Hello, I was just tested for CF gene. I came back Negative for CF gene but positive for a mutation. Something about the 5th allele. They are now testing my...
Hello, I haven't posted in awhile, my name is Kristin and I am 21 from Pennsylvania. I was dignosed when I was 3. I am doing well right now though. I just...
I read your email and I am confused what you are saying but I will try to explain this to the best of my ability. You were tested to see if you carry a ...
Does anyone know of such a group, preferrably in the midwest? My daughter-in-law is from Guatemala, and my 3-yr--old grand daughter (diagnosed at age 6 mos)...
HI!! It's been a long time since I last wrote here, but I've been reading all the messages. I'm from Argentina and I'm 23 w/cf. I have no problem in talking to...
hey, i don't no any spanish but i can talk about cf because i have a 23 month old cosuin that has it. he was only 3 weeks old when he got it. well what i mean ...
Hello, A dear friend of mine is the mom of 2 daughters with CF. She recently lost her youngest daughter, age 15, to this terrible monster. Her other daughter...
Hi, we are looking all over for alternative ways to get enzymens in. We were recently diagnosed with CF, well our 19 month old was. The apple Sauce method is a...
Hello trentcat2000: I am a 34yr. old woman with C.F. My mom used to give me cranberry sauce as well as apple sauce to mix it up so I wouldn't get sick of just...
Hi, we always used plain water or herbal tea to flush the enzymes down. Many children with CF don't like the texture of enzyme beads in apple sauce and any...
Thank You Tiki, we will try it. Right now we are using fat free mash potatoes and having no problem getting them in, but we are worried she will chew them, but...
Thanks for getting back to me. I will join that other group. Right now we are using fat free potatoes to get them in and they are working. But we will try your...
can anyone provide me information on bringing a laptop into the hospital. I have CF and I am again.. going to be admitted in a week and I was wondering if I...
If you have a local number to dial into your server you will be able to connect. However, you may have to re-enter the dial up number in your computer with the...
Cool. Yes it does. Thanks for your help! Do you use one when you go in the hospital? I just use the phone jack for my phone? Thats really neat. ... Do you...
I am new with your group and with Cystic Fibrosis. My grandson who is 7 has this disease. What can a grandparent do to find out what can be done for my...
My name is Angie K, my god sister has Cystic Fibrosis. While doing research, my mother found an article about Valerie Hudson. She has three sons that were...
I haven't heard anything about that treatment, but she doesn't sound very healthy. If she is coughing up blood, she is scarring her lungs which leads to...
Hello! I'm usually silent but I wanted to mention that my husband just bought me a laptop to use when I go into the hospital. I haven't been in since...
Does your Grandson have a CF doctor that is a specialist, or just a primary care doc? Usually CF specialist docs are more than happy to let you borrow...
cool... I am in the hospital right now with my new laptop! lol Also can watch DVD;s I got it all hooked up . Just have to dial a local number to your...
Dear Jessica, I am interested in your e-mail address. Are you a 911 dispatcher? If so, can you tell me what type of training was necessary to obtain this...
I hope you get out of the hospital soon!! It sucks, but I'm sure being able to chat outside of those walls makes it a lot easier. Best wishes to you! ...
hiya, my friends and i are setting up a website similiar to www.hugsandhope.com but in the UK. The basic idea is it will feature 5 pals a month (aged between 2...
Dear Viki, This is a lovely idea. How did you start this group? Congratulations on your group's hard work. I know that you will help many wonderful children....
Hi, I am replying because my fiancee and i were kinda thrown into the same deal. I am curious to know what your symptoms are. Normally if one has the 5T...
Hi, I am replying because my fiancee and i were kinda thrown into the same deal. I am curious to know what your symptoms are. Normally if one has the 5T...
Here are thoughts on the 5T allele, The 5T allele has had a lot of press recently (and rightly so) and it’s important to know what all the fuss is about....
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