sorry to be looking so back but take it from someopne who knows first hand they dont make much a differance and pose a big treat in the reject factor!...
Hi there, My wife has CF and is nearing her end, I have no family or friends i can turn to for support so i'm trying online for now. I guess i figured some of...
Hello I am not in your predictment and hope they find a cure before that My son is six and he was diagnosed at 2 months old I am very sorry for you because I...
It's OK to fall apart, I would suggest however that in the presence of your wife you are strong. I am in end stage of my disease and waiting on a transplant....
Hi, I'm a biology student in SC with an assignment on Cystic Fibrosis. I've been doing some research but have determined that the best way for my peers to...
first...hold your self together infront of her. dont make her feel responsible for your saddness(even though she is) swecond...when you marry somebody with cf...
Yes i knew the score when i married her. I've accepted that. the thing that really gets me is how she's handling it, she's afraid, no terrified. I can't...
i had a very remember try to support her. even if she acts like a 2 year old. i didnt come to terms with death until i had a very close run in with it. she...
Hello all! I have read everyone's posts over the last few months, and now it is my turn to write. I am a CF wife of almost 3 years. My husband is in extremely...
Get yourself and attorney, they will salivate to get thier hands on that insurance company. Trust me, this will go as far as a letter to them stating why ...
Thank you. I will definitely contact an attorney. It is bad enough that the insurance company forced him to go to this hospital that has no staff that knows...
paying the bills is about as worst as it can get. we dont have anycoverage fort anything but hospitol emergency vistits. no doctors are covered and neither are...
I am 29 with CF.... and I just have had it up to my eyebrows with bills and insurance companies! ALL BS. And I know very well what you are talking about...
TOBI works very well. Basically is is an inhaled antibiotic, and you usually take it for a month, and then rest for a month. If you have insurance, it will pay...
This is a question to all CF'ers who have taken the drug Ceftasidime. Have you or Are you experiencing Aphasia like symptoms? Memory Loss? My wife had taken...
Be sure to have the doctor test to see if your "bugs" (infection) is resistent to Tobramycin or not, my wife has been using tobi for some time and it usually...
Well, it usually does work great. This time, however, we all had contracted this new "killer" flu that is raging thru Nevada and some of the other states. It...
This is in response to the memory issue. I dont take Ceftaz.. but.. I did years ago... I also dont take alot of drugs.. Actually at this time the only thing...
My son is 6 and one month it looked like he was starting to get sick we were worried he was going in the hospital, but it was time to take his tobi for a month...
im not 18 yet(duh) but my freind was like my age when she became a donor. i was thinking about becomeing a living kidney donor when i turn like 18 or...
For those who care, Frankie one of the stars of the new season of the Real World is 21 living with CF. Interesting character, we started watching the show to...
Hello, My name is Vikki and I am part of a team setting up Post Pals, which securely features children aged between 2 and 18 in the UK with a serious illness,...
I'm new to this crowd. I don't have CF, but I have a very close everyday tie to it. I'm here for information and to learn as much as possible on a more up...
He-he, you sound like me 3 years ago! I married a man with CF, and never imagined what I was getting in to! It has been more than worth it, but there are a few...
Shawna - Thanks for the info. I guess I should have my message a little clearer though. I'm not involved personally with someone who has CF...it's part of my...
