Hi Everyone, I just wanted to say that I saw my doctor yesterday and when I explained that my aunt who is at least 10 years older than I am was just diagnosed ...
I don't think anyone is too old to be diagnosed. I think this is one of the major misconceptions among doctors. There are varying degrees of CF that people...
Dear Kristen, NO...it is never too late to be tested! I am a perfect example, as I was diagnosed with CF at the age of 31. (I will be 33 in May) I also have...
D. Klinger, My doctor has ordered the test. I should have it soon. Thanks. Kristen -- Creed ONE I feel angry, I feel helpless, Want to change the world. I feel...
... I have unsuccessfully trying to get pregnant since 1999, when they first told me that I had endometriosis. ... This is the test that my doctor ordered for...
I have recently joined this group. I have a step son who is 10 years old, 51" and 49lb, he has been diagnosed with failure to thrive. His MD felt it was CF...
The foul smelling bowls is one sympton also the low weight is another I would say yes. I have a 5 yr. old who has CF and has had it since he was 2 weeks old....
Greetings... I'm 26, married, have a 6 yo son, and am pregnant with my second child. My first child is from a different marriage, and does not have CF. My...
Hello Karlee in Kansas, I would say you are correct, but if you do the math it really breaks down to this: 25% the child will have CF 50% the child will be a...
Dear Dee, It has been a long road I will admit for any sort of diagnosis, I also feel he will be positive for CF, but he will have a mild form. I beleive his...
You can do the test even for the baby while you are still pregnant. so you can find out before the baby is born. Also I've heard there are some treatments (but...
Maia Hristozova
MajaH@...
Mar 14, 2003 12:46 am
421
The only option for testing while pregnant is the amniocentesis...and I'm refusing that. I'd also prefer not to get into the debate as to why I'm refusing it....
Well it's up to you :) I don't know anything about amniocentesis.. Maia ... From: "Mike and Karlee Brennan" <mnkbrennan@...> To:...
Maia Hristozova
MajaH@...
Mar 14, 2003 3:12 am
423
Hi everyone, My doctor is sending me for a sweat chloride test next Tuesday. I hope I can finally get some answers. A neurologist has also suggested I be ...
All illnesses or weight problems, even acne, allergies and headaches start with an imbalance in the body. The imbalance can be linked to hormones, vitamins or...
Well....I have read several posts. I am thinking I am in the right place now. For the last 6 months, I have been posting to the pancreatitis group. It never...
Hi everyone, Last week I had that sweat chloride test. My doctor called today and said that it was abnormal. He didn't explain how high or low that needed to...
You really should go and have that second test. I know they did the same thing with my daughter before saying she had CF. I know that I wouldn't feel...
Hello, I have joined this group because I just found out my 9 month old nephew "most likely" has CF. He goes for his sweat test in two weeks. He was born...
I wish I had some good advice for you, It is extremely hard to deal with but you have too for your child you need to put your faith in God and he will help you...
Hi Bethany: I am sad for what you are going on, sadder because of Dylan's parents reaction and lack of commitment to their child. My son was diagnosed when he...
Hi Lucas and Beth, Lucas you are so darn rigth!. When Luisa, our 9 year old, was diagnosed last year, I fell like I was falling through a deep black hole. We...
Hi everyone, I just wanted to jot off a quick note. I had two sweat chloride tests and both came back abnormal. I am being sent for an evaluation on April 15....
Dear Kristen, What do you mean by abnormal? Are they borderline high? Some varients of CF are known to cause borderline sweat chloride results. Since you...
Hi, eveyrone! I'm a mom of a little girl, who will be 2 this month, on the 25th to be exact, and Hannah has CF. I live in a rural area, so sometimes people...
Kristen, Hi, I'm a new member of this group, and I had to send you a post, after reading your e-mail and the reply that was posted. I have a little girl, and...
I don't know if my original message got to you or not. If it did, I apologize for sending you this one. In your post, you said, "Should I push to see the...
I joined this group because my son is currently being tested for CF. He is going on 8 years old ( april 18th) When he was 18 months old he was tested(sweat...
Hello Back, Amy. I hope you find the answer to your son's ailments. I think the worst part of CF is for us parents to carry around the burden of not knowing ...
Dear Amy, We have been undergoing testing also. Recently our daughter just was diagnosed with CF and our son will be diagnosed soon since we are waiting for...
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