Hi Bethany: I am sad for what you are going on, sadder because of Dylan's parents reaction and lack of commitment to their child. My son was diagnosed when he...
Hi Lucas and Beth, Lucas you are so darn rigth!. When Luisa, our 9 year old, was diagnosed last year, I fell like I was falling through a deep black hole. We...
Hi everyone, I just wanted to jot off a quick note. I had two sweat chloride tests and both came back abnormal. I am being sent for an evaluation on April 15....
Dear Kristen, What do you mean by abnormal? Are they borderline high? Some varients of CF are known to cause borderline sweat chloride results. Since you...
Hi, eveyrone! I'm a mom of a little girl, who will be 2 this month, on the 25th to be exact, and Hannah has CF. I live in a rural area, so sometimes people...
Kristen, Hi, I'm a new member of this group, and I had to send you a post, after reading your e-mail and the reply that was posted. I have a little girl, and...
I don't know if my original message got to you or not. If it did, I apologize for sending you this one. In your post, you said, "Should I push to see the...
I joined this group because my son is currently being tested for CF. He is going on 8 years old ( april 18th) When he was 18 months old he was tested(sweat...
Hello Back, Amy. I hope you find the answer to your son's ailments. I think the worst part of CF is for us parents to carry around the burden of not knowing ...
Dear Amy, We have been undergoing testing also. Recently our daughter just was diagnosed with CF and our son will be diagnosed soon since we are waiting for...
Right now I am only in the beginning stages of info seeking myself. I am fighting people who say that adults just don't get this. I am seeing a specialist next...
Amy, Our daughter was dx just last year and for a long time I could not read anything about cf. The reason was because all I found on the internet was so...
Terry, I have been tested for so many things that I can't keep track of them anymore. This is what they say I have: endometriosis Lupus fibromyalgia ...
My next door neighbor has very advanced lupus and it does mimic CF. Malnutrition, lung, pancreas, liver problems, so it is very interesting. She eats all day...
Kristen, I've been following this thread with interest because we all remember the struggle that comes with finding answers to our questions. There major...
Well, I was tested twice. I was told that both tests were abnormal and would need to go to Hershey, nearly two hours away, for an evaluation. I was told that...
Hello, I was just tested for CF gene. I came back Negative for CF gene but positive for a mutation. Something about the 5th allele. They are now testing my...
Hello, I haven't posted in awhile, my name is Kristin and I am 21 from Pennsylvania. I was dignosed when I was 3. I am doing well right now though. I just...
I read your email and I am confused what you are saying but I will try to explain this to the best of my ability. You were tested to see if you carry a ...
Does anyone know of such a group, preferrably in the midwest? My daughter-in-law is from Guatemala, and my 3-yr--old grand daughter (diagnosed at age 6 mos)...
HI!! It's been a long time since I last wrote here, but I've been reading all the messages. I'm from Argentina and I'm 23 w/cf. I have no problem in talking to...
hey, i don't no any spanish but i can talk about cf because i have a 23 month old cosuin that has it. he was only 3 weeks old when he got it. well what i mean ...
Hello, A dear friend of mine is the mom of 2 daughters with CF. She recently lost her youngest daughter, age 15, to this terrible monster. Her other daughter...
Hi, we are looking all over for alternative ways to get enzymens in. We were recently diagnosed with CF, well our 19 month old was. The apple Sauce method is a...
Hello trentcat2000: I am a 34yr. old woman with C.F. My mom used to give me cranberry sauce as well as apple sauce to mix it up so I wouldn't get sick of just...
Hi, we always used plain water or herbal tea to flush the enzymes down. Many children with CF don't like the texture of enzyme beads in apple sauce and any...
Thank You Tiki, we will try it. Right now we are using fat free mash potatoes and having no problem getting them in, but we are worried she will chew them, but...
Thanks for getting back to me. I will join that other group. Right now we are using fat free potatoes to get them in and they are working. But we will try your...
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