Hey Everyone..PLEASE READ ! ! ! Growing up I never knew there CF Camps. I wish I did. Everyone talks about how much fun it was. My husband and I, he also has...
Dear All Please find the results of our CF Research Blog http://www.thepatientsvoice.org/Cystic_Fibrosis/ Feel very free to add any comments you may think will...
ello, Stanford Patient Education Research Center is conducting phone interviews with adults who have CF. The study looks at quality of life, coping, and...
Announcing the CYSTIC FIBROSIS TEEN & ADULT DAY RETREAT 2009 Need support in dealing with the challenges of CF? Looking for some guidance in the CF journey?...
Hey everyone I really could use your help. I would like to have a stamp made to help support cystic fibrosis.. At this time there has never been a stamp for...
Hey everyone cystic fibrosis chat is going on right now please come and join us. The chat will go on for the next 5 hr the address for the chat is at the...
Hi, I just came back from the most AMAZING week at CF Retreat, in Northern California. I had to share because it was so cool!!! My heart is swelling with joy...
If you are an adult cystic fibrosis patient using a PARI eFlow nebulizer or provide care for a pediatric CF patient who uses a PARI eFlow nebulizer, you might...
My name is Renee, I am new to this group. I am a member to the cf parent chat line. I have a 5 year old son, Joshua with Cystic Fibrosis, Hydrocephalus, ...
MY PRECIOUS SON MALACHI BORN W/CF 1976 KS/NOW MO. HOME>HOSP EMAIL SENDS PATIENTS YOUR NOTES!!BARNES JEWISH;ST LOUIS,MO./ALSO HOPEING TO FIND OLD FREINDS FROM...
Hey Guys Brad was supposed to go back to work today at the police dept, was already
to leave and the doc faxed the police dept. That he couldn't come back. We...
Announcing the CYSTIC FIBROSIS TEEN & ADULT DAY RETREAT and CFRI ANNUAL EDUCATIONAL CONFERENCE RETREAT: August 3– August 8, 2008 Located at Vallombrosa...
Does anyone use lubiprostone for the treatment of bowel obstructions? How is it? It's a new chloride channel opener for the gut that is supposed to help...
Anabel and Isabel Stenzel are identical twins with cystic fibrosis from the San Francisco Bay Area. Their recently written memoir, "The Power of Two: A Twin...
Hey Guys, I don't write in much. My name is Becki, I am 29yo and live in Florida. I
also have CF,diabetes,and had a lung transplant.I also had an interstitial...
Hi Any teens or adults here have a feeding tube.I have one but done use it much
I know I know but if I eat why use it.Plus unplugging and plugging to go the...
My Update Well I came home from the hospital and picked up a chest Infection......IV's for Christmas.I just don't want to end up in the Hospital for the...
Just got my BA and i did not even have to go to the campus for 1 day! Just got a tip from a friend and gave these guys a call 1-770 621 2634, completed a small...
Just got my BS and i wasnt even required to turn up! Just called these people 1-415-267-3940, filled out a few forms and a bit of paperwork and was accredited...
I cannot sleep tonight so I was trying to figure out MySpace since I have a
page. I looked up Cystic Fibrosis and found this video.I have never seen
such a...
Anyone going to Central Florida Ed Day? I am going ! ! ! It would be great
to meet ! ! ! !I hope to see ya there ! ! ! I can't wait to meet Aunt Bev !
! ! Ive...
Hello all, I hope you are having a wonderful week. I was hoping to get in touch with patients or parents of patients dealing with cystic fibrosis. I work for a...
I, myself, opt to use weed as alternative medicine (as its the only thing that’s helped me!). I've been looking for a good place to find it, but no one has...
How is everyone doing this morning? Hope that you are all well and i hope that no one is in the hospital but if you are in the hospital i hope you get to come...
Just got my BS and i wasnt even required to turn up! Just called these people 770 621-2634, filled out a few forms and a bit of paperwork and was accredited ...
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