Hey Guys
Brad was supposed to go back to work today at the police dept, was already
to leave and the doc faxed the police dept. That he couldn't come back. We
are furious. If he loses his job, I am finding a new TX center. I only get
alone with one of the doctors anyway. He can't do desk duty b/c he's new and
doesn't know what to do. I don't know what's gonna happen. If he loses his
job, he'll be devastated. The thing is, he's better. His lung function is
higher than mine for goodness sake. He's stir crazy to say the least. He's
done about a month of IV's. They haven't even seen him. We aren't getting
any money either while he's home. His benefits haven't kicked in yet.
Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr. I hope he can keep his job, the doc
say he can't resume duty until the 9th.I am so nervous for him my stomach is
tied in knots.He'll be just devastated.

We met the new CF doc yesterday and he was great, new antibiotic methods and
everything. Very aggressive. He follows the Danish Method of treatment. They
thought he'd been on IV's too long and on the wrong ones.But didn't want to
step on any toes this time. HE'll handle the next time he gets sick. Mayo's
great for end stage lung disease but knows little about CF maintance.I am
hoping maybe he has some ideas or can refer me to another GI doc for my
chronic pancreatitis.

Hopefully we'll start going to the gym tomorrow. I have been bugging brad to
go for awhile now. I need to learn how to run and build up my strength. I am
planning on the Transplant Olympics in July so I need to start training.Not
sure what I'll do though...swim maybe. I'll see.I am looking forward to it
though. We have Camp Mosquito June 16-20th ( I have planned the coolest
stuff. It'll be the best year yet )and then the TX Olympics is around July
9th. I will be applying for a scholarship to attend.

On a good note. I did my lung function testing and its up higher then its
been in 2 years.My bronch was also clean.The RSV I had around Christmas time
was gone thank goodness. That was horrible. Made me remember pre transplant
life with CF. Coughing all night and stuff. I even had to do nebulizer
treatments again. I haven't done any neb treatments in 3.5 years! ! ! !
Thanks to a double lung transplant.

My chronic rejection must be in hybernation.I've been in chronic rejection
for 3 years now. Since about 8 months post transplant from stupid acid
reflux.My lung function dropped big time at first. It dropped like a rock.
It would stablize and would drop a little then stablize and drop a little.
Its been doing that for three years.Maybe with some hard exercise and if I
can ever figure out how to run, it'll get even higher.Proof that Chronic
rejection doesn't have to be a death sentence. So if anyone is told they
have BO or chronic rejection its ok to be worried but don't automatically
think your about to die. I am too stubborn to think I won't be ok. Now only
if my pancreas would work or at least stop hurting.I plan on going back to
school again this summer or so. I took this year off for health reasons and
for financial reasons.

This summer will be my 9th wedding anniversary.
We married young.On our tenth we plan on having a wedding ceremony. We
married at the justice of the peace b/c I was losing health insurance so we
never had a wedding. Plus it would be nice to get married without oxygen! !
! !
I found this church in St. Augustine, its a little stone church I want to
use.Then have a reception at one of the bed and breakfasts there. We'll pay
for the wedding. We'll make our own invitations on the computer. You can
make really pretty ones with ribbons and everything. We have no friends so
it'll be a small wedding and mom says grandma won't come to my wedding so ..
.....
I just want the church, dress, tux, and pictures. For a honeymoon, more than
anything, I want a tour of Eastern Europe. Buy a rail pass and go to Germany
( we are very very German)Switzerland ( we come from there too plus its
beautiful )Sweden,Belgium,and Ireland ( m3rd generation Irish ). They are
all interconnected and one pass pays for you to go to all of these places.
Mom said they'd pay for a honeymoon but I'll believe it when I see it. We
don't want flowers and expensive pieces for the church, just a dress.

Anyways...Its almost 6:30 now.


  
Sincerely,
Rebecca R. Snyder
Director
29 year old w/ Cystic Fibrosis, Chronic Pancreatitis, Diabetes, Double Lung
Transplant '04, GJ Tube
YOUNGLUNG Support Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
YOUNGLUNG GROUP
www.younglung.org
YOUNGLUNG E-GROUP
http://health.groups.yahoo.com/group/YOUNGLUNG/



[Non-text portions of this message have been removed]

Hi
Any teens or adults here have a feeding tube.I have one but done use it much
I know I know but if I eat why use it.Plus unplugging and plugging to go the
bathroom is a pain.I go the new zyvex mini pump in a back pack..pretty cool
but I still fight it.
 
