Hello! I'm usually silent but I wanted to mention that my husband just bought me a laptop to use when I go into the hospital. I haven't been in since...
Does your Grandson have a CF doctor that is a specialist, or just a primary care doc? Usually CF specialist docs are more than happy to let you borrow...
cool... I am in the hospital right now with my new laptop! lol Also can watch DVD;s I got it all hooked up . Just have to dial a local number to your...
Dear Jessica, I am interested in your e-mail address. Are you a 911 dispatcher? If so, can you tell me what type of training was necessary to obtain this...
I hope you get out of the hospital soon!! It sucks, but I'm sure being able to chat outside of those walls makes it a lot easier. Best wishes to you! ...
hiya, my friends and i are setting up a website similiar to www.hugsandhope.com but in the UK. The basic idea is it will feature 5 pals a month (aged between 2...
Dear Viki, This is a lovely idea. How did you start this group? Congratulations on your group's hard work. I know that you will help many wonderful children....
Hi, I am replying because my fiancee and i were kinda thrown into the same deal. I am curious to know what your symptoms are. Normally if one has the 5T...
Hi, I am replying because my fiancee and i were kinda thrown into the same deal. I am curious to know what your symptoms are. Normally if one has the 5T...
Here are thoughts on the 5T allele, The 5T allele has had a lot of press recently (and rightly so) and it’s important to know what all the fuss is about....
It should be known this information was provided from a researcher in the field of cystic fibrosis. ... __________________________________ Do you Yahoo!? ...
Thanks for the info but I am already headed down that path. I was just asking to see if there were any chronic pancreatitis symptoms by chance. You see I am...
Luckily we had good news. Hubby tested Negative for any mutations!! We have changed Dr's!! Anyway, as far as me having any symptoms or problems...I'm...
Hi Everyone, (From a note sent to another list …just an update – sorry it’s long. Hope this list becomes even more active. This is a great list, have had...
Well after everything I read and all the research I have done for the last six months, I have decided to try the oral gsh from theranaturals. I will keep...
I am looking forward to what you say. Good Luck with everything. Len Paige diagnosed at 19 months, Irish, a fighter, this disease has never seen anything like...
Thanks and if anyone is interested in reading up on this, if you go to yahoo groups home and type in cystic fibrosis, a group called wlgroup2 is where I found...
I want to know if this sounds like a CF child. My son Jack is HUGE!!! He weighs 26lbs, 9 ozs and is 6 1/2 months old...so obviously weight gain is not an...
Only your doctor will tell you if he has it. The sweat test will answer your questions. Yes he does have some symptoms, but the weight gain works in your favor...
Hi Amy, It could be CF, but it could be asthma or another problem, so it's important to keep doing what you are doing - push for a diagnosis. Where you tested...
Hi Amy, Sounds like you are going through a very scary time right now. Be strong though cause no matter what the outcome, you will need the strength for your...
Hello, My name is Kelly, I have been looking for fundraisers for CF and haven't had any luck. I was wondering if there are any walks or runs. If anyone knows,...
In a message dated 9/2/2003 4:03:19 PM Central Daylight Time, ... my school does shinearama -- i dont know what it is1 but i volunteered;) wonder if theyve...
Hi Kelly, Are you in Australia or USA? If in Australia there are walks being planned around October along with Next year things arer ahppening in May? Let me...
Hello, a while back I posted about a team I am a member of, we were setting up a website and applying for a grant to support children and young people with...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the cysticfibrosissupport group. File :...
cysticfibrosissupport...
Sep 17, 2003 7:09 pm
495
I am writing to call your attention to a group of artists/illustrators and writers who donate their talents to publish small press comic books and artzines...
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