Hi All

I still really need people to complete my survey, so if you could help I'd
really appreciate it.

Thanks
Alyssa

"Creatively Coping with Cystic Fibrosis"

The purpose of the study
How adults cope with Cystic Fibrosis is an area of relatively little research.
However, it is an aspect of the illness that greatly affects people living with
CF, and becomes more an more important in an adult population as improved
medical technologies means people are living with their illness for greater
periods of time.

The best way to understand how people cope with their illness is to ask them to
self-measure their feelings on a number of different qualities.

The purpose of this study is to examine the influence on coping with Cystic
Fibrosis. This study is being conducted by Alyssa Ryan as part of the
requirements for the Psychology (Honours) degree at the University of Queensland
under the supervision of Dr Jason Connor.

Completing the online survey will provide invaluable information in this
research area. It is hoped that, by better understanding what personal factors
improve someone's ability to cope with Cystic Fibrosis, more progress can be
made when developing treatment programs.

Participation and withdrawal
Participation in this study is completely voluntary and you are free to withdraw
from this study at any time without prejudice or penalty. If you wish to
withdraw, simply stop completing the survey. If you do withdraw from the study,
the materials that you have completed to that point will be deleted and will not
be included in the study.

What is involved
Participants are asked to fill out several questionnaires about coping, quality
of life, creative expression, and mood state. Participation in this study will
take approximately twenty minutes.

Risks
Participation in this study should involve no physical or mental discomfort, and
no risks beyond those of everyday living.  If, however, you should find any
question or procedure to be invasive or offensive, you are free to omit
answering or participating in that aspect of the study.

Confidentiality and security of data
All data collected in this study will be confidential. Specifically,
participants' will not be asked to provide their name or any other data that
could identify them. All surveys will be numbered and these numbers will not be
able to be linked to any individual. The data will be seen only by the chief
investigator and the research team and will be stored in a locked cabinet that
is not accessible to any individual but the chief investigator and her research
team. The data from this study will only be used for research purposes.

 	    Ethics Clearance and Contacts
This study has been cleared in accordance with the ethical review processes of
the University of Queensland and within the guidelines of the National Statement
on Ethical Conduct in Human
Research.  You are, of course, free to discuss your participation with project
staff (contactable on: Alyssa Ryan: alyssakryan@... or 0411297439; Jason
Connor:
jason.connor@... or 33655150). If you would like to speak to an officer of
the University not involved in the study, you may contact one of the School of
Psychology Ethics Review Officers, John McLean, Brooke Andrew, or Courtney von
Hippel  directly on 3365 6394 or by email: john@... for John McLean,
on 3365 7427 or email brooke@... for Brooke Andrew, or on 3365 7293 or
e-mail: courtney@... for Courtney von Hippel. Alternatively, you may
leave a message with Ann Lee (3365 6448, ann@...) for an ethics
officer to contact you, or contact the University of Queensland Ethics Officer,
Michael Tse, on 3365 3924, e-mail: humanethics@...

If you would like to learn the outcome of the study in which you are
participating, you can contact me at the email above after 1st November 2009,
and I will send you an Abstract of the study and findings.

As a gesture of appreciation, you can choose to provide your name and address
via email to a confidential address at the end of the survey (which will not be
stored with or connected to, your data), and go into a draw to receive 1 of 10
$20 Coles-Myer or PayPal Gift Vouchers.

To complete the survey, simply click on the below link; it will take you to the
survey which is held on a secure University of Queensland server and database.

https://surveys.psy.uq.edu.au/cysticfibrosis.survey

Thank you for your participation in this study.

Alyssa Ryan