Sincerely,
Rebecca R. Snyder
Director
29 year old w/ CF, Chronic Pancreatitis, Diabetes, Double Lung Transplant
04, GJ Tube
YOUNGLUNG Suppport Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
YOUNGLUNG GROUP
www.younglung.org
YOUNGLUNG E-GROUP
http://health.groups.yahoo.com/group/YOUNGLUNG/



[Non-text portions of this message have been removed]

My Update


Well I came home from the hospital and picked up a chest
Infection......IV's for Christmas.I just don't want to end up in the
Hospital for the holidays.So that's why Im doing IV's.They wanted me to
Go in but I wanted to try this first. These infrequent infections
Remind me of life pre-Tx. Errie...................

Oh Yah,
Im on Tobi inhaled and nebs again too.Just temporary.I dont have pseudo
anymore.



 
Sincerely,
Rebecca R. Snyder
Director
29 year old w/ CF, Chronic Pancreatitis, Diabetes, Double Lung Transplant
04, GJ Tube
YOUNGLUNG Suppport Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
YOUNGLUNG GROUP
www.younglung.org
YOUNGLUNG E-GROUP
http://health.groups.yahoo.com/group/YOUNGLUNG/


[Non-text portions of this message have been removed]

I read your profile today, I thought I would drop you a line and hope to become
your friend! Check my personal page here:
http://girlgxblog.googlepages.com/girlrider.htm

HI GUYS MAY NAME IS BRIAN. 31YRS OLD CF SINCE BIRTH. KNOW JEREME PIERCE
SINCE CF RETREAT 1998

BRIAN TACKE

I created this cool friends network and added you to my friends network. Hit-up
now:
http://makegirlfofriend.googlepages.com/girlfriends.htm

I am now to be referred to as Dr. Jenkins haha ;) Took me about a month to get
fully accredited, but after ringing these ppl 415-267-3940 they got me setup
at an international uni and had me my BA in no time.

Just got my BS and i wasnt even required to turn up! Just called these people
1-415-267-3940, filled out a few forms and  a bit of paperwork and was
accredited
within 3 weeks at an internationally recognised Uni! How good is that!

Just got my masters in Science and didnt even have to turn up to class...
how good is that? Just phoned these fellows 415-267-3940 and they got me fully
accredited at an         overseas uni in less than a month! Very happy right
now.

I cannot sleep tonight so I was trying to figure out MySpace since I have a
page. I looked up Cystic Fibrosis and found this video.I have never seen
such a beautifully put together video.I sobbed.Even as my feed pump was
alarming like crazy.....I just turned the sound up....lol

It seems I need some friends....I have not one on MySpace.....lol

I thought good doing one up for the camp I do but this is ..... I am
speechless. Everyone should hear. However, the song mentions God so if you
do not listen or believe in God do not yell at me please,I get all upset and
feel horrible. Its just so well put together.

I would also like to have anyone join My group of blogger's or whatever, so
I am not such a lonely dork....lol

My Addy is :
http://www.myspace.com/cysticfibrosisprincess

The video is in the Blog section . . .
 
Sincerely,
Rebecca R. Snyder
Director
29 year old w/ CF, Chronic Pancreatitis, Diabetes, Double Lung Transplant
04, GJ Tube
YOUNGLUNG Suppport Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
YOUNGLUNG GROUP
www.younglung.org
YOUNGLUNG E-GROUP
http://health.groups.yahoo.com/group/YOUNGLUNG/



[Non-text portions of this message have been removed]

Hi
My name is Becki. I want everyone to introduce themselves to everyone with
their stories.Chronic Pancreatitis,yada,yada,yada.I am 3 yrs out of TX.I
also had an interstitial lung disease that made things worse.I was full of
infection and secretions plus I had no reserve volumn or FVC or Total Lung
Copacity. My FEV1 at Transplant was 10% and on 15L.Not good.

I have a feeding tube. A GJ tube and use the new ZYVEX machine ....its the
size of your hand.I am using Perative.Its already broken down.So my pancreas
doesn't have to work so hard.

I also have chronic rejection but its not too bad.....Bronchiolitis
Obliterans. Or BO.

We have some pics in the pics section.Plus some links and info.

We also have a camp for kids and adults with CF and similar disorders like
ILD's and Bronchiectasis.


