I have never had any dealings with anyone with CF until recently. My best frien has a son who is my age. Praise God he is 31 years old. As you can emagine,...
My son is going through testing for GI problems we have pretty much ruled out Celiac and the doc just ordered a random fecal fat test and trypsin test.. I know...
Our daughter was diagnosed in June due to GI problems. We had to see a GI doctor who ordered a CF test just to be safe. Well turns out we were safe and she did...
Rats.. not what I wanted to hear.. but that is what life is one unexpected thing after another! I hadn't realized there was a GI component to CF till I looked...
get a cf social worker to help you they know alot of things that we dont they know how and where to get help. [Non-text portions of this message have been...
I had a cousin with CF distant though. After that honestly we have found it very difficult to trace this thing. But it is here now, and you have to both be a...
Is there any other reason to do a random fecal fat test and a trypsin test than to rule out possible CF? We have had an endoscopy for celiac, ruled out...
The bottom line, when they order the sweat test that is when you will know about CF. My Daughter goes to Childrens Hospital of PA, widely known as one of if...
Yeah when I read that they have alot of salt in their sweat I was gonna run up to him and lick him.. hehe LOL Thanks for the info and the prayers! Denise ... ...
Hi There, Sweat tests are considered the gold standard, but can miss CF. My sweat tests are always in the negative or borderline range. I do have confirmed CF....
You might want to checkout http://www.cfservicespharmacy.com - they had some info on programs to help with the cost of some of the prescription drugs. Good...
Hi, you can goto http://www.ncbi.nlm.nih.gov/ and search Pubmed for atypical cystic fibrosis. The scientific articles can be hard to understand, but at least...
I am 29 with CF and just got a port i Oct. I was wanting to get in the tanning bed. The surgeon that put my port in says I can not get in the tanning bed. I...
Hello, Having recently lost my wife to CF, I have started a Yahoo group of my own that I invite you all to join, but especially those in Canada. We are found...
My son has had chronic lung infections, sinusitis, sinus surgeries, and malabsorption. We just did a sweat test yesterday and the doctor called back the same...
a value of 80 is high, a positive or negative value depends upon the type of test run. Also you need to have a genotype done before you can say yes or no to ...
Hi, my name is Tanya and i have a daughter who is 3&1/2 with CF. I'm thinking about home schooling her due to the fact that she catches everything when around...
Hi Tanya! There is a lot of info on this in the Cystic-L archives. Here's info on Cystic-L: CYSTIC-L is a free email service dedicated to the exchange of...
Jen, Congratulations on your pregnancy! Your baby is a blessing no matter what genetic makeup it has. I concur with the previous answers to your message. Don't...
Denise, I know this time is scary, and all you can do is pray for a correct diagnosis. Our daughter, Zoe, is 9 and was just diagnosised April 15, 2003. She did...
i personally have more stomach problems than i do lungs. i would not have any lung problems if i did not have allergies... cf is a personal disease ( everyone...
Dear Karen, Hopkins there may be more to CF than the CFTR mutations. Some people have CF that is more difficult to diagnosis, because they have what is known...
Dear Karen, Yesterday, in my haste to send my message it was inadvertently cut off by my own carelessness. Fortunately, most of my messages are saved. The ...
Hi All, I was recently admitted to a Toronto hospital with pneumonia. My Groshong PICC line broke at the tip so had to be replaced because hep-locks simply do...
hi there. I have been looking for a group that discusses CF for a while now. my boyfriends daughter lives with us and she has CF. I am her primary caregiver...
Well it is hard when it is not your child to freak out on everything. But that is not your fault at all. As for the parents, we tend to freak out anytime ...
FYI in just a couple of hours....on a online video conference there is a speaker speaking on "Why you need Antioxidants" 3:50pm CST you will need to download...
Hi Group, I was born with CF. I had a bowel obstruction when I was born. That's how they found out I had CF. I am 31 now and the area that I live in doesn't...
Hi Patrick, My husband is 34, and also has CF. As a child and even a teenager, they had CF support groups where kids with CF would get together and have a good...
hi Patrick my name is glenda and my 10 yr old daughter has cf, even we cant get together , just email me and I will keep a closer eye on my email and we can...
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