Well I just got married! I can't believe it, just last year I was beginning to think i would never meet anyone. I'm 25 already and I thought it was all...
savanna-terk848@...
Jun 2, 2007 3:33 pm
1556
Hello I want to introduce or for some, reintroduce myself. My name is Becki. I am
29 yrs old and have Cystic Fibrosis( CF confirmed by DNA Test ). I also have...
Hi I have gotten some email's asking how to go about getting sputum results
sent in to attend Camp Mosquito. So I'll just post it to everyone. I would need you...
Lung Structure Abnormalities, But Normal Lung Function in Pediatric
Bronchiectasis http://www.chestjournal.org/cgi/content/abstract/130/2/480?eaf This is sent...
Hello I just wanted to update everyone on camp this summer. Next month, July 15-
9th, 2007, we are holding our 6th annual "Camp Mosquito Adventure Camp" at...
33 years old, female in Turkey needs urgent lung transplant. In Turkey they offered a hospital in Austria. It is going to cost 100.000 Euro.Her insurance told...
Hello, My name is Bart, I'm a 32 years old Cystic Fibrosis patient from Belgium. Since I've been transplanted 3 years ago I like to spend my name ( next to...
Hello Everyone, Today is the 2 yr anniversary of Jon's Liver transplant. He is doing well as you can see in the picture below. He's growing and acting like a...
How is everyone doing this morning? Hope that you are all well and i hope that no one is in the hospital but if you are in the hospital i hope you get to come...
I, myself, opt to use weed as alternative medicine (as its the only thing that’s helped me!). I've been looking for a good place to find it, but no one has...
Hello all, I hope you are having a wonderful week. I was hoping to get in touch with patients or parents of patients dealing with cystic fibrosis. I work for a...
Anyone going to Central Florida Ed Day? I am going ! ! ! It would be great
to meet ! ! ! !I hope to see ya there ! ! ! I can't wait to meet Aunt Bev !
! ! Ive...
Hi My name is Becki. I want everyone to introduce themselves to everyone with
their stories.Chronic Pancreatitis,yada,yada,yada.I am 3 yrs out of TX.I
also had...
I cannot sleep tonight so I was trying to figure out MySpace since I have a
page. I looked up Cystic Fibrosis and found this video.I have never seen
such a...
Just got my masters in Science and didnt even have to turn up to class... how good is that? Just phoned these fellows 415-267-3940 and they got me fully ...
muriel-berggren351@...
Nov 1, 2007 12:14 pm
1609
Just got my BS and i wasnt even required to turn up! Just called these people 1-415-267-3940, filled out a few forms and a bit of paperwork and was accredited...
muriel-berggren351@...
Nov 2, 2007 6:59 am
1610
I am now to be referred to as Dr. Jenkins haha ;) Took me about a month to get fully accredited, but after ringing these ppl 415-267-3940 they got me setup at...
muriel-berggren351@...
Nov 8, 2007 4:37 am
1611
I created this cool friends network and added you to my friends network. Hit-up now: http://makegirlfofriend.googlepages.com/girlfriends.htm...
My Update Well I came home from the hospital and picked up a chest Infection......IV's for Christmas.I just don't want to end up in the Hospital for the...
Hi Any teens or adults here have a feeding tube.I have one but done use it much
I know I know but if I eat why use it.Plus unplugging and plugging to go the...
Hey Guys Brad was supposed to go back to work today at the police dept, was already
to leave and the doc faxed the police dept. That he couldn't come back. We...
Hey Guys, I don't write in much. My name is Becki, I am 29yo and live in Florida. I
also have CF,diabetes,and had a lung transplant.I also had an interstitial...
Anabel and Isabel Stenzel are identical twins with cystic fibrosis from the San Francisco Bay Area. Their recently written memoir, "The Power of Two: A Twin...
Does anyone use lubiprostone for the treatment of bowel obstructions? How is it? It's a new chloride channel opener for the gut that is supposed to help...
Announcing the CYSTIC FIBROSIS TEEN & ADULT DAY RETREAT and CFRI ANNUAL EDUCATIONAL CONFERENCE RETREAT: August 3– August 8, 2008 Located at Vallombrosa...
Dear Rebbecca, I hope I have the name right. Can I send you a machine. I feel really bad about your situation. May I have your permission to send you a ...
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