Sincerely,
Rebecca R. Snyder
Director
29 year old w/ CF, Chronic Pancreatitis, Diabetes, Double Lung Transplant
04, GJ Tube
YOUNGLUNG Suppport Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
www.younglung.org


[Non-text portions of this message have been removed]

Subject: My introduction...I have CF and an ILD

Hi
My name is Becki. I want everyone to introduce themselves to everyone with
their stories.Chronic Pancreatitis,yada,yada,yada.I am 3 yrs out of TX.I
also had an interstitial lung disease that made things worse.I was full of
infection and secretions plus I had no reserve volumn or FVC or Total Lung
Copacity. My FEV1 at Transplant was 10% and on 15L.Not good.

I have a feeding tube. A GJ tube and use the new ZYVEX machine ....its the
size of your hand.I am using Perative.Its already broken down.So my pancreas
doesn't have to work so hard.

I also have chronic rejection but its not too bad.....Bronchiolitis
Obliterans. Or BO.

We have some pics in the pics section.Plus some links and info.

We also have a camp for kids and adults with CF and similar disorders like
ILD's and Bronchiectasis.Pre=teens, teens,and adults should join YOUNGLUNG !
! ! YOU can laugh cry vent or whatever suits your needs.
 
Sincerely,
Rebecca R. Snyder
Director
29 year old w/ CF, Chronic Pancreatitis, Diabetes, Double Lung Transplant
04, GJ Tube
YOUNGLUNG Suppport Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
YOUNGLUNG GROUP
www.younglung.org
YOUNGLUNG E-GROUP
http://health.groups.yahoo.com/group/YOUNGLUNG/


[Non-text portions of this message have been removed]

Anyone going to Central Florida Ed Day? I am going ! ! ! It would be great
to meet ! ! ! !I hope to see ya there ! ! ! I can't wait to meet Aunt Bev !
! ! Ive been on here since I was a teenager and now I am almost 30 ! ! ! And
3 yrs post-tx.

Sincerely,
Rebecca R. Snyder
Director
29 year old w/ CF, Chronic Pancreatitis, Diabetes, Double Lung Transplant
04, GJ Tube
YOUNGLUNG Suppport Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
www.younglung.org


[Non-text portions of this message have been removed]

Hello all,

I hope you are having a wonderful week. I was hoping to get in touch
with patients or parents of patients dealing with cystic fibrosis. I
work for a public relations firm and one of my clients is in the
cystic fibrosis and chronic pancreatitis space.

We work heavily in patient advocacy and disease awareness and we are
looking to speak to a few individuals on the phone (or if they are
based in NYC -- in person) about their perspective on cystic
fibrosis. This could include education, disease management,
medication issues, etc.

If you have time during the next week or early next week to answer a
few survey questions, please e-mail me at avillani@...
with.

We appreciate all your help and any input you could provide about
CF.

Please enjoy the rest of your week.

Best,
Andrew

I, myself, opt to use weed as alternative medicine (as its the only
thing that’s helped me!).  I've been looking for a good place to find
it, but no one has really impressed me yet.  But I recently found a
place in Los Angeles called Kushism.  I love it!  Just thought I would
spread the word...  :)

www.kushism.com

Peace and health,
chillerbeatz342

How is everyone doing this morning? Hope that you are all well and i
hope that no one is in the hospital but if you are in the hospital i
hope you get to come home very soon... I wanted to take time this
morning to let all of the members know that im willing to help
parents and students that are going into school or if they need help
with care plans for there school I can help with that as well . I
have helped many teachers understand what cf is and how they may
help . like allowing a patient to use restroom when he or she needs
to instead of asking just walking to restroom this helps students
with cf out alot i know that this did for me when i was in school.
Ive also set up a time at the end of aug to have a cystic fibrosis
in are school chat i will be entering that on the calander today
this will go on for a whole weekned i know that this may be helpful
so im opening the room for saterday and sunday so if you want to
come or know someone that does please tell them to join and look at
the calander for the  cf school chat it will run from 7am cst to
11pm cst both days and ill try to be here for most of the chat also
so you know that are toll free line will still be open that weekend
and so are teachers may call that as well if they would like talk to
you all soon if you have any qustions please email them to
fightcf@...

your friend
david

Hello Everyone,

   Today is the 2 yr anniversary of Jon's Liver transplant. He is doing well as
you can see in the picture below. He's growing and acting like a regular 15 yr
old. Since the last report he now has the insulin pump. This has really helped
regulate his diabetes. He's around 5' 4" right now. I told him he has to stop
because I'm that tall and he's still my baby.

