but of course, we are ...
Hi group, I was looking at your bookmarks and I was shocked to find adult sites! I think CF shouldn't have bookmarks to adult sites. What if a child clicked on...
Hi, I was wondering if other CF's have a problem coughing and spitting up mucus around others? I hold my coughing when I am around others cause I don't want to...
patrick, a girl I used to work with had cf at the time she was 25. she would cough alot and I know every one could hear her, but when people talked about her...
Here is the page fromn this group: cysticfibrosissupport · Cystic Fibrosis Support - A Cystic Fibrosis support group Group Member [ Edit My Membership ] ...
oh no... those links don't have any place here... i'm surprised that no one has bothered to remove them yet... but then i haven't seen an owner or a moderator...
Hi Group, I just e-mail the moderator of the group. I hope he doesnt get mad at me. I just asked him to remove the adult site if he can. I hope he can delete...
Hi Group, I am 31 male with CF. My doctor told me to take Colistin neb treatments. I have been taking them for about 1 week and I notice my fingers tingle...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
