My brother and I have CF. Due to this, I am researching how people cope with CF as part of a Psychology Honours degree, and would like to request people...
Good morning everyone .. How are you all doing? Hey I have a big favor to ask I need to get more people to sign the petition for Davids law today so that...
Please check out this video. http://www.vimeo.com/5649691 A CF surf camp is put on by the Mauli Ola Foundation, sponsored by Ambry Genetics. They recognize the...
I would like to inquire about DME (durable medical equipment)coverage for specialty nebulizers such as eFlow. Is the eFlow covered automatically when the...
CYSTIC FIBROSIS TEEN & ADULT DAY RETREAT The Great Outdoors: A Breath of Fresh Air! Need support in dealing with the challenges of CF? Looking for some...
Dear CF Families and Friends, I am sending this to you in case you or someone you know may be interested. The Department of Disability and Human Development at...
My 16 year old daughter has cheered on her school's varsity cheer team for 2 years. She absolutely loves cheerleading and is her motivation to get up for...
" 65_RedRoses is a Canadian documentary that takes an unflinching look into the life of Eva Markvoort as she battles a fatal genetic disease called Cystic...
Are you interested in finding out more about best practices for CF care in children? My name is Dr. Susanna McColley, and I'm Head of Pulmonary Medicine and...
Hey Everyone..PLEASE READ ! ! ! Growing up I never knew there CF Camps. I wish I did. Everyone talks about how much fun it was. My husband and I, he also has...
Dear All Please find the results of our CF Research Blog http://www.thepatientsvoice.org/Cystic_Fibrosis/ Feel very free to add any comments you may think will...
ello, Stanford Patient Education Research Center is conducting phone interviews with adults who have CF. The study looks at quality of life, coping, and...
Announcing the CYSTIC FIBROSIS TEEN & ADULT DAY RETREAT 2009 Need support in dealing with the challenges of CF? Looking for some guidance in the CF journey?...
Hey everyone I really could use your help. I would like to have a stamp made to help support cystic fibrosis.. At this time there has never been a stamp for...
Hey everyone cystic fibrosis chat is going on right now please come and join us. The chat will go on for the next 5 hr the address for the chat is at the...
Hi, I just came back from the most AMAZING week at CF Retreat, in Northern California. I had to share because it was so cool!!! My heart is swelling with joy...
If you are an adult cystic fibrosis patient using a PARI eFlow nebulizer or provide care for a pediatric CF patient who uses a PARI eFlow nebulizer, you might...
My name is Renee, I am new to this group. I am a member to the cf parent chat line. I have a 5 year old son, Joshua with Cystic Fibrosis, Hydrocephalus, ...
MY PRECIOUS SON MALACHI BORN W/CF 1976 KS/NOW MO. HOME>HOSP EMAIL SENDS PATIENTS YOUR NOTES!!BARNES JEWISH;ST LOUIS,MO./ALSO HOPEING TO FIND OLD FREINDS FROM...
Hey Guys Brad was supposed to go back to work today at the police dept, was already
to leave and the doc faxed the police dept. That he couldn't come back. We...
Announcing the CYSTIC FIBROSIS TEEN & ADULT DAY RETREAT and CFRI ANNUAL EDUCATIONAL CONFERENCE RETREAT: August 3– August 8, 2008 Located at Vallombrosa...
Does anyone use lubiprostone for the treatment of bowel obstructions? How is it? It's a new chloride channel opener for the gut that is supposed to help...
Anabel and Isabel Stenzel are identical twins with cystic fibrosis from the San Francisco Bay Area. Their recently written memoir, "The Power of Two: A Twin...
Hey Guys, I don't write in much. My name is Becki, I am 29yo and live in Florida. I
also have CF,diabetes,and had a lung transplant.I also had an interstitial...
Hi Any teens or adults here have a feeding tube.I have one but done use it much
I know I know but if I eat why use it.Plus unplugging and plugging to go the...
My Update Well I came home from the hospital and picked up a chest Infection......IV's for Christmas.I just don't want to end up in the Hospital for the...
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