   I just wanted to Thank You again for any help you provided and ask for prayers
for the Donor's family today.



       v\:* {behavior:url(#default#VML);}  o\:* {behavior:url(#default#VML);} 
w\:* {behavior:url(#default#VML);}  .shape {behavior:url(#default#VML);}







Robin A, IL
   God didn't promise days without pain, laughter without sorrow, sun without
rain, but he did promise strength for the day, comfort for the tears and light
for the way.If God brings you to it, He will bring you through it.


   Old Fashion Dreams   www.OldFashionDreams.com
   Tupperware   www.my.tupperware.com/RobinA
   The Online Fair www.TheOnlineFair.com



---------------------------------
Building a website is a piece of cake.
Yahoo! Small Business gives you all the tools to get online.

[Non-text portions of this message have been removed]

Hello,

My name is Bart, I'm a 32 years old Cystic Fibrosis patient from
Belgium. Since I've been transplanted 3 years ago I like to spend my
name ( next to working) with DIY. I now particate in a contest of a
local DIY store, named Brico. The 10 projects with the most votes
earn 2.500 EUR to realise their project.

The only thing I need is a lot of votes. So I'm begging you to vote
for me, it would be such a big help.

Voting is for free and can be done on the site of that store
http://brico.be. If you go to that site you will see a banner with
GROTE WEDSTRIJD on it ( green banner at the top of the page). Click
on that banner, skip twice the intro. Than you arive at a page on
which you have to click on the button KLASSEMENT at the left-bottom.
At the next page you will have to pick out the button TUIN somewhere
right at the top. Then you will see some projects, mine is (
normally) teh second one, ZUIDERS ZONNETERRAS, with a picture of an
old garden house, my name is Bart Cappelle. Just click on the green
button next to my name, then click on the naxt page on the button at
the right upper corner and than finally arive at a screen where you
have to fill in your first name, your name and your e-mailaddress.
You also have to give your phone-number, but you can mention 0. Than
click on STEMMEN and you have succesfully voted.

I would be really very very thankfull if you would vote for me and
even more thankfull if you would send this mail to all your family
and friends!

Kind regards,

Bart cappelle

33 years old, female in Turkey needs urgent lung transplant. In
Turkey they offered a hospital in Austria. It is going to cost
100.000 Euro.Her insurance told that they are going to pay after the
lung transplant and her recovery is finished and get the invoice. She
now needs co-pay 30.000 EURO to go to Austria and get into the
hospital. Another problem is she needs a private room for recovery
but her insurance does not cover that. Do you know any CF
organization that helps CF ers for lung transplant?

My question is do one of you have a lung transplant? Do you have any
recommendation?

Or do you know any cheaper country that you can recommend?

Thank you in advance.

Dee

Please contact me at

bugsbunny_d@...

or

kf_savascisi@...

Hello
I just wanted to update everyone on camp this summer. Next month, July 15-
9th, 2007, we are holding our 6th annual "Camp Mosquito Adventure Camp" at
Shocco Springs Convention Center in the beautiful mountains of Alabama.
Campers ages 7 through college students are encouraged to attend. If you don
t live in Alabama, do not worry. Many of our campers can use Angel Flight
and fly to and from camp free of charge. Parents can also fly free of charge


This summer we will be hiking, doing a lot of swimming, participate in the "
Breathing Olympics Field Day ", play putt putt, visit the water park, paint
ball, raft, crafts, tie dye t-shirts, airbrush a t-shirt, Frisbee golf, eat
smores and coco at the camp fire, race the electric toilets, etc.

I hope to see a large group this summer. We've never had any issues with
cross infection and do have strict infection control policies to keep
everyone healthy. THOSE with PSEUDOMONAS CAN ATTEND.

However those with cepacia or MRSA cannot attend. If you would like to see
the facility camp will take place at, go to :

http://www.shocco.org/recreation/aqua_park.htm

If you want more info, or need an application, please email me ASAP or go to
the site below and print out a brochure and application. There are
scholarships available.

http://www.younglung.org/camp_mosquito/index.htm

I hope to get a big group this summer. Camp is medically supervised.

I know personally how important it is to know young people who deal with the
same medical issues I do, especially as a kid and teenager.

Sincerely,
Rebecca R. Snyder
29 yo w/CF,Chronic Pancreatitis,Diabetes,Double Lung Transplant,GJ Tube
Director
YOUNGLUNG Suppport Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
www.younglung.org


[Non-text portions of this message have been removed]

Lung Structure Abnormalities, But Normal Lung Function in Pediatric
Bronchiectasis

http://www.chestjournal.org/cgi/content/abstract/130/2/480?eaf

This is sent to you as an email-a-friend feature from
Chest at http://www.chestjournal.org

[Non-text portions of this message have been removed]

Hi
I have gotten some email's asking how to go about getting sputum results
sent in to attend Camp Mosquito. So I'll just post it to everyone.

I would need you to get your sputum results from your records and mail them
to me so I can make a folder up. Then we can go ahead with the scholarship
if needed.

So go to your hospital's medical records dept, ask them to mail all
microbiology results from Jan 2007 to Present :

Camp Mosquito Adventure Camp
C/o Rebecca R.Snyder
1721 Anniston Rd #112
Jacksonville, Florida 32246

After I have received them and gone over them and consulted with a doc if
need be, I can create a permanent folder for the camper. You can fill out an
application, send in registration fees, and have your spot held until the
results get to me. But a camper has to have the sputum results to me before
attending camp. It doesn't take too long to get them. This way everyone
stays healthy and safe. It is easiest to call the record department yourself
or go to your records department in person and fill out their form, then it
is to call your doc office and have the nurse do it. It is much faster if
you go yourself.

Any questions just let me know ASAP.

I am also getting some fun patches to use as awards this summer and want to
make it a tradition. Kinda like generic scout badges. I picked out some
really cool ones. I am really planning a lot to make each year better then
the last.Lots of swimming, water games, hiking, water balloon battles,
boating, etc. I also am trying to get a PFT machine donated to the camp so
that we can prove that camp is both beneficial emotionally and physically
Fresh Air and Fun . . . .

Sincerely,
Rebecca R. Snyder
Director
YOUNGLUNG Suppport Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
www.younglung.org

[Non-text portions of this message have been removed]

Hello
I want to introduce or for some, reintroduce myself. My name is Becki. I am
29 yrs old and have Cystic Fibrosis( CF confirmed by DNA Test ). I also have
Chronic Pancreatitis, Diabetes, a GJ Tube, and am almost 3 yrs Post Double
Lung Transplant. I also had a PFO repair ( Hole in my heart ) fixed at the
same time.

I am currently back in college and trying to get a degree as a Physician
Assistant. I'd love to go to Medical School but health wise PA school would
be better.Plus I am interested in research.

I also started a non-profit organization called YOUNGLUNG Support Services,
Inc about seven years ago. It first started out as an email group, but now
we have a full professionally designed web site, email community, and
sponsor a special camp for young people each summer with chronic lung
disease called Camp Mosquito. It is truly my pride and joy. We all have so
much fun. It's open to young people 7 through college age but
Older " Peer Councilor's" can attend to be role models for the younger
campers.

We go swimming, have daily trips to the water park, hike, play games, watch
movies, play paint ball, do the rope courses, tie dye t-shirts, airbrushing,
various crafts, group pics, etc.

We do have infection control measures and are happy to report there has
never been one instance of bacteria transfer, and we keep all sputum results
to cross check.

Some of our campers need lots of meds, oxygen, tube feeds, CPT, and
treatments, while other don't need any meds or CPT at all.We can do
aggressive CPT both via Vest and manually. Some of our campers take a "CPT
Vacation " and switch to inhalers for the week, since they stay so active.

Anyways, that's my introduction. Take a tour of the web site and think about
camp. We'd love to have new faces there this summer. For parents of
youngsters and teens, really consider sending your child. As an adult, I
wish I had met a lot of kids and teens like myself. I was picked on and no
one really understood. My hubby went to Duke's Children's Camp his entire
life and made friends he still has and its been about 15 yrs since his last
summer. Please think about it ! ! ! We have never had a cross infection
issue and do have parents who can support this claim.Camp is July 15-19th.
www.younglung.org
"Click on the Camp Mosquito Link"



Sincerely,
Rebecca R. Snyder
Director
YOUNGLUNG Suppport Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
www.younglung.org


[Non-text portions of this message have been removed]

Well I just got married! I can't believe it, just      last year I was beginning
to think i would never meet anyone. I'm 25 already and I thought it was all
over. After some recommendations from a buddy I joined up here:
http://www.anythingoodnow.info and after 4 weeks I was already meeting up with a
beauty. Well, 14 months later and where still together and married =)

hey ppls just wanted to give u a helping hand if ur bored this week and just
feel like messing around and having a bit of fun online. this place here
http://www.geocities.com/emelenclemenceau7233 is where i hooked up with my girl,
it's pretty fun. recommend it to u all.

Karen have added you to her favorite list, check Karen's profile here:
http://karenpassion0155.googlepages.com/bikerchicks.htm

Hello Everyone,

   I don't know the whole story, but I just found out that Jon's Transplant
doctor died yesterday. I am in total shock over this. But I know his family,
friends & patients need well wishes, prayers...etc to get through this time.
Everyone is in shock over it.

   Dr Adams and his team gave me back my son in July of 2005.


Robin A, IL
   God didn't promise days without pain, laughter without sorrow, sun without
rain, but he did promise strength for the day, comfort for the tears and light
for the way.If God brings you to it, He will bring you through it.


   Old Fashion Dreams   www.OldFashionDreams.com
   Tupperware   www.my.tupperware.com/RobinA
   The Online Fair www.TheOnlineFair.com



---------------------------------
Boardwalk for $500? In 2007? Ha!
Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.

[Non-text portions of this message have been removed]

Hello Everyone,

   We need a new starter for the car, so I am having a sale at
www.OldFashionDreams.com with any purchase $15.00 or more you will receive 30%
off using coupon code "car"

   We are also extending our super sale for advertising over at
www.TheOnlineFair.com Buy 1 month get 3 months free.

   For both companies please order directly through the site.

   Thank You for your help.


Robin A, IL
   God didn't promise days without pain, laughter without sorrow, sun without
rain, but he did promise strength for the day, comfort for the tears and light
for the way.If God brings you to it, He will bring you through it.


   Old Fashion Dreams   www.OldFashionDreams.com
   Tupperware   www.my.tupperware.com/RobinA
   The Online Fair www.TheOnlineFair.com



---------------------------------
Got a little couch potato?
Check out fun summer activities for kids.

[Non-text portions of this message have been removed]

Hello
I want to introduce or for some, reintroduce myself. My name is
Becki. I am 29 yrs old and have Cystic Fibrosis( CF confirmed by DNA
Test ). I also have Chronic Pancreatitis, Diabetes, a GJ Tube, and am
almost 3 yrs Post Double Lung Transplant. I also had a PFO repair (
Hole in my heart ) fixed at the same time.

I am currently back in college and trying to get a degree as a
physician assistant. I'd love to go to Medical School but health wise
PA school would be better.

I also started a non-profit organization called YOUNGLUNG Support
Services, Inc about seven years ago. It first started out as an email
group, but now we have a full professionally designed web site, email
community, and sponsor a special camp for young people each summer
with chronic lung disease called Camp Mosquito. It is truly my pride
and joy. We all have so much fun. It's open to young people 7 through
college age but older " Peer Councilors" Can attend to be role models
for the younger campers.
We go swimming, have daily trips to the water park, hike,play games,
watch movies, play paint ball, do the rope courses, etc.

Some of our campers need lots of meds and treatments, other don't
need any meds.

Anyways, that's my introduction. Take a tour of the web site and
think about camp. We'd love to have new faces there this summer. For
parents of youngsters and teens, really consider sending your child.
As an adult, I wish I had met a lot of kids and teens like myself. I
was picked on and no one really understood. My hubby went to Duke's
Children's Camp his entire life and made friends he still has and its
been about 15 yrs since his last summer. Please think about it ! ! !
We have never had a cross infection issue and do have parents who can
support this claim.Camp is July 15-19th.
www.younglung.org
"Click on the Camp Mosquito Link"

Sincerely
Becki Snyder

Why you get heartburn . . . and your friends don't
The real causes of your acid reflux
How to stop your acid reflux symptoms - quickly, naturally and safely!
How to finally get a good night's sleep . . . without feeling any of
the common acid reflux-related pain
How to be healthy and finally be happy again
How to eat whatever you want and not suffer acid reflux symptoms
How to stop the constant burping
How to stop having to clear your throat of phlegm
How to put an end to stomach bloating
How using supplements and other natural treatments can help you save
the money you would be spending on expensive medications
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